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Posted 9/19/2008 1:55 PM (GMT 0)
Well...Back again...How is everyone.  I did well for a few weeks, things settled down and I had no real problems for a time other than some auras.  Last night I had two back to back partial seizures that were pretty bad and one that I am pretty sure was a general (I don't have many generals).  Things seem to be getting WORSE again.  Stress builds in life and BAM, it just comes to bear I guess.  I really think there's a link to this. confused    I don't think I'm going to run off for yet another round of EEG's/ MRI's and crying to my neuro and primary.  They all think I'm a little nuts already..

I just don't know what to do.  These things still scare me to death.  I hate to tell my wife when they happen as they scare her too, probably more than they scare me, I really don't have any need to go to a doc for this I don't think.  It's exacerbated by stress, I am convinced.  If I tell my wife that, she will mollycoddle me and not allow me to deal with normal life stressors (she is already overly protective of me since my brain tumor).  I just feel like I have to hide everything and act like everything is OK.

Does anyone else feel this way??

HW

Posted 9/19/2008 3:21 PM (GMT 0)
Seizures scare everyone I think. At least they do me.

My sister had a brain aneurysm a few years ago. She was one of the lucky ones whose was caught before it killed her.
Since then she has had more trouble with seizures. She had epilepsy prior to the aneurysm, but now they have been worsened. She has gone thru meds like no one else. First Dilantin, then onto tegretol, etc. Name it, she has taken it.

Her seizures are partial seizures. It seems to be worse when things in her life are very stressful. While she constantly goes back and forth to dr's, she also doesn't go at times for the reason you stated - they think she is crazy. She has had MRI and EEG after MRI and EEG. Even the VEEG plus sleep studies out the wazoo. Anyway, to say the least she is not any worse off, but she also no better off. She is now on disabilty. :(

I think in time your wife will relax because my brother in law has around my sister. It took alot of time. BUt now he is back to his normal self. So give her the time. Dee hides hers from him at times, but there are times I know she can't. So its a catch 22.

I know its not an answer..more mumbo jumbo than anything...but at least your not alone in the boat.

Janet
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