Hello, I'm New

I have been looking around and reading.  This seems like a very informative site and I feel it will be a good place to get some information and support.

I have not been diagnosed with FM.  Not for a lack of trying though.  I'm currently on my 3rd doctor.  I've not talked with him about these issues though.  After dealing with the other 2, I just don't feel like going all into it again

With my first doctor, I did get 1 diagnosis after all kinds of different testing.  He says I have severe sleep apnea and that is the cause of all my problems.  I have my doubts though.  When going over the test results, there were many times they said I was asleep and I know that I was awake as I was clock (phone) watching.  I also learned from the sleep tech that insurance will only cover a CPAP machine is the pressure is at 7 or higher.  My pressure was set at 9. 

I was also given an ultrasound to check for PCOS.  He said negative to that also because the ultrasound showed no cysts.  But I have every other symptom that is listed on their website.

So anyways, as far as my thinking I have FM, my mother is the one who first suspected it as she has it.  She did the tender points thing on me and I had 8 of them, so that's what first got me thinking. 

That was 4 years ago.  And after looking at the list that is posted here, I have 40/59 symptoms.  I don't have pain everyday, usually just if I overdo myself.  It's like I have to pick and choose my activities depending on what I am going to be doing that day. 

Like I can't go grocery shopping on my work days.  It's too much.  I become so exhausted that I end up feeling like I have the flu.  Weak, aching, can't stay off the potty (sorry if TMI )  So I've learned to pick and choose.

My other diagnosisis include:  GAD, panic disorder, OCD, chronic depression, degenerative disc disease, osteo-arthritis, asthma, allergies.  I have something wrong with my feet that I can't remember what it's called.  Something about my arches and my ankles are separating when I walk. I get lots of pain from this, even when I'm not walking. I also have a torn ligament that they are wanting to do surgery on, but surprisingly, it really doesn't bother me much.  Just swells alot.

Well, that's a little about me.  I tried to keep it short, but that's hard for me to do sometimes

First of all, please don't worry about talking too much.  I am the self proclaimed "Babbler of the family."  I didn't even give anyone else a chance to vote for me, because I wouldn't shut up long enough for anyone else to vote.

Anyway, I hope you feel welcome here.  I know a lot of us have gone through multiple docs, been dismissed or written off as crazy, or just plain told that we should "suck it up."  Personally, I've gone through at least 20 years of wondering what the heck was wrong with me until I FINALLY got a doc who would listen to me.  I've been through a lot of docs, tests, shrinks, and just about everything you could think of before I was finally dxd in June.  So, don't give up.  It may take awhile to find a doc who will really listen.  In the meantime, we are all here to support you in any way possible.  Feel free to ask questions (read fibro 101 at the top of the thread page), make comments, or just come her and vent if you need to.  We may all be different ages, come from different parts of the world, and have our own personal opinions, but there is one thing we all agree on.  We get it.

So, welcome to a family who will do anything and everything to make you feel comfy!

Hi Brie and welcome!

I don't envy you with how long this has been for you and no diagnosis. I was quickly diagnosed because the fibro came on "fast and furious" with me.

And yes, muscle twitching can be a symptom of fibro. My twitches started around my eyes and mouth and then worked their way throughout my entire body lasting 2 months. I only get "some" twitching once in awhile now.

It sure sounds like you have alot of the symptoms and like Sherrine said, keep calling around until you can find a Dr. that knows something about this. Good luck and it was nice to meet you!  GamJill

There is a lot of info on this forum and you will probably learn more than most docs know about fibro.

I'm trying to get a referral to a new rheumy and I asked if she treated fibro and MPS and if they accepted our ins. For me I just want to get a fresh view on fibro and MPS from someone that specializes in it. She may have the same view as my GP and she may not.

luv and hugs

Marlee

                             SMILES, Gennie

Thank you so much for all the warm welcomes

I have an appt. with my regular dr. in a couple weeks to recheck my blood pressure.  I went the other day for the muscle twitches and it was high   

I printed off the list that was posted with all the symptoms and highlighted all the ones I have.  I am going to present it to him when I go in and see what he has to say.

Hi to all, this is suszen from US. Iam new to this forum I want to know more information about this forum.

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suszen

Clinical Depression