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SCARY NEW MEDS~

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Posted 7/1/2010 1:48 AM (GMT 0)

Hi everyone~

Went to my neurologist today and she has changed some of my meds.  I actually fell asleep waiting to see her.  She agrees that I am having serious issues with my blood counts but she thinks that my sleep disorder needs to be addressed.  With that being said she has decided to start a new med regiment that is highly contraversial.  It is actually HGB which is known as "the date rape".  It is used in treatment for serious central nervous disorders such as epilepsy or narcolepsy.  It has side effects that are scary but I am willing to try anything to feel better. I will take two doses at night, one right when I go to bed and two hours later.  I cannot get out of bed during the night because of the paralyzing effect it has.  Since I live alone I will take a dose at bedtime and sit the next one on the table next to me with my alarm set.

You know I am not really afraid to take this drug and the doc will revaluate me in one month at that time we will actually looking at reactivating my VNS.  I will let you know how I am doing.
Posted 7/1/2010 3:53 AM (GMT 0)
My friend was on this same drug. Some folks just need lots of help to sleep properly. It's nothing to feel bad about - I'm glad you got help.
Posted 7/1/2010 6:09 AM (GMT 0)
with healing blessings, jamie. hoping you feel better very soon.
Posted 7/1/2010 6:09 AM (GMT 0)
with healing blessings, jamie. hoping you feel better very soon.
Posted 7/1/2010 3:02 PM (GMT 0)
Hi Teresa,

I hope that this new med works for you. Yeah it would be a little scarrey taking it, but I think that it is worth trying.

When are they going to reactivate the vns? I hope that it helps you. You have been through so much with meds and all that. It is time for you to get some help and some relief. I am glad that this is happening.

Keep us posted on what is going on.

Hugs to you Teresa, Karen
Posted 7/1/2010 5:30 PM (GMT 0)
Thanks everyone for the hopeful thoughts.  I have been so unhappy lately that I am trying to look at this positively but I am really tired of fighting this battle.  I feel so alone even though I have people here.

 

Good news would be great right now.

Posted 7/2/2010 1:41 AM (GMT 0)
You will get through this Teresa. You always have. I suspect that it might not be easy, but you can do it. Know that we all do care about you and are here to support you.

Best wishes for a lovely evening.

Hugs, Karen
Posted 7/4/2010 2:44 PM (GMT 0)
Another day of sadness.  Last night went to watch fireworks in Sebring.  Seems just like yesterday I was watching them happy and thinking nothing could be more perfect.  Trying to find a place to park I passed a banquet hall which I had one of the best days of my life.  It was a silent auction and a real first date for us.  Like everything else, it is abandoned and for sale, with all the laughs and love locked away, gone.

 

July 7th is a special day and I miss sharing it with him.

 

I hope everone's holiday is good.

Posted 7/4/2010 3:04 PM (GMT 0)
Hi Teresa,

I think you are living in the past again. I know that you had special times with him. And that you were so in love. I don't know what happened between you. But only remember the fond memories and try to get on with your life. Live for you, not for him. And if it is meant to be, you will be together again some day. There is a difference between the happy memories and dwelling. I feel like you are dwelling. Just think of the happy times, and be glad taht you had them. You have been doing better, and I don't want you to lose that.

Hugs, Karen
Posted 7/5/2010 4:56 AM (GMT 0)
Dearest Teresa,

It's been 10 years since the person who I thought was my soul mate became "just a friend".

The good memories are painful because memories with him are no longer being made in the same way and in fact I rarely see him. In a way it is more painful that I see him at all because I always hope.

Yes, I feel  broken, but I am "strong at the broken places."

I believe that you are too. 

Sending  hugs and prayers for you for the 7th of July!

Korissa

 

Posted 7/7/2010 1:12 PM (GMT 0)
Happy Birthday My 2%er, always in my heart!
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