Posted 4/17/2015 5:43 PM (GMT 0)
Today I am really struggling. My pain levels are high and I can't sleep. I'm also trying to coordinate appointments for the kids and me. Then I feel like I got sucker punched. I know its not something I should take personally, but I do.
Back in November I had started a job (I was excited and had high hopes of my health cooperating with me). My pain management dr had set up an appointment but when we were trying to schedule I told them that with my new job I didn't want to commit to anything until I had a chance to speak with my superviser. They put that in my chart. I wasn't able to get anytime off work for a while (my work schedule was ridiculous). In December I was finally able to set up a time so I called them, Initially they said I had missed an appointment but they found in their book that I had told them the situation. At that time my pain management dr was on vacation so they told me to call my pcp to get a refill for my tramadol and that they would fax him the paperwork he needed to show it was approved by the pain management dr. I called the pcp and spoke to his nurse and let her know the situation. She said she'd call me back after talking to him. When she called back she said that my pcp refused to fill the medication for me because I had missed that appointment, even after the pain management people told him that I hadn't really missed it. So that ticked me off. I had to go until January first with no pain medications. I didn't say much because I am on medicaid and with my complicated medical history it is hard to find a pcp.
Last friday my pain management dr decided to perform the cauterization a week earlier than planned because my pain levels had gotten bad. That same day I was supposed to see my pcp for a check in on my new antidepressant. I had the cauterization, which they sedated me for, and came home. The sedation made me very sleepy so I had planned on just taking a short nap before the other appointment. I slept until 6 am the next day. I called first thing Monday morning to apologize and explain what happened. His nurse was nice and said she would get it rescheduled. I hadn't heard anything so I called this morning. She did finally call me back. My pcp dropped me from his service for missing that appointment. I had never missed an appointment with him before. I was just shocked. I still am.
Now I have to find a dr that accepts my medicaid, understands my medical issues, and is taking new patients. All of this has to happen very soon because I have several maintenance meds (dicyclomine, phernergren, diphenoxylate, citalopram) that are due for refills very soon. I know its probably silly but I am kind of taking this personally.