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Posted 5/31/2008 6:59 PM (GMT 0)
hi all-
i'm new here, just found this site. i've been checking it out for a few weeks. i'm 31 years old and was diagnosed with epilepsy about 7 years ago. mostly i've had 'small' seizures. i could never explain to anyone before what it felt like, but reading some of the other posts here, its kinda nice to see other people that have felt the same things i have. i have only had 3 'big' seizures, the first one while i was driving, which is when i was diagnosed. i have had the smaller ones before that but never really knew what it was, just blew it off as nothing, a 'wierd feeling'. anyway, my trigger is music. not any music, if music is a background noise somewhere, thats not a problem, its only if i'm really listening to it, usually only music that i know. i know its weird... and not real good, cause everyone likes music, you can't just stop listening to it forever! i've been on lamictal for a few years and it seems ok. usually if i am good with my pills (sometimes forget one--take 4 /day!) i'm ok when listening to the music. although i have had some times when i still get the 'small' ones. it seems to come and go, i won't get any at all for a long time, and then for a few months i will occasionally get 'small ones' when listening to music.
well, thats my story, like i said, i just thought it was nice to have other people to talk to about this that have been through the same thing, since i don't really know anyone else that has experienced it! thanks!
Posted 5/31/2008 9:59 PM (GMT 0)

Hi BoogieBunny and Welcome to HealingWell,

Im really glad that you have found us and that you feel right at home. Its amazing to realise that there are people out there who feel the same way that you do... its such a good feeling to know you are not on your own. I have heard of music being a trigger for people before but it has always been as background music. Is it a particular style or a particular artist that triggers you? I cant imagine a life without music... it would drive me insane.

Welcome again!

Darren

Posted 6/3/2008 9:39 AM (GMT 0)
Welcome to you
I love your NN
I know you will find all the caring and support here........

Darren is a fantastic person wears his heart on his sleeve and I DO hope you will stay with the forum and check out Resources and back pages for questions you may have

Start on thread as well if one not started already on same subject

Welcome again and do know you are not alone anymore

LYN
Posted 6/3/2008 11:45 PM (GMT 0)
thanks for the replies! darren, to answer your questions, its not triggered by a particular song, or artist. but it is triggered only by music i know (totally wierd, i know!) if i've got the radio on and its all stuff i don't know, no problem. if i'm listening to music i enjoy, thats when the problem is... as i said the lamictal seems to be doing the trick for the most part. still have the 'minor' ones occasionally, and it usually does take a while of listening before theres a problem anyway. also, i do get a feeling after a while that i should probably stop listening, and if i do, i'm ok. i know this is such a crazy trigger, never heard of anyone else with this one! thanks again!
Posted 6/4/2008 3:11 AM (GMT 0)
I appreciated reading your post.  Glad to know we are not alone.  SarahSmith

Posted 6/4/2008 11:14 PM (GMT 0)

Boogie,

I also wanted to welcome you to HealingWell and to let you know that Darren has taken a few days off to take his finals and also to move.  I just wanted you to know that so you would not wonder why you didn't get an instant response from him.

Darren is the greatest and we look forward to his return.

Take care!

Carla

Posted 6/9/2008 9:18 AM (GMT 0)

HIya,

I am wondering if your trigger is something to do with acoustic memory. It seems strange that its only known songs which are a trigger (Suggesting memory) but I am assuming you dont have issues with other kinds of memory recall which suggests its an acoustic-specific area. This could either be within the temporal lobe (where language is predominantly processed) or possibly in a region of the frontal lobe where memory predominantly is. There are loads of bits in between but that is what I am thinking mainly. Its not something that I have come across before so I am kinna thinking on my feet a bit here!

Darren 

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