cf help

i need to talk to some one with cf because i'm researching cf.

here are the thing i need to know ok? here they are

how many pills do you take a day for cf?

do you use an oxygen tank?

do does some one have to hang you up side down to pat the phlegm out?

these question may seem silly but some of my friends think someone is faking to have cf.

and it's a very sirus to fake illness

With tablets it ranges anywhere between 50 and 100, depending on how much I've eaten, as it varies greatly with my Creon 10,000 Enzymes.

I also don't have oxygen, as even when my lung function is down and I'm struggling to breathe my saturated oxygen levels are still at 100%. Most of my friends with CF do have to have Oxygen though.

I guess you mean tipping on a wedge, with percussion to help release mucus from the tght spots?
As far as I'm aware that technique isn't in use anymore. People either use the Active Breathing Cycle (ABC), which can be done sat up, or layed flat, or ABC with Percussion. Also layed flat or at up, and not at an angle.

I personally use a device called the Pari PEP. It can't be used on it's own, or with a manometer to make sure you're blowing te correct pressure. It can also be used with a Pari Nebuliser, so you can nebulise either regular Saline (0.9%) or Hypertonic Saline (7% I think) at the same time.
I find this technique is the most effctive for me. I also throw in a little of the ABC and a huff, as it's even more effective for clearing out the lungs.

i take about 56 pills a day but it use to be like 90 again depending on how much i eat
ive tried comming off as many meds as possible with the help of my doctor cause my kidneys arent lilking it so much