Thankyou for deleating the double post. I appreciate it.
I am on a ton of meds. I am also Bi-Polar so there is a pretty good mix here. I takeTegretol, Neurontin, Dilantin, Depakote, Serequel, Klonipin, Abilify and Prozac. We have bounced around all year (I was just finally dxed this past Jan.) trying to find a good combo. I guess we're still working on it. I'm down to about 1 seizure very 5 or 6 days and I know that sounds like a lot, but for me that has been great.
I didn't have seizures as a child, I had several repeated injuries over a period of time from 17 to 21. And we started to see the effects of that slowly over the last few years. Finally the beginning of last year, I had a terrible migraine and fell and that set off a very, very long year. We didn't know at first that I was having seizures, I've never had insurance, My husband and I just thought that I having bad migraines and fainting. No one ever saw me fall, they would just find me there on the floor. And I could never remember anything, so we never thought anything serious. They would just put me to bed and that was it. But starting last year I was seizing a lot, several times a week and finally we decidied that it had gone too far. And it wasn't just the falling. It was/is the weird things trhat I would do before I fell, like I was/am drunk or something.
So ANYWAY-I ramble a lot, sorry. The last year we have been working on finding the right med combo for me. And every time I fall, I hit my head and that sets off a rough a day for me. I don't know that it is coming, I don't remember things before or after, so it's hard to gage when they are coming. My neurologist talked to me last week about sending me to a clinic in KC where they will strip my meds for a few days and moniter me. But we have to wait to see whether or not I get disability or not. (again, no insurance) I have a court date in March.
At first my doctor thought that I was having partail complex ( I hope that is the right name) seizures. But now She is beginning to lean twords grand mal because, now my family has actually witnessed me having them and I guess they can be quite violent. I often have bumps on my head from falling and bruises in other places. And I have pulled muscles more than once.
But whatever they're called, whatever name She gives them, I'm just ready to have my life back. I don't drive, I can't be left alone and I carry a bag of clothes to change into if I need them. I am also so very tired and worn out from all of the seizures and because of the meds. I am sure that there are people who have it off a lot worse than I do. I realize that. And it is very selfish of me to complain when there is so much other suffering had by other people. I guess I'm just saddened by the whole thing.
So I guess that's the long of it. Thankyou for welcoming me, and thanks again for deleating the double post. :) -bb