Mycoplasmas? A possible causative agent for fibro...?!?!? Antibiotics for fibro?

Another forum member, toryboy1969, brought up some information about research being done by Garth Nicholson, PhD. on the subject of fibromyalgia and mycoplasma infections. I did some quick internet research on what's published medically out there and it blew my mind! If this information proves out for fibro, as well as some of the other mystery illnesses and disorders, some of us may get some relief in the next few years. Read on:

From the Journal of American Physicians and Surgeons, Mycoplasmal Infections in Chronic Illnesses

Mycoplasmas are a form of bacteria, almost as small as viruses, that migrate into the white blood cells and may remain there for the rest of our lives. There may be antibiotic therapies that could address the infection but this is all in the beginning stages and much more research is needed to be done. Because these little bitty bugs are inside the white blood cells, they don't go looking for them to kill them. This could get interesting.

Maybe then somebody will believe me when I say " Ï really hurt, all over

". Now that would be a blessing. I'm on my 6th day of agony b/c my doc gives me three weeks worth of meds to go 3o days. So every month I spend a week in He--.I am right now, and being in pain is enough already but we moved today. Also, my non helpful, incredibly hostile sister is running all over town looking for my Dad, who has Alzheimers, and for whom I am the solitary caregiver, b/c my brother has a career in NY, and my sis normally resides in Victoria, B.C. Please, please tell me how to make the pain stop. I've taken 3 tylenol 1's every 4 hours but they do nothing. I've taken 25 mgs. of amyltriptilene in AM and another 25. just now. I have rubbed linament from head to toe. I am lying on a heating pad with a memory foam pad underneath me. I still have to get through tomorrow and most of the following day before I can get more medicine. If you log onto the Chronic Fatique forum, you will see quite a bit about the Epstein-Barr virus. I had this in my early teens. My mother had it in her twenties, and she is now in a wheelchair dx.d MS. It would not surprize me one bit about this being a bacterial or viral consequence. Also, I'd be interested in whether anyone else had the "Swine Flu"vacine they were eagerly handing out when I was in college. I agreed to take it, and did. Then, later, it was revealed it was a hoax. But what did they inject me with? Anybody else out there with similar experiences? 

Very interesting. I will be printing it out to take to new rheumy when I get referral. The one thing I found missing was MPS.

 

I do not have the medical training you do Jeannie but if I understood right something like pneumonia could be the cause??? I have had pneumonia several times in my life.

 

So this could be why they say 50% of our children could get fibro???

 

It doesn't explain why more women than men get fibro and CFS.

 

This is why I keep saying on here that I will never give up hope of them finding a cure.

 

luv and hugs

Marlee

I take wild Mediterranean oregano oil. It's really an all purpose herb. It's an antibiotic, antiviral, anti-fungal, anti-parasitic, anti-inflammatory, and antioxidant.

I also know of another one called larrea tridentata which from what I can remember does everything the oregano oil does but possibly it's stronger. Or at least I'm assuming it's stronger, it'd have to be better in some way considering the stuff is like $50 a bottle which is why I haven't tried this one.

There may be specific antibiotics for certain bacteria with prescription drugs, but the natural compounds in the oregano oil are so complex that they seem to work for all bacteria from what I've read. Oregano oil can also tell the difference between good and bad bacteria which is why I don't get digestive problems when taking it.

What are you talking about? How are we being exposed to foreign DNA consistantly?

I see. Well I highly doubt that has anything to do with fibromyalgia. As embarrassing as it is to say, I've barely had any experience in that area and certainly not at all for quite a few years. Also I'm pretty sure the fibro started with me long before I first had any sexual experience. So obviously this isn't a factor for me, and I'm hearing about more and more young women who are getting diagnosed with fibro and chances are they haven't had much experience in that area if any at all.

GETTING BACK TO THE SUBJECT AT HAND...Yes Dagger, that's what I saw in my reading, too. Months and months of antibiotics before satisfactory results were achieved.

Marlee,
There actually is a specific mycoplasma for pneumonia which could weaken your system for the next little mycoplasma to make its entrance. Remember when I supposed it might be a stealth virus? Looks like it might be a sneaky little bacteria that may be the root of all our problems... Wouldn't it be awesome if research shows that we might get over this stuff with long programs of antibiotics?!?!?!? (for those of us who aren't allergic, I mean.)

Also, these buggers are airborne spread, and not everyone who is exposed is triggered to come down with an ailment. This may explain the spread of the disease in families where some, but not all members get ill. Some people's immune systems are stronger than others or they are genetically designed to repel some illnesses. My husband is almost never ill, same with my son. Our youngest daughter has crohne's, fibro, RA, allergies, contact dermatitis to most everything and heaven knows what else.

I found something about the man/woman ratio a while back and posted it, but I can't find it. I had stumbled upon it in the first place so I'll have to do a better search when I get time.

Kythe,
I'm not sure where you are getting your information but I'd be interested in your sources. Antibiotics do not wear away the lining of the intestines and your immune system is mostly located in the lymph nodes. Where do you get your medical information? (Please don't say a health food store.)

I read other articles about this over the weekend and it is kinda scary cause if this is the case we could be spreading this to family members. I thought about all my grandbabies I have shared food with all these years and all the kisses.

 

What I have found interesting in my case is so many of the things I have wrong with me started in a short time span.

 

I read one paper, can't remember who wrote it, that only 50% of the people with these disorders tested positive.

 

At least we know there are people out there working on finding the cause.

 

Hey, I'll be a lab rat if they want to test my blood for creepy things in my white blood cells.

 

luv and hugs

Marlee

In 1994 I had surgery for diverticulitis, almost waited too late the thing was leaking, it took a long time to recover from that. They removed a foot of colon. In the late 90s I had surgery for GERD. A few pneumonias from asperating from GERD before the surgery. All the stress I went through. I'd say my system was pretty down and open to anything.

 

luv and hugs

Marlee

Dear folk: I  had constant upper respiratory infections, strep throat, mostly, some ear infections and would estimate I was given antibiotics for about 60% of the time from about age 6 through 16. Then I developed mononeucolosis. That laid me really low for about 6 months. Talking about antibiotics, it seemed they had to keep increasing the dosage and switching the type of antibiotics around. Sometime, when I was about 19 yrs. old, I developed an infection that raised my body temperature to almost 105 and they had a hard time getting it down. that was following a series of penicillin (two mighty doses) at one time. They sent me to an internest who thought perhaps toxic shock syndrome. It seems I have been sick most of my life. That's gotta be immune system issues, right? The fibro came around the time my immune system mistook my thyroid for foreign material and attacked it, wiping it out. I wasn't aware of what was happening but my face swelled up really badly and I broke out in hugh welts all over my body. Really weird. Following that was when I was diagnosed with fibro, low thyroid, anemis, endrometriosis, fibroids, and so on. Then as I began to get all this sorted out I was run over by a truck. The fibro took up residence in those soft tissue areas, and lives there still, very well, to this day. I am happy to report though that the absence of medicine to help with the pain has been resolved, today, my body feels better. Stresswise, however, well, that's a fish of an entirely different species, and a different forum. Thank-you all for being there, and for bearing with my ramblings.

Maplady,
That links you posted are from 2000 & 2003 and the rest of the stuff I'm reading is from 2007 & 2008. Also, the link I posted includes writers who are MD's as well as PhD's.

Both the NIH and CDC are part of the federal government and I question their "unbiased" opinions on anything concerning what affects the veterans. I'm not trying to paint a conspiracy theory picture here, just want to keep an open mind. Sometimes it's in the bureaucracy's best interest to not search so hard for "bad" findings, you know?

bump