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how many of you have fibro and lupus?

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Posted 9/24/2008 8:47 PM (GMT 0)
i recently developed a strange rash on my nose....it has spread now to one cheek and an eyebrow.....i have a lot of the symptoms of lupus other than the rash...i just never really thought about it until i got the rash....i have had pluerisy and i have raynauds...

i am going to ask my doctor to run blood work again (it's been 10 years!), but i am wondering how many of you fibromites have lupus and how you personally distinguish between the two?

thanks,
A
Posted 9/24/2008 11:40 PM (GMT 0)
Hi Alicat,

I have fibro and lupus. Sometimes it is hard to distinguish between the two. The rashes are part of lupus, so is the joint pain, fevers, hair loss, brain fog and fatigue.

Denise
Posted 9/25/2008 12:40 AM (GMT 0)
i have joint pain, hair loss, intermittant fever (a lot of times with my period? seems strange), the pluerisy and the rash. my joint pain is burning and some of my joints swell, mostly in my hands, wrist, feet, ankles...

just recently i started with the rash.

may i ask lilbearsma if the rash is dry and scaly? mine is red like a sunburn with no pain or itching and it is dry and peels away on the edges.....
Posted 9/25/2008 1:53 AM (GMT 0)
Hi Ali,

Yes, I have had a dry scaly rash on my hand and fingers from lupus. It looks red with a scaly white on top. You could try to use some hydrocortisone cream on it. If it doesn't help, your rheumatologist may be able to help. Mine has slowly faded over time.

Denise
Posted 9/25/2008 1:54 AM (GMT 0)
ali,

 

I have NOT been dxd with lupus-my docs have spent a year trying to figure out of I have it or not, but everything you described, I have, too.  I have been having fevers lately, too, and that is a new symptom for me.  BTW-I know you didn't ask me, but my rash isn't dry-just very red.

 

Anyway, I really hope we don't have lupus.  I just want to know why I have classic symptoms of lupus. eyes

Posted 9/25/2008 3:25 AM (GMT 0)
thanks lilbearsmama...

i have tried hydrocortisone cream...hasn't helped much yet.

at first, i tried this "light wand" my mom has....it is supposed to heal eczema and/or acne....well, it made it worse....

when i read that UV light makes the lupus rash worse it was like the dots connected....

the only thing that has helped is a good dose of vitamin C....i have been taking fish oil and evening primrose for a while, but when the rash started, i tried to heal it with the vit. C....still, it persist. it is better, but will not subside.....

bleh.
Posted 9/25/2008 3:33 AM (GMT 0)
hey kelly71!

please describe your rash? it is obviously on your face, but i'm interested to know the shape of it....is it in the typical "butterfly" shape? mine is only half a "butterfly".....

the web pages i have read say it can be dry and scaly.....so, maybe it can be one or the other? the pictures i saw were pretty vague. one picture looked very much like mine....almost acne like, but dry? and it does not look like rosacea......it's quite different.

i need to find a new rhuemy....the last one was totally useless....no kidding. he wouldn't even script elavil for sleep....

i checked the local listings and found someone about 40 minutes away....i will just have to keep all my ducks in a row so that i can have a sitter during my appt.....

the things we go thru.....
Posted 9/25/2008 3:39 AM (GMT 0)
Well I don't have lupus along with the fibro, but from what I know, lupus can be ruled out with blood tests. I had a lot of blood work done and it was determined that I only had fibro and not both.


They do share a lot of the same symptoms but I think fibro covers a much broader range of symptoms than lupus does. One thing I have that really fits fibro much more than lupus is environmental sensitivities. I think there are some environmental sensitivities associated with lupus(can't remember which ones), but it wouldn't explain all of the sensitivities I have.
I'm photosensitive, bright lights hurt my eyes and I sunburn very easily even with sunscreen.

I'm also sensitive to sound and I find it very hard to focus on things or fall asleep unless I have quiet.

I'm very sensitive to temperature. Cold is easy to deal with because I just have to put another layer of clothing on, but heat is a lot harder to deal with and I often have to turn down the thermostat in the summer in order to get to sleep and use ice packs during the day to help keep me cool.

Last but certainly not least, I'm highly sensitive to odors(chemical and natural). Strong odors can have a variety of effects on me, runny nose, headaches, coughing, asthma, nausea, or dizziness. This is a very hard one to deal with because I really have to avoid strong odors and this isn't always possible. It's often hard to find products that are truly fragrance free and hard to find ones with fragrances that I can tolerate without too much trouble.
Posted 9/25/2008 2:49 PM (GMT 0)
ali,

 

Yes, my rash is the "butterfly" type.  I also have this rash on my chest, too.  BTW-like I said, mine isn't dry, but I am a cocoa butter freak.  Right now, I'm living in SoCal, and it can be really dry here.  If I don't use some type of moisturizer, I look like a lizard...or snake?  Well, I look like I'm dry, scaly, and shedding. smilewinkgrin

 

Kythe,

 

I agree with what you said-lupus CAN be ruled out by bloodwork.  But, my rheumy tells me that I'm right on that fine line between a yes or no.  Actually, I think he realizes how neurotic I can be and doesn't want me to worry over having another problem.  When it comes to my health, I'm a very black & white, yes or no, type of person.  Funny how I am all different shades in between with the rest of my life.  But, I digress.  Until I hear that I have lupus (or don't have lupus), I just say that I'm in lupus limbo. rolleyes

Posted 9/25/2008 4:35 PM (GMT 0)
My husband was dignosed with Lupus many years ago, the Fibro is new, but he does have both.
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