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Gastorparesis Anyone???

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Posted 3/12/2008 4:28 PM (GMT 0)
Hi there I am new to the diabetes forum, but not to healingwell.

Matter of fact as far as I know I do not have diabetes, however is was suggested I come visit the Diabetic forum as I am told many diabetic people have this problem. If you are familiar with Gastoparesis, then you know what it is, if not it is where they (techinicians in hospital) feed you these radioactive scrambled eggs, and can tell how fast your stomach empties, if it empties real slow you have gastroparesis.  Just like with diabeties you are very limited on some of the food you can eat as you stomach doesnt digest very fast and some foods will worsen it making you very sick and vomit. For some this is on a daily basis, I have been put on some meds to help me, so I am down to vomiting maybe every few weeks, instead of everyday now. Reglan helps the food digest faster ,with help of erothomyicin , so I now vomit less often now. What I am wondering is this true of diabetics having this, if so I would I would like to know how some of you deal with it, and the diets, what helps you?

Another question  I have is can a person be diabetic and still have all their numbers be perfect?  I have been tested for diabetes several times, since seem to fit the profile so well, and have many of the same symtoms, that my doctors sware I have diabetes, and then evrything turns up complelty normal.

If anything I get drops in my blood sugar and tend to be borderline hypoglycemic.  I eat small meals through out the day.  I cant eat much meat, bread, or dairy. These are many of the foods that trigger my gastroparesis. Anyways wanted to say hello, and see if anyone over here experiences this, and what do you do? Anythoughts would be helpful, Its only been less than a year that I have been suffering from the Gastroparesis, or that I know about, I used to could eat anything and not worry about, them bam all the sudden I am very limited in what I can eat, seems like came on so fast.

Ok thanks for listening and any replies are welcome.......

Posted 3/12/2008 6:11 PM (GMT 0)
My son has gastroparesis, crohn's disease and various other health problems.  His pediatric gi from Mayo in MN has helped us the most with this condition.  The best advice we have gotten is to eat no more than 1/2 cup of food at a time and then not again until 2 hours later if there is little or no nausea.  Also, avoid carbonationed beverages, caffeine, and food high in fat.  Although things are still not "all better" this has really helped control the nausea and vomiting.  He is also on reglan.
Posted 3/12/2008 9:39 PM (GMT 0)
Thank you Joan, I doing most of those things already, its hard to change your lifestyle, doing basically ok one day then bam your life chages completley the next day.  Thank you! smurf
Posted 3/13/2008 4:54 AM (GMT 0)
I spoke too soon...my son is BAM and down again!  We are trying to avoid a GJ tube as his Mayo dr. said will be the next step.  This week we have been trying a liquid diet which does not go over well and so tonight I let him eat a breadstick and now he is on the verge of vomiting.  Gastroparesis is a nasty thing.  I feel for you, personally, I don't know if I could do the daily nausea thing without losing my mind.

Posted 3/13/2008 4:02 PM (GMT 0)
sad  Joan It sounds like your little guy has it bad!!!

I had it bad for 6 months lost 40 lbs in a few months from vomiting, but since I've been on some good meds stay with my safe foods, ive gained 20 of it back, now I want to lose it again, but not by throwing up, but proprerly eating right(whats that? confused  )

 Poor guy, i feel for him sad

Therre is another disease called CVS cyclic vomiting syndrome, and I'm wondering more about it. why is called cycclic, does that mean you get breaks from it, I joined a forum, but no responses, it was a CVS forum I joined,no one reeally could answer my questions. I wonder if I have that, am I in a cycle now where I am not vomiting, and willl I start vomiting daily again?  I know you dont have the answers, Im just venting out loud. Thank you for listening, I am praying for your son to get some releif, and you too!!

Take care....

Ps. the reason I wonder if I have the CVS is becasue I was on reglan and phenergan and still vomiting for those 6 months, we added a few meds, but I was starting to feel better anyway, and even trying to eat "Unsafe foods, sometimes with luck, sometimes without"

Ok again thank you smurf

Posted 3/15/2008 3:46 AM (GMT 0)
I have a friend who has a child with cyclic vomiting syndrome and he would vomit to the point he needed to get IV hydration and they would give him some IV med at the hospital.  The vomiting would last anywhere from a few hours to a day or so.  Then it would stop.  He could go a week or a couple of months or so between episodes.  I haven't seen her as much the last couple of years so I don't know if it ever slowed down or stopped.  She actually got him some relief through a chiropractor.  She also noticed that before the cycle started, his ears would turn real red.

