Posted 1/20/2007 2:56 AM (GMT 0)
hey, sparkelz (I hope I spelled that right),
Sorry to hear about this mess.
Here's a little true story: Once upon a time someone with TLE was arrested, and because she didn't have her bottles with her name and scrip stickers from the pharmacy on them, the cops didn't give her her meds when she was in jail overnight and she flipped out.
That woman was my mom. Whoops. Darn genetic illnesses.
Anyway, I carry my meds bottles around in a little lunchbox that I keep in my knapsack. What's in my pocket doesn't have the scrip stickers on it, but they're pretty much always within reach.
And I do my best not to attract police attention.
The police also saved my mom's life a few times, back when she was on the wrong meds.
I don't walk around thinking about how I'm sick a lot, and I don't let it color my life too much, but I do understand feeling the way you do. I usually pitch little 5-minutes fits to that tune and then get on with my life, 'cause I get really bored being sad about it.
I didn't ask for it, and it's so not fair. My mom didn't know she was sick when she had me. I figure the best way I can pay it forward is to either adopt, not have kids, or have any fetus that might one day grow inside me genetically tested (but that's really heavy stuff; but so is the cost of meds and knowingly bringing a kid into this world knowing it will have to deal with what I have). Luckily, that's not stuff you'll have to deal with for a few years yet, at least. :heart:
It's very frustrating, sometimes. You're definitely not alone!