My husband has been having NES now for 28 months, he tends to bite his the side of his mouth and tonge alot during his seizures,
he can have anywhere from 100/150 per day but at one stage he was upto 300 a day, they can last anywhere from seconds to a couple mins but he can have them sometimes 1 after another, his MRI and EEG were fine so because he has not been diagnosed with epilepsy 2 neourologists have discharged him , we feel as though we have just got t get on and cope with these NES