I had posted about
my daughter being unable to sweat for a sweat chloride test. Her doctors asked us to repeat it again and the facility we used was a certified facility. We tried it twice both arms being utilized each time and even if they combined the sweat collected, it still would not have equalled 15 microliters. Her doctors hae decided after six failed attempts, she falls into a category of the population that less than five percent share-the inability to sweat for the sweat chloride. With that said, they have recommended we do the Ambry genetics test. Her carrier test was negative. I called my insurance company and they will approve this test. The other option they gave is called a Nasal Potential and it involves placing electrodes in the nasal cavity and somwhow this mimics the lung tissue and they are getting info like that. UNC at Chapel Hill does this experimental study but it is not approved by my insurance for her.I am hoping we get some answer from this. She had atelectasis recently and it took greater than a month to heal. Thanks for listening!
Post Edited (kmsmom3) : 11/3/2006 6:35:49 AM (GMT-7)