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Posted 8/8/2005 3:33 PM (GMT 0)
Hi all...I'm new to this forum and new to the issues at hand. My boyfriend was diagnosed with epilepsy long before I met him, and had stopped taking medicine by the time I met him. However, I believe he had a seizure the other night. I don't know what to do. I've never experienced one before, but have done some research and all the symptoms of a grand mal seizure are present. He closes up whenever I try to talk to him about it, but if they're coming back, I feel that we should be doing something. Any advise is appreciated. Thank you.
Posted 8/8/2005 8:16 PM (GMT 0)
Well, I just tried talking to him again and he informed me that he hasn't been on meds for over 7 years, and that this is the first seizure he's had in that time period. I'm not sure why the meds were stopped, will have to ask, but what's scaring me is that it's happening again. To top that off, he's been extremely tired and irritable lately, and has been under a lot of stress which I read can trigger them. Does he need to go to the doctor?
Posted 8/8/2005 11:10 PM (GMT 0)

UnsureGirlfriend,

He should deinately see a Doctor to get the proper testing done to find out what the heck is going on. Sometimes, seizure activity can hide deep in the brain for several years (that's what happened to me) and then show up when you least expect it to.

Stress is a major trigger for a seizure, sometimes it won't show up til the next day, after there's been a stressful or traumatic experience, b/c the natural body defenses fight off a seizure but then, when the defenses are low,(like the next day) you will have a seizure.

He should not be driving until the seizure condition condition is under control.

I hope my little speach has helped you a little bit. I'm basing this on my own 26 yrs experience.

Randy

Posted 8/11/2005 2:28 AM (GMT 0)
Hi Unsure, Make sure you're supportive of him no matter what happens. Many times a neurologist will stop meds because a pactient isn't having enough seizures. Some people actually stop having them after time. I had a neuro that thought that....it didn't work for me. The side effects of the meds for some people are terrible. They're all kind of depresssants. If he had bad sidee effect he should find a neuro that will work with him to find an AED (anti epileptic drug) or combination that he can deal with. I take 15 pills a day for E. I hate it but I do it . Good luck to both of you and you'll be in my prayers tonight.

Jeff
Posted Yesterday 4:51 PM (GMT 0)
I agree with Randy. Seizures can stay deep in the brain for many years. I was "seizure free...med free" for about 15 years and then started having aporix. 6 seizures a week when I tried to go back on active duty after taking 3 years off from my military service. So, I'm in agreement with everyone. He really needs to see a neuro. I'm very thankful that he has someone that is as loving and supportive as you. Keep it up and try to stay strong. I know from talking to my wife how hard it can be on the care giver.
Posted Yesterday 8:22 PM (GMT 0)
Hi Unsure, I agree with Halo. Seizures are not "off" all the time, it stay in the brain, I had it when I was 4 years old and take epamin (i think it doesn't exist anymore) up to my 12 years old, but never had a seizure, after that I was med free and seizures free up to my 26 years old, and then it came back up to 3 years ago when I had a brain surgery. Now I'm 41 but still take med and sometimes I have a seizure.

I'm very thankful that you are with him and support him, and hope that you stay with for a long time. i think is the best medicine we have "to have someone to care and someone who loves us"
Posted Yesterday 9:12 PM (GMT 0)
Hi Unsure,
I also had seizures that went away and came back . The first one was when i was a baby then they went away until I became 15yrs old. they slowly came back then i had one every day .I also had brian surgery but i take meds to control my seizures. many of my exgirlfiends as soon as they found out i had seizures or seen me have one, they would vanish and never be seen agian,but u stayed there with him and wiling to help him. I think u are a very special person for just being there for him.
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