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Posted 7/21/2006 1:55 AM (GMT 0)
Hi everyone,

im 19 years old and i live in South Australia. I guess just looking to find out what everyone else does around the glob.

My lung function at the moment is 61%. Ever since i turned 18 and went into the adult hospital it went down due to the lack of support and treatment in the hospital.

So just looking for a mate to chat to and find out how your health is going.

Kyle

Posted 7/21/2006 2:45 PM (GMT 0)

Hello and welcome Kyle!  Sorry to hear the transition to the adult hospital isn't going well for you.  Have you contacted your peds. clinic and expressed your concerns (just a thought)?

My youngest (s11) has CF.  He was diagnosed last August and is doing very well (in spite of the heat wave we are going through right now).

Hope you start to get better!

Posted 7/26/2006 6:37 AM (GMT 0)
hey mate, im 18 and in victoria suffering with CF :( if you wanna chat you can add me on MSN [email protected]
Posted 7/30/2006 9:23 AM (GMT 0)
heyy:) nice to meet you i'm new to this forum as well. i'm 16 and live in melbourne. my lung function at the moment is around 100+% so i'm going along pretty good. sorry to hear you haven't been feeling too good recently. hope you start to feel a bit better soon and i'd love to talk more sometime!!

Mel
Posted 7/31/2006 4:55 AM (GMT 0)

Hey mel,

WOW thats a good lung function, i wish mine was still like that. Im actually really sick at the moment, so im going into hospital 2nite. YAY fun!

Listen if you have MSN, add me i would love to chat.

[email protected]

Take it easy and would love to hear back from you

Kyle

Posted 8/3/2006 5:36 PM (GMT 0)
Hey Kyle,
Well I don't have CF but my cousin passed away in Jan. 2006. I just want to be in the space of amazing people like you. She was such a bright person and was loved by all. I just want to chat because it is like she is still here. I hope you understand. My e-mail is [email protected]
I am also working with the ccf to bring information into the schools of South Carolina.
Good Luck
Erica
Posted 8/7/2006 1:37 PM (GMT 0)
hi, just wanted to ask the aussies on this page what the cf health care is like down under. I'm over in Ireland where its pretty damp and weather is not so good! we're lucky to get a few days of sun during the summer(although this summer has been pretty good,global warming!) anyway I want to move away from Ireland and just wanted to get an insiders perspective of the health care over there. In Ireland all my meds and treatments are paid for is that the same over there? are there many adult specialist healthcentres for cf? also does the good weather help you to stay active? are you satisfied with the care you get? in eire there is only 1 big adult specialist centre and there are i think around 600 adults and only 2 consultants. so you never see the consultant unless its bad news! most of the time you see a registrar who has very limited experince with cf and are really still students! so not very satisfactory!
any info you could give would be great! also besides all the cf related questions is australia a nice place to live in general??
Posted 8/8/2006 7:14 AM (GMT 0)
hi claire,

well i live in south australia and all i can say is that its not much better, we dont get out meds payed for not untill you reach a certain amount of $$$$. and there is only 1 concultant and like you if your lucky then you wil see him otherwise it a reg. The weather is good, outside exercise is so much better.

Would like to talk and find out more about your healthcare system

Kyle
Posted 8/8/2006 9:18 PM (GMT 0)
anything you would like to know about the health care for cf in ireland feel free to ask and I will do my best to answer you.
Posted 8/8/2006 10:17 PM (GMT 0)
hey fellow CFers my name is bar im 24 years young.living in sunny Greystones in Ireland just thought i'd say hi!
Posted 8/9/2006 1:59 AM (GMT 0)
I'm 24 and live in Canada. My lung function is 69%, but I've noticed that my health has declined slightly since transfering to adult care.
Posted 8/9/2006 6:11 AM (GMT 0)
Hey! im new to this too....I'm almost 17 with CF and my last lung function was 78%.....when im sick it goes down to low 50's high 40's but 2 to 3 weeks of IV antibiotics help bring it back up. The past 2 years I have become more sick...I live in the US and heathcare is a little different here then in other countrys so feel free to ask me anything!
<3 Kelly
Posted 8/15/2006 3:48 AM (GMT 0)

Hi Kyle, I'm a 20year old with cf I was diagnosed at birth so if you have any questions or just want to talk let me know. If you  have aim you can IM me at sweety8828. My transition to the adult clinic was a little scary as well. my numbers weren't as good as they were when I was under 19. Just stay positive and make sure you do everything you can to keep your self healthy, its hard and annoying but it can really help.

Kaitlyn

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