Posted 3/15/2008 12:13 PM (GMT 0)
cool  Thanks Joan, thats helps a little, it seems that with the GP you get less of a break, if eat the wrong things with GP your gonna vomit, that what seems with me. You got to stick with your safe foods. So Im guessing with the CVS you can get breaks inbetween, and still well until a CVS flare comes on?? confused
Posted 3/15/2008 1:04 PM (GMT 0)
You are correct. With CVS, you can go a while feeling just fine. GP is definitely more ongoing...
Posted 3/15/2008 1:38 PM (GMT 0)
Thats what I thought, thank you so much for your help....... smurf
Posted 3/18/2008 3:48 PM (GMT 0)
Joan do you think an individual can have both GP and CVS, that kinda how I feel, even though I am feeling better I still have my real bad days, or myabe om a real fast cycler???'

I hope your boy is doing a bit better today, my prayers are with you andyou son, adn family, I know how hard it can be, it can suck the life out of you.  I really do apprectiate all your help, in some forums I wsnt getting any help, you have helped and so has the fibro forum, I am very grateful...... smurf

Posted 3/19/2008 3:39 PM (GMT 0)
I don't know the answer to that but I do know that my son's GP will vary some, sometimes day to day or week to week. He can have a really bad day or few days (vomiting, severe nausea) then for whatever reason have a good day or some good days even when eating different types and amts. of foods. I haven't figured out why that is but sometimes it gives me hope that maybe things are getting better and someday go away.
Posted 3/19/2008 3:41 PM (GMT 0)
One more thing, my son has been wearing a Scopalomine Patch which is a patch used for motion sickness and it has really helped with his nausea. Doesn't necessarily take it all away but definitely lessens it. He can tell if he forgot to change it and it is over the dosage time (needs to change it every three days and it goes behind your ear).
Posted 3/19/2008 4:38 PM (GMT 0)
I wonder if most insurances cover that? scopline, sounds like a very familiar drug found in a mixture of another drug.

I do hope and pray you have hope and it goes away.

Well my Doc dx with the Gastreoparisis, and has me on meds for that. So I am assuming I dont have the CVS, even though i do go periods with out vominting, sometime up to two weeks, even if I eat poorly(non safe foods). Maybe one day someone will figure this all out, I wish there was a surgery that could fix it for us, but as my doc said, no not alot you can do but take meds for it at this point in time as they dont know much about it, or why it happens, is it heritary, do you casue unknowingly, what? I know you dont have these answers, these are just unanswered questions of mine.  I am also hypermoblie( loosey goosey joints and muscles), wonder if that may play a role, I was born that way. But I didnt have all these stomach problmes till the last year?? Has you son always had this problem, or did it come on suddenly like it did with me?  Thanks again Joan for your help, more knowledge is helpful........ smurf

Posted 3/19/2008 6:30 PM (GMT 0)
We have BCBS insurance and it is covered. Your pattern sounds similar to my son. We just got the results of his gastric emptying scan that was done on Friday and the percent was low at 18% and it should have been over 40% so now we know we are still dealing with gastroparesis. My son's Mayo doctor said that it can happen after a stomach virus or any assault to the digestive system. In my son's case, any of the following which he has would make him more suseptable to getting gastroparesis: kidney stones, gall bladder surgery, crohn's inflammation, gastritis, IBS, IBD, C Diff and there were probably more but I can't remember. I see you have IBS and looks like you have had abdomen surgery...those alone could bring it on. There are many cases where the cause is never known.
Posted 3/19/2008 6:56 PM (GMT 0)
confused  So could be about anything, you said he was tweleve when he was dx, with it, how old was he when you first started seeing symptoms?
Posted 3/20/2008 3:48 AM (GMT 0)
He started having symptoms of gastroparesis last June and ended up in the hospital to figure out what was wrong.
At 12 he was diagnosed with crohns. Since that time, he has had numerous diagnosis.
Posted 3/20/2008 4:26 PM (GMT 0)
sad  poor thing, so he was doing fine for 10 or so years then bam all this stuff hits him at once, thats just so not fair.  MY heart goes out to you, and your son, and I praying for him and you. Thank you again for all you help you have helped more than any forum, and I dont evn have diabetes, thank for taking the time out to explain to me how this can come on so suddently, that was my most question I wanted answered, and you answered it pretty well. It just makes wonder though whats next!!! I guess we put our hands in God's and let him take it from there, take care, much appreciated thanks Joan!! smurf
Posted 3/20/2008 8:22 PM (GMT 0)
Hope your gastroparesis resolves itself...nice to have met you... Joan
Posted 3/20/2008 8:36 PM (GMT 0)
:-)  Nice to have met you too Joan.

