Can anyone describe their symptoms of a simple partial, temporal lobe seizure?

Hi Ginny. i am 27th and from birth to now i have had temporal lobe epilepsy. Never knew that i had it and i wished i never had. it is hell. I get funny tastes that have gone. feeling that something bad is going to happen or that i feel that i have seen things but from in another life. very tired and fed up don't seem to be finding the right tablets. i just wished i would die or be killed. no one another stands. so ready to go.

I'm glad I found this thread. I just read the last post before mine, from SteMan, and am pretty amazed at how similar that description is to what happens to me, and how I've experienced this. I've never been diagnosed, never told a doctor because they've never seemed very serious. I am not sure I had them until about 2 years ago when I exchanged similar-sounding stories with my younger brother, and he told me he thought what he was having was something called Simple Partial Seizures. I know I had them around then; prior to that I would get very brief periods of feeling disconnected and unreal, along with a feeling that I was experiencing something I'd experienced before; I usually just called the experience Deja Vu. It was only recently in talking with some other people that I've discovered that what they call Deja Vu isn't really the same thing. To me it's always been a strong sense that I'm re-living something exactly that I've experienced before. To others it's just maybe any general sense of familiarity.

More recently though (I'm 41 now,) I've begun to have other feelings associated with these events. They start as a sort of euphoria, and then within a few seconds I begin having a series of mental images/experiences that, inevitably, I find it impossible to adequately describe afterwards. It's like there's another set of visuals super-imposed on top of what I'm actually seeing. Sometimes it's less severe, where it's like I'm experiencing a deja-vu like feeling while remembering, rapidly, a series of things that it seems, at the time, as if I've actually experienced. But as the feeling passes it seems that all of the things I'm remembering may never have actually happened. At the end I am left feeling tired, a little nauseated, and spaced out.

I am 31 year old male who just began experiencing seizures over the past 6 months after a potential brain injury. I'm am currently in the hospitol awaiting further tests. My last experience that landed me here happened like this: I was talking to friends in my lodging quarters with multiple beds when I began to feel strange. I walked over and sat on my bed. I became somewhat confused and was approached by friends asking questions about something trivial. Their line of inquiry seemed accusatory and confusing. Soon I understood nothing. I then became completely unaware of the external world. I maintained conciousness internally but no longer maintained my identity. I became mearly a witness. All of existence became one point of light racing forward on a black or infinite void background. Mine was a Birdseye view of sorts. Almost as one line on an EKG monitor screen. The point would expand and pixelate like a screensaver pattern and contract back to a single point, forward moving. The contractions felt discomfort and expansions felt relief. I could not voluntarily form thought. However, notions would occur to "me". I recall durring a point of discomfort the notion "better this than absolute nothingness" I experience a notion to press on. Suddenly at an expansion of the point, my conscious is in free fall as if skydiving. An intense flicker between seeing, and not begins. As if holding my eyes open I become aware that I am not falling but walking or standing. Is it wind? I see in front of me a form. I become aware it is a person. I become aware that it is speaking. I become aware that I have been screaming steadily. The person is directing speech towards me. I become aware of speach and attempt to form words from the scream. I feel I am being born as an adult, into some reality. The flickering has slowed and all but stops. On an off flash I am back in this world. Maybe on the floor or bed. I see people I recognize. I become aware that they are human, with developed personalities and speach. I scream but likely in my head. I become aware that I am a person. I become aware that I am not capable of developed speach, character or personality. Contrasting to them I consider myself retarded in all aspects of function and absent of character. I wield the scream untill it becomes what feels to be my first word(s) ever. Long and drawn out, each word hard to form: What. The. F**ck. suddenly I am being restrained on the floor. How did I get on the floor? I stand up and yell them off of me. I can now speak and state my case. "Get away, I've done nothing wrong!" EMS arrives. They question me. I raddle off name, social sec #, and b-day. Again they ask in the ambulance. I respond with my name. At this moment I realize I am that person but am a stranger to his life and character. I think" I guess that's who I am in this place" I felt I am so much more than him though. We arrive at the hospitol. I puke everywhere. I'm tired as hell. I sleep intermittently. They hit me with 1000mg dose of Dylantin. It feels like cement going into my veins. The pain brings me fully aware of who I am, where I am, what has happened. I no longer feel uncomfortable in my body. I am me again.

