DAILY CHECK-IN THREAD NO. 165

I selfishly started the new thread with a few posts to go, so I might receive some responses.
Below is Karens last post in the previous thread.

Good Morning All!!!

Raining hard here today off and on. Guess we are suppose to get thunder storms this afternoon. I hope that they aren't bad.

My beans still have not come up. I think I will have to replant if there is time. It is getting late. My gladiolas are up. No blooms yet. I am sure that they will be pretty. Somebody picked them out for me. I hope they are bright and pretty.

I got cucumber plants to plant and some peppers. I have rosemary and basil in a pot. Tempted to put them in the ground and see how big they can get. I love gardening...

I hope all of you are having a good day. Welcome to the new members on the forum.

Take care all...

Hugs, Karen...

Ow.

Ow. Ow. Ow. Ow. Ow.

I don't know what skill I would use in your place - probably distraction as that's the one skill that I know best. Specifically Netflix-based distraction, maybe even Breaking Bad. The opening episode where Walt finds himself on the road with a gun in the hem of his tighty-whities is cinematic genius.

Loss of hope is the crappiest part of having a chronic condition. I don't care what you have, if it's something that impacts you daily, at some point in time we all feel "why bother". For me the answer is always the little stuff: flowers, bumble bees, squirrels and birds, ice cream floats, coffee, and everything else that adds up to just a little burst of pleasure. Granted, in your case an ice cream float may not be the best idea, but you could go looking for squirrels. ;-)

I often wonder how to go about giving advice to people who can predict the words coming off of my keyboard before I actually type them. Who shrinks the shrink? You're 10 times smarter about this stuff than I am, so I don't think there's really much I can give you in terms of advice.

I can commiserate however.

We put so much faith into the people we charge with helping us that when they screw up it almost feels like a betrayal. I guess in many ways it is. What kind of dumb*** would prescribe something to you that would actually make your life worse? I know it's a balancing act - what sucks more, the side effects or the condition? - but gee whiz, you would hope that a specialist that you pay would have your back. Grrrrr.

Way to ditch the Baclofen. Sometimes we have to be our own best advocate.

Contacting your GP and sorting stuff with your Neuro sounds like it should be a tomorrow problem. Today should be a Netflix day.

I'll watch this thread for the next couple of hours in case you want to chat.

Ahahahaha! I never understood the purpose of those little teacup dogs, they're just like really needy cats who bark. Although I gotta admit, chihuahuas are cute as he11 with their little buggy-outee, Marty Feldman-esque eyes.

Remind me to ask you when you plan to be on the road next time I'm on the East Coast. ;-)

I'm glad you're going to be able to grab some T3s. You must be a little relieved too. I don't know what's happening south of the border, but up here in Canada our government is getting bent out of shape about opiates, and Doctors are reluctant to prescribe them. Ironically enough, that just means more people will purchase Fentanyl on the internet, which in turn will exacerbate the same addiction/overdose issues that the government is trying to stop.

Medical weed in Canada is interesting. The only way to purchase it legally is through a network of licensed providers who will mail it to you once you've ordered it. I don't have enough experience with it yet to say if it's gonna be a win for me, but I hope you get a chance at some point to see if it will work for you.

You and John gonna get a chance for a vacation this year?

here for ya.

Sorry I am late...

Trina, I hope you are feeling better by now. I am sorry for what you area going through. I know it must be hard. Hang in there friend.

I hope you can talk to your GP or another neurologist soon. You deserve some relief.

Keep your chin up. I don't understand the little dogs either, they always seem to be more aggressive.

Take care Trina. We are all here for you.

Hugs, Karen...

Thanks Karen and Pitmom,

Your support brings tears to my eyes as does HT and F27.

I have managed to make an appointment with my GP for Mon afternoon.

Johns Sous-Chef gave us a referral for the Neurologist he sees, and my therapist is asking around for one down town in Philly.

Oddly, none of this lifts my spirits at the moment, I feel they will either turn my away as too complicated [as has happened in the past] or they will act as the others have, see me as in significant.

Just got off the phone with my psychiatrist, she ok'd 3 ativans a day if I need them. Still having dark thoughts. Can not get myself to work on anything, art, sewing crocheting, journaling, nothing.

I am floating, just floating in the sea feeling the waves and sun on me. So glad I did that alot in my 20's and 30's, I can recall that feeling fast! nice.,

Peace to all
Trina

Dawn, do you take any vitamins or anything? It seems like you catch flu a lot. It seems you were just sick about a month ago. I wonder if you should check your immune system??? I get flu shots every fall. They do help me. Maybe they would help you too.

I hope that you feel better soon hon.

Trina, Try to think positive. If the doctors treat you as insignificant, fire them and find another. You deserve to be helped. Don't give up and don't lose faith. You will beat this...

Hugs to all.

Karen...

We had a stomach virus last time.

This is a summer flu, I am using nebulizer and pushing fluids, also resting and taking ibuprofen for aches. They seem to have gone though.

Doc said I am doing it all right and I will recover fine. No lung issues outside of flu, I am not having sore throat or pain everywhere like yesterday and day before.

She also said that my immune system was down do the heat wave hitting Cali right now and lack of sleep from heat as well. So docs orders are fluids, rest, keep cool and use nebulizer to keep lungs relaxed.

So now I have to shake for a bit due to albuterol, but small price for flu to go away and not cause more trouble like in Winter

I miss my GOOSEMAN, this rough spot is awful with out him snuggling me. I am allowed 3 ativans a day as needed to get thru this, I adore my psychiatrist

Dawn hope you are feeling better

Hi everyone,
Today was a particularly hard day and I am finding it hard to stay positive.
My partner and I broke up late last night. It came as a big shock to my system after having such supportive conversations with him about the eay i am feeling and he assured me we'd get through and he'll be with me on the journey. One little comment tiped him off the edge and no matterhow much I begged and pleaded my love for him he was firmhe 'can't do this anymore'. I spent today mainly vegetating in bed and thanks to a really good friend and my family i was able to keep sane. Now on my own and thoughts start flooding my head. I haven't slept for the last 24h and not sure if I'd get any sleep tonight. I feel hurt, humiliated, scared and vulnerable. I know in the end it won't kill me but right now I wish i'd just stop feeling as the pain and fear are too strong to bare.

Update official day 4 of summer cold.

I am coming to the end of this doc says. She gave me an Rx of pred and said 3 to 5 days and this will be over. So rest and relax and keep my fever down because in summer a fever can cause a lot of problems. So ibuprofen and pred for now

was told yesterday mum has been sectioned under the mental health act and shrink is seeking ECT. my sis, me and her partner heading down in a couple of hours. we are all for it. i will advise later.

Domino2012,

I know how devastating this is right now. Thank goodness you have friends and family that care enough to help you "float" through this.

As my therapist reminded me this week, "when people do the opposite of what they say, it is usually their fear of not being able to complete the promise." There could be a hailstorm of emotions and egos whirling around inside white people respond this way, who know why for sure.?

One think I can 100%. We can not control them. Your are better off without him, and I am better of without a Neurologist faking it.

We both are will be much stronger in the end; on the other side of safety in bed, PJ days with the dogs. Ice cream for breakfast lunch and dinner for a day or two. Coffee.
Lots of water with cherry juice.

Whatever works for you. We don't giver our mental help away to those that do not respect us.
Job well done.

Dawn, hang in there good health is just around the corner.