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body tics or twitches anyone ?

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Posted 11/26/2006 5:08 PM (GMT 0)
greetings all

just want to ask if anyone has experienced body twitches, in the last year or so i have noticed an increase in twitches in my arms and/or legs. a person watching me would not notice anything, but i can feel something and it bugs me and makes me wonder if it is yet another body malfunction or could it be some drug side effect of dilantin and keppra

logger confused

hang in there everyone
Posted 12/6/2006 2:53 AM (GMT 0)
I do the same thing your describing. I only do this when I first lay down for bed though. I had brain surgery for a tumor about three months ago, and I have been taking Dylantin.

 Maybe thats what it is confused

Posted 8/31/2007 9:44 PM (GMT 0)
OMGhosh

I have so wanted to know this question also!!!!!!!!!!!!!!!!!!!!!!!! I have been looking for info but can not really find much on this "problem" Did you find out anything yet??????????????/


Kelly Ann
Posted 9/1/2007 5:38 AM (GMT 0)
Hi Kelly Ann,

Thanks for bringing this one "out of the archives" as it were. Bumping it up might mean that newer members can input onto it. I get twitches every now and again, but not regularly enough for me to worry. (Maybe 5 a month) I take carbamazipine (Tegretol). I just put mine down to muscle spasms, but I wouldnt like to say about anyone elses


Darren

Posted 9/1/2007 8:04 PM (GMT 0)
I also take Tegretol. However, Have had "twitches" before the meds or the Offical DX. I think I will take a look into the archives, If I can. brain fog. Ihad another question. guess it will come back. (in the middle of the night.lol)

Kelly Ann
Posted 9/3/2007 2:30 AM (GMT 0)
yeah, i got that a lot too. i dont get it much anymore but i used to get it a lot when i didnt sleep much and was tired. it was embarassing sometimes when i would be in school and suddenly my arm or leg jumps. it could be a side effect of the med.  i used to take dilantin when i was first diagnosed but i was quickly switched to keppra for 2 years. ive been off it for about 3 months now. i got an eeg 2 weeks ago and ill see what comes up.
Posted 9/26/2007 12:11 AM (GMT 0)
My husband had his first seizure in June 07, 2nd and 3rd late July with 2 week hospital stay due to concussion, brain bleed, delirium and hallucinations. Needs carotid artery surgery, but can't until figure out why he has twitches. New neurologist diagnosed his twitches and confusion due to high blood ammonia. He's right, 238, normal 23 in July. Weaning off Dilantin as it is processed through the liver.
Posted 9/26/2007 11:30 AM (GMT 0)

Hi there Angel,

I am surprised anyone uses Dilantin now-a-days. It is a VERY old fashioned drug and Epilim is starting to go the same way. The most common AED's these days are Carbamazipine (Tegretol), Lamotrigine (Lamictal) and another one that I cant for the life of me remember! lol. Are they replacing the Dilantin with another AED? Thank you for sharing your story with us!

Darren

Posted 9/26/2007 3:00 PM (GMT 0)
I usually get twitches when I go to sleep at night.  They are extremely annoying and sometimes pretty violent.  One time my whole body bounced right off the bed.  I did this before I was on meds so I know it's me. I get muscle spasms during the day sometimes, but they don't always feel the same as they do at night.  Then again some of the seizures I have at night are always very different than the ones I have during the daytime.
Posted 9/27/2007 5:30 AM (GMT 0)
my mouth twitches alot, like I am having a almost like a spasm, my wholemouth goes to the right, andmy husband says "are u ok, hows your levels, ya need meds?????? IT is like my eyes close shut real hard and my lips move to let right,
Posted 9/27/2007 10:47 AM (GMT 0)

I have myoclonic seizures which is a jerking of the extremities, usually more than one limb at a time for me.  For me, it can be both feet or legs and arms or my head.  You might want to research myoclonic seizures and see if this fits what's happening with you.  Before I was diagnosed last year, my mouth was also twitching and I was having a lot of trouble with my speech.

Take care!

Carla

Posted 10/11/2007 9:26 PM (GMT 0)

I just talked to my doctor about this same thing on Tuesday. My fingers and arms twitch (I can see them moving usually). My eyes also squint and blink too much. It happens more when I'm tired or stressed. My doctor says these are brief seizures and she's increasing my Lamictal to try to stop them and other symptoms I'm having.

My family notices mine only when they're holding my hand - they say they don't really notice otherwise but I find that hard to believe. I'm very self-conscious about it.

I'm 40 and this twitching just began after I had an EEG a month or so ago - I experienced multiple seizures during the EEG. Doc diagnosed me with temporal lobe epilepsy.

I'm really hoping that this med adjustment helps. You're right. It's very disconcerting. I'm still adjusting to the diagnosis and it helps me to know that others are experiencing the same thing. Thank you for posting this.

Sugar1110

Posted 10/12/2007 5:58 PM (GMT 0)

Sugar1110,

I think you will start to see a difference soon with the medication, if it's the right medication for you with the twitching and jerks.  Before I was diagnosed last summer, I was doing this pretty much all day long, I just didn't know what was happening to me.  I thought it was a side effect of the large amounts of Prednisone I have to take for asthma.  I had no idea I was having myoclonic seizures.  I was also having them in my face, around my mouth and it was affecting my speech.  I think you will see a big difference with medication.

Good luck to you!

Carla

Posted 10/12/2007 6:13 PM (GMT 0)
Thanks Carla. It helps to know yours stopped. I'm hopeful the med increase will help mine.
Posted 10/26/2007 11:59 AM (GMT 0)

Hiya

My daughter has just been diagnosed with epilepsy and I have occassionally noticed her right hand twitching.

When she has a seizure it is very severe and very noticable the twitching.

But sometines when I hold her right hand I can feel the electricity running through her hands.

As it is my daughter who suffers with it, I am not sure if it is the same twitching that you are talknig about.

But it seems to be the same syptoms, its not really noticable but she doesn't do it all the time very occassionally.

Dee

Posted 11/5/2007 5:04 AM (GMT 0)
about twitches and its cure. I have a good site relating to twitches and the site will help for the curing the twitches. If you are interested see the site for more details below.


www.eyecarebasics.com/eye-care-articles/eye-twitch.htm

Post Edited (Alan10) : 11/4/2007 10:07:26 PM (GMT-7)

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