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Tailbone pain (joint pain?)

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Posted 10/3/2007 12:47 AM (GMT 0)
Hi all, I have enteropathic arthritis (seronegative spondylarthropathy/ crohn's arthritis).  Mostly the joint pain is restricted to my lower back and fingers.  Sometimes I get fleeting pain in my feet, toes, jaw etc.  However, for a couple of days I've been having pain in my tailbone too!  Very strange.  Normally I relieve the stiffness and pain by moving the joint, but how does one exercise a tailbone??  Any thoughts?  Anyone else with tailbone pain?  It is really uncomfortable when sitting.  Ouch!
Posted 10/3/2007 1:15 AM (GMT 0)
I had to get a pad for my chair at work. It really has helped ease the pressure. I have the spondylitis too. Hope that helps.
Posted 10/3/2007 2:40 AM (GMT 0)
I know it sounds stupid, but you don't know how pleased I was to see this thread. I've been suffering with tail bone pain for
nearly a year. I've never heard of anyone else complain about that specific area. I've had physical therapy, was told it was
fibromyalgia, and it was the piriformis muscle that was causing the problem. Nothing has helped. I find it very uncomfortable
to sit, for any length of time. It also creates numbness in the buttocks and legs. So in a nutshell, I don't have a clue what it
is, but you have my sympathy.
I'm traveling to Florida in a couple of weeks and I'm dreading the drive. I've bought a vibrating seat pad, in the hope it helps.

Let me know if you find the cause of this nasty condition..Good luck.
Posted 10/3/2007 2:57 AM (GMT 0)
Hey vicky,
A vibrating seat pad huh, does that mean despite being in pain your going to have a smile on your face all the way to Florida.? LOL, sorry I crack even myself up at times...........seriously though my tailbone was quite sore a couple of weeks ago, I made sure each time I sat down I had extra padding either a cushion or soft blanket folded over, with me I have lost a lot of muscle and I don't have as much padding around that area nowdays.....also it helps when you relax at night whilst watching TV to take the pressure off by using a lazyboy chair with the foot rest up works for me.
Tess
Posted 10/3/2007 8:24 PM (GMT 0)
Thanks guys, I'll give these ideas a try!!
Posted 10/7/2007 11:49 AM (GMT 0)
Hi all ..I had tailbone pain severely for 2 years. Went to my local doctors and they checked everything they could thing of. When I finally went to Cleveland Clinic, I was told that tailbone pain was very common for fistulas and especially a  type of fistula called 'complex horseshoe fistula".
Posted 10/7/2007 2:08 PM (GMT 0)
Barnette, that's very interesting. How was it diagnosed. I'll do anything to get rid of this pain!!!!
Posted 10/7/2007 3:03 PM (GMT 0)
I've been having tailbone pain for about a month. X-rays didn't show anything but it hasn't gotten any better either. I find that sitting in the car or my comfy recliner hurts the most because I'm putting more pressure on it. Sitting in my office chair doesn't hurt as bad because I can lean forward. I had heard somewhere that it could be inflammation in the rectum area. How many of you have inflammation there? Just curious.
Posted 10/7/2007 7:43 PM (GMT 0)
Vicky, my last ct scan showed thickening of the rectal-sigmoid area. This is new to me, my disease has always been in or around the illeum.
Also have it in my mouth and ? stomach, but yes I do have inflammation in that area. All I know is that this bum pain is the worse, it also
cause numbness and pins and needles of my butt cheeks, after sitting for a short time. Like you I don't have so much pain, when leaning
forward!!
Posted 10/9/2007 12:37 AM (GMT 0)
Gee..you guys sound just like mine did! I always leaned forward to sit. I was given a Cat Scan with contrast to find my fistula. They don't show on just an X-ray for bones and etc. That is why mine was so long dx'd....the local doctors kept looking for a back or tailbone problem. You really need to get checked because by the time mine was found, I ended having lots of trouble. I am having my 6th surgery in the last year and half just to keep the fistula open and draining. Maybe if I had caught it earlier I wouldn't be in the shape I am in. I am wearing 5 seton drains now and will probably add more on the next surgery. I am stalling to have a colostomy bag put on. I have had a colostomy bag for 6 monthes about 12 years ago and I will fight tooth and nail not to do it again!!! Please have it checked out somewhere that specializes in gastro. It seems that a lot of doctors in small cities just haven't seen enough fistulas to recognize the symptoms quickly!!
Posted 10/9/2007 1:13 AM (GMT 0)
Barnette, was it just pain that you had, or were there any other indication that you had a fistula, like passing mucus and stuff.
I don't wanna push for a ct scan if I don't have all the symptoms. My doctor offered me an xray today, that I was going to get done
after my vacation next week, but if you don't think anything will be visible, I don't know what to do.
Anything you can tell me would be great....Thanks.
Posted 10/9/2007 5:19 PM (GMT 0)
Hi Barnette, I do have fistulizing Crohns too. That has been the thing that worries me the most. I'm quite heavy and figured if I do have a fistula it would take a long time to travel to the surface. LOL!!! I'm pretty new to all this so I don't know what to look for. I called my PCP and she looked at my x-rays and said she didn't see anything and it might be wise to call my GI. Waiting for a call back.

What where your symptoms? I'm really worried about all this.
Posted 10/9/2007 7:29 PM (GMT 0)
an mri will detect fistulas better than a ct scan....
Posted 10/9/2007 8:20 PM (GMT 0)
So a regular xray will be of no help at all....
Posted 10/9/2007 8:26 PM (GMT 0)
I guess an x-ray would just rule out an injury. I had fallen on my tailbone back in March.
Posted 10/10/2007 1:16 AM (GMT 0)
I had CT and plain x-rays and it shows inflammation in tail bone an dpelvis- I just started Entocort and tramadol. It feels much better. Not to mention the energy that I have!!!
Posted 10/10/2007 5:36 AM (GMT 0)
I had tailbone pain for several months not too long ago. I learned to sit carefully and use pillows or whatever was handy to help. Driving was the hardest. I never brought it up to my doc or did anything about it and thankfully it went away on it's own. It reminded me of when I was younger and must have bruised my tailbone going down a waterslide. It also took a long time to heal. But this most recent time I wasn't aware of having done anything to hurt it.
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