20 years of seizures and now I'm seizure free!!!

Hi everyone,

I wanted to tell a few of you my story in case any of you are in the same boat as I was. I am 37 yrs old. When I was 17, I got into a car accident where my head hit the windshield, and shortly thereafter, I started suffering from Grand-mal seizures. I was on Dialntin, and it seemed to be the only thing that worked for me. Doctor after doctor continued to "manage" my seizures, which they did pretty effectively with the Dilantin. Well, about 3 years ago, when it seemed that the Dilantin was too much to handle, and many other symptoms started coming on (which they said were a result of Dilantin, and some other diseases) I found out I had Lyme Disease. To make a long story short, After 1.5 years of treating the lyme, I had some heavy metal poisoning because of the Lyme toxins. They put me on chelation therapy to clean out the toxins, and because I couldn't take any meds a few hours before or after the chelation, I noticed that I haven't taken my seizure meds for 3 weeks!!! It's been over a year now, I haven't taken a single seizure med and I haven't had a single seizure.. I don't even get the aura or anything that went along with them. Come to find out I had Lyme disease with a few other co-infections and that was the reason for the seizures. Lyme disease always acts up when the body is stressed, and did something in my brain after that accident. My doctors now think I had Lyme since I was 12.

I know that not everyone has Lyme Disease or other tick born infections. But my point is to question everything. I was being treated for epilepsy when I needed to kill off these Lyme bugs instead. And even though everything poited to a traumatic brain injury...it wasn't.

I don't wish Lyme on anyone. It has been the hardest thing I have ever had to overcome. But what an amazing relief it is that the seizures are gone.

By the way, before I stopped the meds, I hadn't had a seizure for 2 years, so now I have been seizure free for over 3 years.

Good luck to all.. I understand seizures...Had them for 17 years. And if anyone has any questions, please feel free to ask.

Samantha

  HI, just wanted to tell you a little about me. I had a seizure in October 2011, and was put on dilantin. I never took it. I then had a seizure January 2012, and then every month after that except April, September, and October. But all the other months most of them were on or around the 24th of the month. So in January 2012, I was put on topamax, and I went kinda nuts. The doctor who put me on was very uncaring, and so switched. I went to Cleveland Clinic, and they kept me on it, but said they feel my seizures were non epiliptic. Anyway, I went to a neuropathic docto in September, and she said i was filled with mycotoxins. I had had water damage in my house, and it was the sewer kept backing up. Anyway all that fungus was killing me. I had migraines, pains, and insonmia, and was just not the same. I was put on pau d' arco. For 2 months didn't have any. Then I went to Thanksgiving, and both houses I visited had the smell of mold, and sure enough they both had mold. I ended up having another seizure in December. I since have moved, and seems like finally my hair is growing back. I had hair loss from the meds, and mold (fungus) With God helping me find this doctor, I am on my way to health Mold does cause seizure, mental problems, headaches, joint pains, hair loss respiratory problems, just to name a few of many conditions.