Doctor is talking crazy.

I think I wrote to you once already, but if not here is my opinion. GET a secong opinion. You need one. I had two different Neuros working with me after my first TC in JULY... One thought I wasn't even having seizures...non epileptic or epileptic. He thought I was passing out. He was a bum. You need a second opinion. Especially if you are very unhappy with your current treatment. If you have insurance go for it and get an EEG if it is covered. Keep us updated. I was told yeah you can work and go to school, just not drive there for 6 months. Yeah right who is gonna take me everywhere.... I didn't want to be at anyones mercy. Feel better and take care. Tracy

I agree with Kayakmom about a second, third or even an 4th opinion about your seizures. Epilepsy, if you do have it, is NOTHING to play games with.

They need to get their acts together, and quit horsing around with this.

They need to get an EEG ordered, Sleep-deprived, or even a 48 hour office stay with video telemetry.

The most excellent form of diagnoses is the VEEG for longer than 5 days.

If your seizures are truly epileptic in nature it will come across the monitor with electrical activity abnormalities. Spikes, waves, spike-and-waves, sharp spikes, sharp waves, slowing over a localized area, and high voltage generalized activity are all something that shouldn't be there.

Each seizure usually has its own EEG pattern, characteristics, and symptomology. NO two seizures are alike.

NES DOES NOT produce abnormal electrical activity during a "so-called" seizure. Sometimes, and I mean sometimes, a person can have a Simple Partial seizure that originates from deep within the lateral portion of the Temporal lobe(s). It it so deep that normal scalp electrodes can't get it. But VEEG does.

They usually try to match up what your body is physically doing during the seizure and the electrophysiology of the EEG, and if it is a for real seizure then there would be both clinical manifestations and abnormal electrical activity occuring together at the same time.

Seizures can't tell time, or go in cycles at the same time each day. That, or your EEG may have been what tipped him off.

I had spiking, and slow waves during 2 EEGs, and high voltage garbage that resembled a generlized seizure in the other 2.

There was no doubt about mine.

Nancy

How are you doing today?

Huntress,  Hmmmm    25 in 7 weeks, Do you think that stress could be a major factor and causing a trigger to a seizure (could be stress that you're keeping inside and you don't see it)or are you on any other meds (cold meds that contain decongestant or antihistime)that might be having a negative effect on your current meds?? That's just a thought.

Stay away from dilantin, when I was first put on it in 1979, there wasn't too much else around and it has "screwed me up" big time.

Hope everything works out for the best and good luck with that 4th baby.

Randy (Ontario)

Also, to the mom who lost her son...I'm so, so, sorry for your loss. I'm proud that you are endeavoring to educate.

Huntress said...

Thank you for welcoming me.

Stress...well...we just moved two months ago. The home we bought was supposed to have a waterproofed basement and it's flooded all over the new carpet and walls and all of our stuff,,,that can't be helping, I suppose...

No decongestants????  I knew lack of rest, weird lights, and some smells trigger this, not sinus meds.

I take sudafed often during pregnancy, it's the only thing that helps with sinus problems/infections. My neuro said nothing! What is the alternative to hellish sinus infections?

How are you all doing out there? I hope you're well. If you feel like telling me a bit bout yourselves, please do.

I've been told by my neurologist and family Doctor that, If I (you)should happen to catch a cold or the flu , Since I'm on medication for my EP, I should not take any over the counter medications, especially the ones that contain DECONGESTANT and ANTIHISTIMINE as they can cause internal bleeding or even massive nose bleeds.

When they mix with the other meds that I'm (you're)on, they can also trigger a seizure.

Randy