Hi my name is Diedre (Dee) I moved out west to alberta canada in may to start this amazing new job as a driller in a coal mine. Found this great boyfriend and moved into together soon after. Life was great! The August came around and it fell apart faster than i could ever imagine. It all started with what the docs thought was a miscarriage, but it turned out to be nothing just a bad abnormal peroid (?) after that the chronic mirgranes started and then one morning i woke up at 4 am to go to work, got sick to my stomach and black out on the bathroom floor. By the time the parmedics got there I was seizuring. Within an hour I had had 12. the flew me outa town to a bigger hospital and there I was told I was faking. Even tho during the seizures i was unresponsive to pain and my heart rate increased and oxygen levels dropped drastically. but my blood levels would not spike afterwards.. which apparently they are supposed to. I was transported back to the small hospital here in our little town where i stayed for a month. On dilantan and still seizuring. I was up to the maximum amount per day and I was in hell. The pain from seizures and meds was enough to want to die. Here's the kicker. They cannot find it on my eeg, ekg, cat scan, mir, or blood work. so off the dilantan i went and sent home. falling down stairs, n the shower, cant do anything because i seizure all the time. at xmas i was out at an event and i began to seizure my company tried to get me out of the crowd and not knowing took me out side where i went face first on to the ice and seizured 4 times, i was on the ground for about
30 mins. in a strapless shirt and jeans. The ice salt pentrated my cloths and burnt my skin 2nd degree about
60 % by the time the paramedics learnt the ground was covered in deicer. another lovely side effect of my condition. after the burns my doc decided to try me on epi-val. It seemed to be working!! But stupid me... had gotten in a big fight with the boyfriend and packed my stuff and in the furry packed my meds. When he calmed me down, and I stayed the meds stayed packed. I missed about
3 days worth.... bad big old mistake. so lasst week i was taken to hospital with servere stomach pain and seizures again. they admit me and that morning i started to seizure and within about
an hour's time i had 30 grand mals... i nearly died. crash cart in room and all. good thing i cant remeber any of that hour. or the rest of the day they doped me up soo bad, and flew me by stars to edmonton. ICU. so edmonton puts me on dilant 600mg a day and 900 mg of epival, and sedates me for two entire days to allow my body to rest. kinda like an induced comma. wed morning i had another seizure.... with all those meds in me. and now i have panic attacks too. I am moody, scared, feeling mental literally, sick, tired all i do is sleep, and did i mention mean. loss of appetite... u name i am it... i was wondering if anybody else of these drugs feel crazy? I also was on weight watchers but cant lose weight doc sez it could be from dilantan???? this is extremely hard to deal with..... the docs in edmonton also tell me i have developed sudo seizures (look like seizures but aren't they are stress induced and like u can we woken up from them by pain or whatever unlike a true seizure)...................... please somebody tell me there is a light at the end of the tunnel...
thanks for listening to my rant. D