Anyone on hear had a transplant

hi my name is megan i am 13 i had never had a transplant but havve always thought about like wut if i did need one it does seem scary and i would like to know about it :)
-megan

Thankyou for sharing your experiances.
I don't expect post transplant to be pain free. I imagine it to be like three times as painful as having my port fitted, and fifty times harder to start to accept new things.

I know however that does get better, and that's the goal I will strive towards-that eventually I will feel better and things will be a thousand times better than what they were before transplant.

That to me is worth all the pain I think. I'll probably be feeling completely different just post transplant though, and just be sat there cursing phlebotomists cause they've stuck yet another needle in me. I'm not an easy one to please:P

Just a thought. You know when they do the big transplant op. Do they remove your port at the same time-or let you keep it for a bit longer until you're well again. It's a question that's not cropped into my mind till now. I'll be sad to lose my little friend.

Oh, and there's no worries about me not listening to something the docs say. I listen well-to make sure they're not about to screw up. It's almost become a talent lol.

Hope you can have staples removed soon, and that you heal well and quicker than quick!
Thanks again
Gem

Hi there,

sorry to hear things have got bad enough for a transplant. Hope your son doesn't have to wait too long for one. I know there is a long long wait on transplants. Keep us posted on your journey if that's ok with you!

Hope things are ok
Gem x

Hi everyone. I had a liver transplant 4-2-08. I was on the list for 6 months to the day! I worked hard to get myself into shape for this life saving operation. My transplant itself took alittle over 4 hours. I was back to work in 40 days. Recovery at first was painful, both in ICU, my stay in the hospital itself and the first couple of weeks at my caregivers home. The Norco helped me soooo much. The first three months after transplant, I had a hard time mentally...until I finally realized that I was one of the fortunate ones to be given a second chance at life and I am thankful. I am more patience, more appreciative, listen well to others, say Hi.. Thank You..excuse me..pardon me..EXTREMELY please to meet you..what can I do to help you..please allow me...and always with a smile. Life is good and so is the kindness of mankind! Keeping yourself in shape and a positive attitude is the key to pre and post transplant recovery!! I believe I will be recovering my intire live, but am ready for it and will welcome it with an open and understanding mind. That's all I can do. Thank you for reading my post. :)

