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Cystic Fibrosis
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Posted 7/25/2006 6:03 PM (GMT 0)
I was diagnosed with CF at the whopping age of 39 (I'm 42 now) and thought maybe I could gain some info from this board (and maybe share some as well).  I'm really into trying to find some herbal remedies and adding new vitamins to my diet.  I'm now taking echinacea (sp?) 1x a day, along with Vit C.  This combo seems to really help me expel the mucus easier and I seem to feel less "sinusy" while taking it.  I wouldn't rec. trying it w/o consulting your dr.
Posted 8/8/2006 2:14 AM (GMT 0)

Hi suzynoodle that is amazing that you have not been affected by CF until now - wow what a story.  My daughter has CF, she is 5 and was diagnosed at birth.  Luckly she has been really healthy and so far so good.  You happen to mention herbal remedies and I suggest that getting toxins and removing them from your home is one of the most important things you can do - the EPA says that indoor air pollution is 3 to 70 times greater than outdoor air pollution.  I am a firm believer that removing these things from your home can make you proactive instead of reactive and do this naturally as well.  I have some suggestions for you and if you want further information you can do so at [email protected].

Posted 8/14/2006 6:53 AM (GMT 0)
Wow, you're lucky you hardly have to take any medication at all. I am 12 and on about 14 tablets a day.
Posted 8/14/2006 6:54 AM (GMT 0)
It sucks sometimes but it really pays off in the long run I guess. I have hospital admissions every couple of months now.
Posted 8/15/2006 5:09 AM (GMT 0)
If you're into natural supplements, you should try oil of oregano tablets (this helps with inflammation), and garlic - good for sinuses, colds, immune system, etc.
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