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Posted 9/2/2011 1:50 AM (GMT 0)

Have been thinking alot lately as things for me haven't gone so well for the past two years. So, I thought I would share the issues I am having and maybe, just maybe somebody could shed some positive light on me.

It started two years ago after I was laid off, then things went down hill real fast.  Its been a real struggle to find work, I have 2 Bachelors and was working on my masters and cannot find work. I am blowing through my 401K very fast, not sure how long I have. On top of this, I was diagnosed with AS (Ankylosing Spondylitis), which is a rhuematoid arthritic disease thats very agressive. I am in pain constantly and I am taking injections weekly and pills that cost a fortune. The disease not only causes destructive changes in my body but also causes severe fatigue as well. Not sure how long I can afford this treatment. I feel like a burden to my family and I have trouble meeting people or going out. This year, now I was diagnosed with CHF (Congestive Heart Failure), or Dialated Cardiomyopathy. Not the news I needed. Now Iam on even more meds that play havoc with my GI system as well as all the side effects. Basically I am a utter mess. Everyday without any meaningfull work I feel I am slipping away. I guess I need help.

Post Edited By Moderator (getting by) : 9/2/2011 5:38:37 AM (GMT-6)

Posted 9/2/2011 9:31 AM (GMT 0)
d-man. geez a lot on your plate. something i understand. have you thought about some counselling? i am in therapy and it has been the best move i have made. pls continue to talk to your dr. about feeling at risk, i guess your sick of pills be he / she may have some tools to help you / and or support groups you could attend. do you journel at all. it is really helpful getting from your head down into paper. other options are free call numbers for people whom are at risk. they are extremely helpful too, along with having good on referal options. we are here for support too, and well done for seeking us out. pls stay safe and seek immediate help if you feel at risk. sending you much healing compassion. many hugs, jamie
Posted 9/2/2011 11:41 AM (GMT 0)
Hi D-man,

I had to edit your post as we aren't allowed to discuss suicide. It does sound like you have a lot on your plate so I must say take things one day at a time. I have fibromyalgia and take adderall for fatigue. It helps a lot. Have you tried that yet? Arthritis is no fun I know. I am sorry that you are going through all of this.

Keep posting and let us know how you feel.

Hugs, Karen
Posted 9/2/2011 11:43 AM (GMT 0)
Heya D-Man,

Just have acouple of questions as I can relate to your AS.

How long have you had AS or how long do you suspect having it? How long did you have it until you were diagnosed with it? Is the CHF related to Ankylosing Spondylitis?

I know what you mean about financial problems, I currently have $-1.48 in the bank at the moment.

Have had gastritis twice, hospitalized for the first occassion.

Life can often be very unfair I know and sometimes it's really hard to see the bright side of life. My personal way to feel better is to come here and help others, although today I have been abit under the weather myself.

Sincerely sorry about your new diagnosis, I know AS can be quite debilitating as it is and truly hope you find a way to cope.
Feel free to vent as much as you like, we are here to listen and I believe I can relate to your situation.

Best of luck and know that we are here for you :)
Posted 9/2/2011 1:11 PM (GMT 0)
Thank you all, it is really nice to know there are people who care.

Crackles, I guess I have had AS since as a teenager (Many years ago) but was diagnoses by xray and blood test (BLA-27). My cardiologist says that there may a connection with my heart issues but its a wait and see kind of thing.

Thx again
Posted 9/2/2011 7:00 PM (GMT 0)
As far as your medical needs go there are a lot of possibilities out there. (part of what mention is going to be more specific to the USA)

If you have kids living at home and you have no income you may qualify for Medicaid. Even if you have some income...spouse works...you may still qualify especially if you have children.

If you do not have any insurance many pharmaceutical companies have programs in place to help pay for your medicines.

Many states have discount programs to help pay for medication regardless of your income or insurance situation.

Many pharmacies also have discount programs.

Many recurring medications can be ordered by mail through various pharmacies for discounts if you get them in 3 month supplies..

Many of the big name pharmacies offer $4 and $5 dollar generic prescriptions on a wide range of medications.

It may be possible to get your medications through your local hospital's pharmacy and have them written off through that hospital's charitable care programs.

Talk to your doctors about your condition and see if it is even reasonably feasible for you to return to work even if you can find it. If not apply for disability.
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