WHAT TO FACE DURING TRANSPLANT...... BEFORE AND DURING SURGERY YOUR SLEEPING FOR about 10-20 HOURS DEPENDING HOW IT ALL GOES ....THEN YOUR IN RECOVERY AND YOU SLEEP THROUGH MOST OF THAT TO ....WHEN YOU WAKE UP YOU'LL FEEL VERY TIRED AND WEAK ITS HARD TO EVEN MOVE TO SIT UP CAN'T STAND OR ANYTHING YET....YOU MAY NOTICE A CATH. FOR YOU TO PEE ..MY SURGERY WAS DONE UNDER MY BREAST THEY CALL THIS CLAM SHELL ITS BETTER THEN HOW THEY USE TO DO IT BY CUTTING ALL THE WAY DOWN THE CHEST...YOU MAY NOTICE TUBES COMING OUT THE SIDES OF YOU CHEST(CHEST TUBES) THIS IS FOR FLUID SO IT CAN DRAIN OUT AND DOES NOT HARM YOUR NEW LUNGS ...(THEY DO HURT :( BUT IS SOMETHING THAT IS VERY IMPORTANT FOR FLUID) YOUR NOT GONNA FEEL VERY HUNGRY FOR AWHILE BECAUSE YOUR BODY JUST WENT THROUGH ALOT.....YOUR GONNA BE FACING ALOT OF TEST BLOOD WORK, XRAYS,SWALLOWING TEST, MAYBE GETTING TUBES PLACED IF YOU HAVE ALOT OF EXTRA FLUID... YOUR GONNA BE GOING THROUGH ALOT ........AND NOT LIEING TO YOU IT IS PAINFUL VERY PAINFUL ....YOUR GONNA NEED ALOT OF FAMILY AND FRIENDS THERE TO PUSH YOU ALONG THE WAY BECAUSE IT IS HARD...AFTER THE FIRST COUPLE DAYS IF NO PROBLEMS YOU WILL NOTICE YOU FEEL ALITTLE STRONGER AND MAY BE ABLE TO WALK FOR SHORTER WALKS AND EAT BETTER ....THEN about A MONTH OR SO YOU CAN LEAVE NOW MOST HOSPITALS ARE GONNA WANNA KEEP YOU CLOSE BY FOR THE FIRST COUPLE MONTHS. SO MY FAMILY STAYED IN PITTSBURGH PA .....AT THE FAMILY HOUSE WHICH IS LIKE A BIG HOTAL FOR ALL THE PEOPLES FAMILYS TO GO THAT HAVE LOVE ONES GETTING TRANSPLANTS OR THAT ARE ON LIST FOR TRANSPLANT AND ARE about TO GET THERES......ITS A VERY NICE AND FRIENDLY PLACE AND ITS FOR PEOPLE TO GO AFTER TRANSPLANT FOR THE FIRST MONTH OR 2 SO THAT YOUR CLOSE TO THE HOSPITAL IN CASE ANY THING GOES WRONG..... YOU WILL HAVE MORE PILLS TO TAKE WELL IF YOU HAVE CYSTIC FIBROSIS YOUR USE TO PILLS ANYWAYS SO NO BIG DEAL ...BUT YOU WILL HAVE YOUR REJECTION MEDS THESE ARE SOOOO IMPORTANT TO TAKE AND DON'T CHANGE INLESS DOCTOR SAYS....THESE KEEP YOUR BODY FROM REJECTION THE NEW ORGAN!!!!!! ALL THE OTHER MEDS ARE VERY IMPORTANT ALSO LIKE VITMANS ,BLOOD PRUSURE,MUCINEX, ALOT OF OTHER ONES JUST MAKE SURE YOU TAKE ALL MEDS AS TOLD BY DOCTOR .......ALSO AFTER TRANSPLANT YOU MAY FACE DEPRESSION JUST HANG IN THERE ITS BECAUSE YOU BODY IS IN SHOCK FROM ALL THAT IT WENT THROGUH ....YOUR MEDS MAY MAKE YOU FEEL SICK TALK TO YOUR DOCTOR THEY CAN PLAN SOMETHING TO GIVE YOU TO MAKE THAT BETTER !!!!!!! YOUR STILL GONNA BE IN PAIN FOR A WHILE EVEN AFTER LEAVING THE HOSPITAL BUT ITS IMPORTANT TO KEEP WALKING EXCERSIZE DON'T JUST LAY AROUND ......(EVEN THOUGH YOU MAY GET TIRED JUST KEEP WORKING ON IT) IT WILL GET BETTER!!!!!!! FOR A WHILE YOUR SCARES ARE GONNA BE VERY SCORE JUST BE REALLY CAREFUL WITH THOSE AND THROUGHT THIS YOU WILL HAVE PAIN MEDS TO HELP (I DONT THINK NO ONE COULD FACE THIS WITH OUT THEM) TRANSPLANT IS HARD TO GO THROUGH BUT IT REALLY DOES GIVE YOU A SECOND CHANCE AT LIVE I MEAN I CAN RUN,RIDE A BIKE,WALK ALL THE LITTLE THINGS PEOPLE THAT ARE HEALTHY THINK WOW BIG DEAL.....WELL IT IS A BIG DEAL AND TRANSPLANT GAVE ME A CHANCE TO DO THAT ....SO I KNOW WHAT YOUR GOING THROUGH IT IS VERY SCAREY BUT REMEMBER YOUR SLEEPING THROUGH MOST OF IT ....AND THE OTHER THAT UR NOT SLEEPING JUST FIGHT BE STRONG ....BECUASE IT WILL GET BETTER ...BETTER TO BREATH, WALK WHATEVER YOU MAY WANNA DO WITH YOUR SECOND CHANCE WITH YOUR MIRACLE ........IF ANYONES WANTS TO TALK WITH ME EMAIL [email protected] .......GOD BLESS