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Posted 8/3/2006 5:44 PM (GMT 0)
My name is Erica,

My cousin had cf and passed away in Jan.2006. I want to know as much about CF as I can. I am Mrs. Gilbert-America 2007 so that I can raise $100,000.00 in honor of her this year!! Please talk to me so I can see how other families and people deal with CF. I know that all of you are just as amazing as Brandi was.

Erica

[email protected]

Post Edited (familyofcf) : 8/3/2006 5:24:47 PM (GMT-6)

Posted 8/4/2006 2:51 PM (GMT 0)

Hello Erica and welcome to HW!  My condolences go out to you for your cousin, Brandi. 

Not really sure how others deal with CF, but as for me and my youngest son (who has CF) and our family, we take  "one day at a time".

How wonderful that you are raising money in honor of Brandi towards research on CF!  Kudos to you and congrats on being Mrs. Gilbert America 2007! :-)

Posted 8/4/2006 5:14 PM (GMT 0)
Sandra,
Thanks so much. I hope that eveything is going good for your son. I know that when Brandi was little she was a fireBall!! Brandi was always wanting to raise money. She was always thinking of others and not herself. That was what mabe her so special. She is why I am doing all of this because someone needs to make this very in everyone's face like cancer. Because I want cf to mean Cure Found!
Posted 8/14/2006 7:44 AM (GMT 0)
Being a CF sufferer myself I feel completely devastated by your news. I am happy to talk to you about CF and I will share my knowledge about it with you if you wish. Just fire any questions, and I will answer them.
Posted 8/14/2006 1:40 PM (GMT 0)
I am sorry that this is hard to talk about. I am going into the schools in the state of South Carolina and I just want all the information that I can have. Not just from my own family but from others. Like how is the treatments you have. Where do you go for treatment? How do you and your family deal with this and are you big into raising money for a cure? I would love to know more about your story. I will tel you about my cousin only if you want me to. But she was a bright and smart young lady. She was married for eight months.
Erica
[email protected]
Posted 8/15/2006 3:22 AM (GMT 0)
Hi Erica, Sorry about your cousin aswell. I am a 20 year old living with cf. I would be glad to help you learn about cf and answer any questions you have. It's really great that you are raising money for research in cf, its a really great cause. feel free to get back to me with any questions.

Kaitlyn 

Posted 8/23/2006 6:38 AM (GMT 0)
Hey Erica. My name is emily, I'm 16 yrs old and have lived with knowledge of my disease for 15 yrs. Luckily, I have been blessed in my health and was only hospitalized at 2. Recently, my health hasn't been so great, but all the yrs between were wonderful. I may not know or have as much experience in this disease as others, but I'll be happy to help in any way I can!
Posted 2/22/2007 9:16 PM (GMT 0)
Hi,

I'm 14 and have CF. I would love to help you and I'm so sorry about your cousin. Just email me what you want to know and I'll try and help you the best I can!
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