Anyone on remicade with ileitis or stricturing disease

I called the company that makes remicade to see if they had any info on how remicade could be used for my type of crohns which is predominently in the ti (ileitis) aka stricturing disease.  They said they did not but if I had a nurse or doc call they had some info that  they could give on this topic as it is considered an off-label use.

Just wondering if anyone on this list is on remicade for crohns of ti and is having success with it.

Thanks

Chris

 

I didn't know that. Thanks for your input. Prior to remicade did you try anything else to get the inflammation down? Is the TI the only site of your crohn's? Do you happen to know if your CRP was elevated when you were diagnosed. Sorry for all the questions as I am trying to figure out what to do. So much info I am on overload!! I find the docs don't give you much info or time to ask questions. I am the type of person that has to understand it all maybe it is my control freak nature coming out--I don't know. Having a daughter who had leukemia we had to make so many decisions that were out of our league so to speak and the only way we could make them is thorugh research. Thank goodness we were able to make the right ones so far. I guess I am using that experiece and applying it to mine!!
Thanks so much
Chris