Posted 11/3/2009 7:09 PM (GMT 0)
Hi there,
I'm not sure whether the high enzymes mean liver cirrohsis or not. There is a CF related version of liver cirrohsis caused by all the sticky mucus (gets everywhere doesn't it?).
When I was diagnosed with mild liver cirrohsis, there were 2 things that were noted-my liver enzymes were always high and kept getting higher each year, and my ultrasound was dodgy too. That then prompted them to take a biopsy of my liver (it's invasive in that they're sticking a needle in your side but not really a big op, and they will be asleep through it). I was put on Ursodeoxcholic Acid, the most common medicine for treating CF related liver cirrohsis. This pretty much stalls any further damage from happening to the liver and keeps things running smoothly. It has calmed my liver enzymes right right down, and there actually seemed to be less inflammation on my last ultra sound (I've been taking it for years, though for a while only sporodically as I was going through a stage of only taking meds if I could see them working. I'm fine with them now though, rarely miss a dose of anything-unless they're giving me side effects that I can't stand.)
I think, the best thing to do is just wait and see and try not to worry about it, if it's mild liver cirrohisis, then it hardley even registers on the radar when you have it. I was diagnosed at 11, and I'm now 23, and the only way it bothered me since being diagnosed, is the doctors telling me about it. Also, the Urso is extremely good at halting any further destruction.
Hope this helps ease your worries a bit.
All the best
Gem