Hello everyone,
i'm Giuliano from Italy.
My little daughter Margherita (she is 5 months) has "Double Cortex Syndrome" who cause her frequently seazures and will bring her heavy mental/physical retardation.
Doct are following her at hospital of Florence (Italy).
They have proove to cure her first at all with SABRIL but we have no good effects.
Now they are prooving with DEPAKIN and they will go on with ACTH.
I have read that this is a rare desease... Can anyone tell me something more? Could u tell me your story?
As anyone any son/daughter like mine?
I'm desperate...i'm looking for answer all around the world.
If anyone know something...help me please.
My email is : [email protected]
Thank u all
Ciao
Giuliano