Hi. My name is Jessica, 22yrs. old, and I have 2 boys...ages 4 & 2. I seen that this sight may be the one I need to use to talk to other people with Cystic Fibrosis. March of '06, my youngest son got diagnosed with CF and its been pretty hard on us since then. He was constantly in the hospital with pneumonia and other breathing problems. He is doing somewhat better with that but with the help of breathing treatments 6 times a day. The question that really concerns me as of right now is, he just turned 2 in November and he is not up with his weight like he should be. He only weighs about
20 lbs. We have talked about
a feeding tube (mickey button) with his doctor and still he doesn't seem like that would help him. He also doesn't understand that I live with my son 24/7 and he doesn't know how much food intake he is actually getting...and to be honest, he is not getting much at all. He eats cereal in the morning for breakfast and that's all he ever wants. That's not like him at all...If someone could please just contact me and let me know what you think about
my situtation or ways that I may get him to eat better..I would greatly appreciate it!!!
[email protected] or http://www.myspace.com/jessica_reenae
Thanks So Much!!
xoxo