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Help me Doc, I'm in Pain

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Fibromyalgia
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Posted 9/3/2008 1:13 PM (GMT 0)
shakehead   Pain medication makes it possible for me to get up in the morning, make food, get some housework done, make phone calls, get bills paid, actually socialize with people. Although there is some debate about what type of meds help what type of pain, I know what type of meds make my life bearable. When I run out of pain meds or my doctor undertreats my pain, which he does, consistently, my life is a living hell. I am trying to care for my aging father, when in pain and without meds, I cannot function. What is wrong with this picture? I don't want to get high, I hate not being able to think straight, but I do want to live my life, somewhat modified, but still, I want to live it. It isn't fair. I'm almost to the point of going to the underground market for help. i don't know what to do. Conversations with my doctor about undermedicating result in his sneering at me, I don't think he likes me very much, and me in tears. I asked to be referred to a pain mngt.clinic, his response, "they can't do anything for you, I can't do"? What? I went for two of those 15 minute introductory meetings with two other doctors, they both said "Celexa". I have a dual diagnosis, also BiPolar, Celexa would send me into a rapid cycling tailspin. Help please.
Posted 9/3/2008 2:41 PM (GMT 0)
Tyno, it's terrible when your doctors don't listen to you.  I wish we could have them live in our shoes for just one day.  Things would change rapidly!

 

Have you tried the malic acid/magnesium supplements yet?  If not, read the thread about them and the links on the thread that explain how it works in the body.  They don't work for everyone but they could help to lessen your pain.  You will never know unless you try them.  They have lessened my pain...for sure!  I still have pain but I'm the one in control now.  It's worth a shot and they aren't really expensive either...at least not where I get them. 

 

I tried Celexa, by the way, and I might as well have been taking a placebo.

 

Sherrine

Posted 9/3/2008 5:57 PM (GMT 0)
Tyno idea have you tryed gabapentin in high doses yet? It works well for me, I take 800mg 3-4 times a day. It's a nonnarcotic your Dr. might be pleased to try it with you.I take the gabapentin then 2-hours latter I take a percacet so I have no break through pain as the gab. wears off.  Fortunatly I have a wonderful Dr. who has never given up on me, and is always looking around to see what works. I plan on trying the malic acid and mag. to use as I do the percacet Than I'll only need narcotics when in a flair up. I'm sorry your Dr. isn't sympothetic to you we are here, glad you started a thread.

                                                Smiles

                                                   gennie

Posted 9/3/2008 7:09 PM (GMT 0)

Tyno, I had similar problem with my doctor, but he didn't sneer, he mumbled under his breath and didn't follow through on blood tests or anything.  So, I fired him and got a new doc.  Granted, it took me 2 years to finally give up and change docs.  It would be worth a try to change docs if you can.

btw: this same doc never finished the sleep study for my husband and he repeated it two years later (a week ago) and was finally diagnosed.  Some docs are just awful and you gotta fire em.

Sue

Posted 9/3/2008 8:05 PM (GMT 0)
Thanks guys. At least while in agony, I feel your support, I'm afraid I'll start drinking if something doesn't change soon. I know it's not a soln. but maybe it'll lessen the agony.

Posted 9/3/2008 9:07 PM (GMT 0)
I feel your pain, my doc won't even prescribe me percacet or anything that might help. The only thing she will give me is tramadol and I'm taking tripple the dose every four hours to make it through the day. When I ask for something stronger she looks at me like I am some kind of druggie trying to get high. I agree that they just don't get it, or I just need to step up with my whining. He He
Posted 9/4/2008 5:12 AM (GMT 0)

Its sooo hard with the docs, mine also looks at me as if to say  'Not this woman again" He makes me beg and feel bad about taking meds that I couldnt do without.  Im not on many and I dont misuse.  I have a pain specialise/rheumy who gives me my pain meds now and with the right ones ,your life can be bearable.  Look at changing docs, im at the same stage also its just so very hard , time consuming,  and hard emotionally  to go through it all again,  but your doc sounds even worse than mine.

You should see a specialist also.  It took me two specialists to find one who understamds  and two docs just to get the one ive got who isnt the best either.       keep looking, he sounds like a total pig of a man.    sue2z mad mad mad

Posted 9/4/2008 5:54 AM (GMT 0)
I'm in agreement. You need to find another doc. Depending on your insurance you may be able to directly contact a pain management clinic on your own without having to have a referral, I know someone here in my state that was able to basically bypass her "not so useful" gp and actually made contact directly with the university here. Our state university hospital has a well known fibro research section.

The most successful approach that I had with my gp was to explain how it was that it was affecting my day to day living. That it was prohibitive to me being in and out of the house (cause I live in a 2nd floor apartment), etc. Once he realized that I was looking for meds to be more productive and to be more physical, he was more receptive.

I'm so sorry to hear that you're not able to get the treatment that you're in need of. It's frustrating to be told to "suck it up" or to have them look at you like you have 3 heads when you say that what's being done is not effective. I wish you luck and hopefully some relief soon.
Posted 9/4/2008 1:55 PM (GMT 0)
mad   Tyno3...grrrrrrrrr, I get so angry at these ego driven, no compassion, uneducated Doctors ( and I use that word only because I would be banned from this board if I typed what I really would like to call them)...anyway...so sorry that you are having to go thru this. I am so lucky to have a doc that treats me so well, and keeps  me  fairly comfortable, but I have other physical problems (crumblinfg fusion c5-c6, bulging dics above that, spur at c2, chronic back and leg pain,) other than just fibro. chronic fatigue..etc...etc..etc... (you know how it goes). IF he will not address your pain levels with you and a treatment for it, then you need to start looking for another doctor. If a doctor DOES NOT respect YOU or your condition, then there is no way he can treat your illness. I have been in your shoes. Other doctors treated me like I was either insane, just a whiney pms woman, or just a drug seeker. It seemd the more I  tried to explain to them the more I felt stupid, ashamed and weak. It really does affect your own self esteem. I am on a strong narcotic,also something for break thru pain. But let me tell you, before taking the narcotic I am on now, I tried everything! I am not advocating the use of narcotics,it should be used only as a last resort. I just know what has helped me. We ALL have our own level of wellness and needs as we are ALL different. We have to find what works for us. Due to my other problems I cannot get out and about much but at least I am more comfortable. Whatever you decide to do, I hope you get some relief. My heart goes out to you.

Breath

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