Posted 12/9/2013 6:08 AM (GMT 0)
After having a febrile seizure as an infant, another after an accident as a teenager and one post surgery in 1980..I was put on dilantin and have been seizure free ever since. This year I started experiencing some slight jerkiness in my arm and leg..barely noticeable...more annoying is an occasional spaced out feeling in my head from time to time. Went to the neurologist, had an EEG which was normal for the first time and a brain MRI which showed that I had possibly..not positively ..had a tiny brain bleed at some time long ago and a very small benign tumor..meningioma. My Neuro isn't worried about either of these things but is horrified that I'm still on dilantin. She says I should have been taken off it years ago and it's probably causing my new symptoms even though my levels are not in the toxic range at all...the're actually in the low normal range. She's currently tapering me off dilantin and onto generic keppra. I can't remember the last time I've felt so miserable! I have nausea, double vision, my head feels like a balloon, can't walk a straight line....last week I was out working, Christmas shopping, driving...this week I wouldn't even try to walk around the block, much less drive. Plus I feel like crying every half hour. She says these mostly go away. I was posting for advice but I think I've just convinced myself I need a second opinion.