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Crohn's Disease
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Posted 10/10/2007 3:10 PM (GMT 0)
First off hello to everyone. I have been diagnosed with crohn's 15 years so far
Im a 45 year old male have had many ups and downs in the past years with this disease mostly downs LOL. I have had one bowl resection so far almost had to get another one but Remicade saved me from getting another. I hope it lasts, been on Rem. for about 3 years now. These are the meds i'm on at the moment.
1.Remicade
2.B-12 injection
3.Imuran
I also have a wife and 2 kids that have to deal with this as well, but been a great help to me dealing with this disease. I wish i could be more active with them in doing things.
I just want to say, stay well.. to anyone that has this awful disease Crohns and good luck.
Posted 10/10/2007 4:35 PM (GMT 0)

Hi ya Eric.  I too have c/d.  have had it for about 15 yrs.  i too am on Remicade and b/12 pills and protonix.  I take imodium at night.  i found that during the day i use the b/r about 3-5 times. then during the night it picks up. in a 5-8 hours that i sleep i use the b/r about 3-5 times also.  i am assuming that beings i am relaxed so are the bowels.   i have been haveing some accidents. Gotta hate this disease. yeah    One thing i have to stop doing is drinking so much water during the evening.  Heck i am even considering not eating anything after 5pm.   any words of wisdowm would be great. 

Large intestine removed in 02

Remicade in 06

Posted 10/10/2007 9:35 PM (GMT 0)
One word of advise i would use B12 in shots instead of pills. Because B12 is absorb through the intestines and if you are having a flare up your body my not be getting it in pill form. Injection form would be better.
Posted 10/10/2007 10:20 PM (GMT 0)
yeah
Welcome Erik, glad to have you aboard! We are all here to support each other so if you need anything please ask away! Take care!
Posted 10/11/2007 2:40 AM (GMT 0)
Welcome Eric,We are so glade you found us.I to take b-12 shots and they do help.I hope that you continue to post here as you have seen we have some really wounderful people on this forum.
Posted 10/11/2007 3:05 AM (GMT 0)
Thanks everyone for the welcome. I sometimes feel alone with this Disease, reading some of your posts makes me realize I'm not alone. I had a good friend die of this disease a year ago she was was only 43 years old. It really upset me because i have the same disease. If i can help anyone here from some of my experiences i will post it here for sure. Thanks again and stay well everyone. :)
Posted 10/11/2007 3:26 AM (GMT 0)
Hello Erik, I used to feel alone too, until I found healingwell. Now I find myself among many caring friends. Keep posting, there will
always be a kind word, or advice from someone.
Posted 10/11/2007 10:31 AM (GMT 0)
Hi Erik, Welcome to Healing Well. You are here with very caring people.
Posted 10/11/2007 2:54 PM (GMT 0)
Welcome Erik,it's good to meet you.Take care.
Posted 10/11/2007 2:57 PM (GMT 0)

hello erik, and welcome :)

bunny

Posted 10/11/2007 3:36 PM (GMT 0)
ooops, Forgot to say hello last night!
Well, hello, Welcome to HealingWell!

Sincerely,
Matthew
Posted 10/11/2007 8:10 PM (GMT 0)
Hi Erik Welcome and we are glad you joined us. So glad you are getting support from your wife and kids. I was wondering if the B12 shots are painful. I had them years ago and found them to reallly make the injection site very sore?
Posted 10/11/2007 8:50 PM (GMT 0)
Thanks again all for the welcome.
about the B12 shots (gahrons) only for a few hours on me, my arm where i got the shot gets sore. It feels like someone punched me in the arm a few times lol.. thats all and it doesn't last long. I always get them to give it to me in the arm that i don't use much. B12 is very important to get because it gives you energy and beleave me we need all the energy we can get. Hope this helps..

Post Edited (Erik45) : 10/11/2007 3:58:14 PM (GMT-6)

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