Can Gastroparsesis resolve itself??? confused

Posted 3/20/2008 11:15 PM (GMT 0)
My son's GI said that many times gastroparesis will improve and go away in 6 months to a year but you will always be more suceptable to getting it again with a stomach/intestinal insult such as a virus, IBS, etc...
Posted 3/21/2008 3:48 PM (GMT 0)
Really yeah , so it might not be forever! Thats the best news I have heard all year, woo hoo. I hope it goes away for your little one, and my slef and all of us sufferers. Its my 10 year aniverasay, and my husband says I will take you out for dinner when you feel like it, but where is a safe place to eat? confused ...... smurf ......
Posted 3/26/2008 2:23 PM (GMT 0)
Hi I am new to this forum and had to write as i have spent the last year being treated for GP as I am diabetic.  I had severe bouts of sickness once a month that required hospitalisation.  This was followed by periods of sickness once every other day. I was given various drugs including ondansetron, Domperidone etc but nothing stopped the severe episodes.  This was terrible for my family and life.  We tried various changes to diet and had no joy.  I was lucky that I was referred to a different and brilliant Dr who established that when I had a severe episode it was unconnected to food. He changed the diagnosis to CVS.  CVS means that you are sick 4-10 times an hour for a number of days.  You continue to be sick even if you have nothing to bring up (including water).CVS can be triggered by a number of things hormonal, food, stress, cold etc. It turns out that because I was putting so much pressure on my system by being sick so much I was causing GP for the weeks in between the episodes.  So yes you can have CVS and GP.  Since I have received treatment for CVS (Amitriptiline) I have had no episodes of sickness and over time the GP seems to have gone.  It is especially easy for a diagnosis of GP to be made for a diabetic (and is probably normally correct) but it can be mistaken .

Posted 3/26/2008 5:00 PM (GMT 0)
Roxi , thank you!! I thinkk I have both, I am also on erothmyin indefinately, its an antibiotic as the gastro feels this can be caused by some type of infection, how long do you think a person can be on an antibiotic that strong. Im kind nervous about it, but its helping.  I feel like I am in a good part of my cycle(CVS), just scared when is there gonna be a flare.  I think last year maybe excitment and a flu bug may have casued the gp, it was 4th of july, I wasnt feeling well, all the enery was sucked out of me, and the excitement of the fireworks , and it was excting, I think triggered somehting, becasue the next 6 months after I was vomiting non stop, tyring figure out what I could eat and what I could. So the Elival( cant spell the generic LOL!) really helps that much, thats great.

In the fibro forum we have a mini gastroparesis thread going on since so many of us over there seem to have it. I am going to share the info you gave with them, it has been a question, thank you

and welcome to HW, please stick around, Its great bunch of people...... smurf ........

Posted 6/8/2009 7:50 AM (GMT 0)

hi sheryl,

i have been diagnosed with cyclic vomiting sndrom and i am a nurse and never heard about this. i have bouts of severe nausea somtimes vomiting too. does anyone have any tips on coping with the disease and symptoms?

Posted 6/8/2009 1:56 PM (GMT 0)
lilyana, this thread is over a year old and we haven't seen these members in a long time here.  Most people with CVS or gastroparesis are treated by a gastroenterologist.  Some diabetics have gastroparesis and also see an endocrinologist.  If you are a diabetic, this is what you need to do.

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