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Posted 7/5/2008 11:34 AM (GMT 0)
 first I apologise for being so irritable in my last post. I just want answers so badly but it is no excuse for rudeness. Secondly I have been reading many of your posts trying to figure out some of what is going on with me and I see some of you mention your levels. What are you talking about with your levels. I am assuming some type of blood test maybe. If so my neuro has never shared this with me and I have a appointment with him Mon. so I would like to know to ask him. Knowledge is a wonderful thing. Again I apologise for my smart mouth er keyboard. Monte
Posted 7/5/2008 3:20 PM (GMT 0)
I have had seizure disorder that has surfaced again since I was diagnosed with Lupus in 2002 . I think I was having seizures before then just no one was catching them. I have been having simple partials but wonder if they are not changing into complex my only reson is that they are becoming very different the last two seizures. The last two I felt emotion before the seizure then my eyes got odd and my face became numb, I zoned out and didn't want to talk, I can talk during my seizures but I feel very angry if I am forced to speak with someone. I just prefer to sit still and wait them out. I do not twitch or jerk. Afterwards my right arm will twitch and jerk and my tounge will be numb sometimes for days, also I am noticing a drooping of my left eyelid after the last two seizures as though it is tired the rest of my face is fine just my upper eyelid. I also have a difficult time with aphasia afterwards and eye crossing and vertigo. This last time I had chest pain when I breathed also. There is that enough, I believe that about cov ers it. before when I had seizures I just felt them coming on in my vision it was as though I was seeing though someone elses glasses, then I would get a odd feeling in my mouth and I would want to sit down and be quiet some where because I knew a seizure was coming. I didn't want to talk to anyone and once again I could but was irritated if I had to. In both cases I am extremely tired afterwards and sleep for long periods of time if permisable. Monte
Posted 7/7/2008 7:17 AM (GMT 0)

Hi Monte,

RE: Levels... Basically when we talk about our 'levels' we are referring to the amount of AED's in our blood. Normally (In the UK at least) people dont have blood tests done. People know that their levels are either NORMAL --> They have taken all meds on time, LOW --> They have missed a dose or are late taking one, or (Less common) HIGH --> They have taken a dose early or have taken a double dose by mistake. You can have bloodwork done for your levels and I guess it is a good idea to have it done regularly to make sure that your body hasnt suddenly started consuming your AED's like smarties but I have to confess, its not something I have ever done. (Perhaps its more of an American thing)

RE: Shakes... I am guessing you mean involuntary twitching every now and again (Some people have it more regularly). Some epileptics seem to get it and some people dont. I do but I only twitch once or twice a day. Some of it could be your epilepsy but at the same time, some of it could be a reaction to your meds which is why (As Anvil has already said) you should tell your doctor.

Hope this helps

Darren

Posted 7/7/2008 1:37 PM (GMT 0)
Thank you I am going to google AED's before I go to my neuro this morning because I don't know what those are and I want to know before I ask him about them, and I dont think I would have time to hear back from anyone before I leave. Once again I do apologise for my shakey start on the forum that is not my normal personality, but I did not act normally for a good several days after the last seizure and my husband said my personality was not normal as well. I am sorry. Thank you for the information. Monte
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