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embarassing siezures!!

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Posted 4/20/2006 8:14 PM (GMT 0)
 hello everybody, today was just like any other morning. I woke up, brushed my teeth and got ready to school. but then it happened. my siezures started to appear. i dont have the normal long siezures, but i do have i think they are called monoclynic siezures or something like that where my arms jerk around and i get confused and disoriented. i am on lamictal and usually dont have this problem except for nights where i lose sleep. i had a decent amoujnt of sleep last night, but this problem wouldnt go away. i tried to jus wait and pas it by and i went to school. school just made it worse! i was talkjing to my friends and all of a sudden a jerk happened. it was one of the most embarassing things to ever happen to me, because kids at school don't understand this and think its funny. i left school early, but i am hoping this won't happen again 2morrow! i don't want to be scared to wake up and go places...can anyone give me some help or advice? i would appreciate it a lot. thanks so much! hugz and kisses:::: GiNa
Posted 4/21/2006 4:39 PM (GMT 0)
Call your dr,maybe your meds need to be adjusted. Wether it be an increase or a change of meds. It seems
like its not working or not enough.

Wishing you the best of luck and a sz free life

Best wishes
Riva
Posted 4/23/2006 3:36 AM (GMT 0)
I had a recreational drug habit that i believe caused a form of epilepsy. i was psychotic for 5 years before getting treatment, and got put on antipsychotics. olanzapine helped but i still have what i call seizures. my brain gets out of control and i end up in a state of unawareness where i KNOW THAT I DON'T EXIST. this feeling is impossible to explain and cannot be explained with words, but believe me its terrifying. i haven't been diagnosed with epilepsy, but with psychotic depression instead. i can relate to epileptics experiences rather than psychotics. i was wondering if anybody else had experiences like mine and would epilepsy drugs control my condition? anti psychotics seem to have helped me but i feel i've reached a plateau and am not getting any better!
Posted 4/24/2006 4:01 AM (GMT 0)

Sparkles,

bless your heart!

i have grand mal seizures. they can be quite embarrassing also. although i'm totally out when mine hit, i lose bodily control. and it's really upsetting when you wake up - are confused - dont know where you are - and have wet yourself without knowing. i really understand -

and people can sometimes be so cruel when they don't understand. i've even overheard co-workers making crude jokes about epileptics in my presence - and boy -it can really make me feel bad (whether they know or not) -

i totally agree about getting your meds checked though - sounds like you need to be on something else or a bit stronger to control them.

besides sleeping enough - do you get enough time to de-stress or do the things you really love?


Posted 4/29/2006 4:13 PM (GMT 0)
thanks guys! i went to my neurologists and he said that since ive been working out a lot lately that i am currently goin through a growth spurt. he increased my medication and now i havent had a problem since!! hopefull it stays that way! :-)  thanx 4 all ur supprt
Posted 5/1/2006 2:00 AM (GMT 0)
oh, that's super! so glad to hear it!!!!

Posted 5/21/2006 12:16 AM (GMT 0)
yes seziures can be embraasing let me tell u all lol maybe u got more than me lol or less i have had seziures in the store i have had a seziure on the citybus
Posted 5/30/2006 2:30 AM (GMT 0)
oooo... Mystic Dreamer - how terrible for you!
was anyone with you at the time?

what type of seizures? i know with mine i'm out for the count for a couple days afterwards?

how did you get home, etc.????
Posted 6/1/2006 8:13 AM (GMT 0)
Let me tell you that I was in the same exact boat; I have had grand mal seizures ever since I was 1-year-old. I thought that it was also embarressing when my mother came into my class to talk with my class about my seizures and epilepsy, but truthfully...it really wasn't! Informing the people around you is the best thing to do. If you do not inform them, they will assume differently about you! I am now in college and I wish that I could do the same here, yet my college is so big! Best of luck to you!
Posted 6/24/2006 1:12 AM (GMT 0)

MegLin,

i'm glad you feel that way. that's great!

i also like to tell those and only those who are close to me about my seizure disorder - or people i work closely with, etc.

the only thing i always notice though is people always look at you differently after that - i see it in their eyes as soon as i tell them. you know if it was asthma or something - people wouldn't feel the same. but i think it scares them. so i always let them know what they should or shouldn't do for me if i do have a grand mal - which does help a little.  and then theres the ones that if you are feeling the smallest bit unwell - keep asking "are you sure you're ok?" - like you're going to have a seizure then and there.

by the way, i have a friend who last year because her seizures were not regulated by medicine was able to get one of those dogs that are specially trained to help us with seizure disorder. i thought that was sooo cool!

keep up the good studies! i have 2 boys in college, 20 and 21

they sure stay busy!

Posted 6/24/2006 8:14 PM (GMT 0)
I'm the same way when it comes to not getting enough sleep, a lot of times that's why I have seizures (or just the jerks like you mentioned). Usually the jerks will be followed by a seizure (grand mal), but sometimes I can control it and I don't have one. Hope things get better :-)
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