Hi Ginny if you're still there

my mom has what the GP thinks are seizures.  From my research they sound like simple partial seizures.  She's 80.  We're french speaking people.  We speak french at all times.  So, we're there talking to each other fine and all of a sudden she puts her hand up to her nose and goes "oh my god"  She changes to English and tries to tell me something.  She doesn't realize what she said afterwards.  It makes absolutely no sense. And she doesn't recall it afterwards.  She says she has this sense of deja vu and she feels like the people on the tv are telling her something.  Or if the radio is on it's the radio.  She's been having them for 2 years now sometimes 2 or 3 times a day.  Last winter they stopped for the whole winter.  It's all over withing 10 or 20 seconds.  It leaves her feeling very tired and weak.  At first she got an awful fear that came with it.  The doctor put her on some form of diazapam.  It's Clonazapam I think.  They just make her groggy.  They don't stop these episodes.  So I've been reading up on CBD which is derived from cannabis.  We'll be trying this before we go see a neurologist and he tries all kinds of potent drugs on her.  She otherwise physically healthy and independent.  It's very painful to watch her lose her independence this way and not be able to help.  She drives but is too groggy these days to take a chance. I will let you know how the CBD works

Hi SunnySkyJan, thanks for replying.  Yes, she's had an MRI and CT scan.  Both came back ok.   I was a little scared of that too.  You'd think something would have shown up in at least one of those tests.  He couldn't give her the dye for the MRI because of her kidneys. 

nslady1

 

hi again...lady! Never feel self-absorbed. We all have our crosses to bear! I am one of those that can handle anything, and I appreciate it with those that do post!

Can anyone relate to me? I would like to describe my seizures and see if anyone has had similar episodes. If you do please share, thanks in advance.

I am a 40 year old, male, healthy otherwise. Starting about 14 years ago I had times of confusion, not able to find words when speaking, problems reading and writing that lasted for 10 seconds up to a minute. I dismissed this for years until things got worse.

The episodes would be more intense and more frequent. By then the events would cluster into having seizures lasting 10 seconds up a minute sometime for 5 minutes coming and going for few times a day. These clusters would come and go for 2 or 3 days and may not happen again for weeks even months.

As things got worse I would experience nausea where I would want to vomit, this was the onset of not being able to understand someone speaking to me, or able to find words when talking to someone, not being able find words to write or read. I would simply walk away from a conversation or try my best just to end it. I could hide it very well. After the seizure I would become extremely tired and still do. This occurred for a few years until I had a seizure that put me in the hospital. That was the only major seizure I ever had. At that time is when I was put on Keppra. I still experienced seizures.

In the time since I have taken 4 other medications with Vimpat being the most successful. I have seen 4 different neurologists. Have had 4 EEG's, 3 MRI's. I still experience these seizures but they are not any better, they are more intense and frequent. The only positive thing I can say is that the sensation of wanting to vomit has decreased, but still occur. My memory has decreased to the point my wife notices it and have problems remembering planned dates. I have to write things down constantly so I don't forget appointments. I sometimes, not often, have problems remembering conversations that occurred a few weeks or months back.

People don't seem to think I have a seizure issue because I am good at hiding it. My motor skills are not affected, they seem to think if I am having a seizure I should be laying on the ground or something obviously wrong. No one seems to understand. I look normal, act normal, motor skills are as good as any 40 year old can be, even during a seizure.

I want to make them obvious so people will understand when I am having a seizure. By this I mean saying to them "Give me a few minutes, I am having a seizure", But then I am afraid they will want to call 911 or come running, or calling for help, When I Don't need it but just a few minutes to recover.

I have an appointment with a surgeon in two months, but I don't think the risk is worth the reward. I function well physically, can read fine, my writing is okay (has never been real good), my memory has gotten worse, but not sure with aging a bit. I do want to get rid of the seizures, but I am having a hard time worrying with the surgery.

They have located the area of the brain that is affected. It's been there since birth. It's just a 2 small pea sized "gray matter" parts of the brain that are relatively deep in the frontal lob. My neurologist says I am a perfect candidate for surgery because medications have not worked well. He says there is about a 70% chance for me to be seizure free. I am afraid of memory loss, losing motor skills, making things worse then they are

Can anyone relate to me?
Shawn

Also Shawn.. I was talking to my Dr.s about surgery but I decided that I would not do it because of the risk with them open I g up my head, however yours being right there in he grey matter area maybe it would be worth it, they know exactly where they are going and exactly what to remove. It May be worth a shot depending on how extensive the surgery would be?? What are your thoughts on it? And how invasive will it be?

DH47... I was on emulating for years and was fine but the levels wouldn't stay stable in my blood so they upped my dose over and over again until I was a zombie.. then I had to just go off of it incessant even able to live, every month higher and higher.. it was awful. I'm on keppra now and it's great. Tegratol wasn't too bad but dilation was awful