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I have been newly diagnosed with fibromyalgia

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Fibromyalgia
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Posted 10/8/2008 9:48 PM (GMT 0)
Just tryingto find out some info about it...
Posted 10/8/2008 10:16 PM (GMT 0)
Hi Cori and welcome to our fibro-family! You've come to the right place. The Fibro 101 and Resources thread is a great place to start and there are many, many wonderful people here who are always willing to listen, share, comfort and console you. There are tons of info on the net and quite a few doctor's offices now carry info on it as well. Ask any and all questions and someone will definitely answer!

Again, Hi and welcome!

Gentlest of hugs,
John
Posted 10/8/2008 11:16 PM (GMT 0)
Hey Cori. Hi. Why don't you tell us a little bit about how you got your Diagnosis. The journey you've been on, to get here.

Posted 10/9/2008 11:22 AM (GMT 0)

Well it started about 2 years ago, I noticed my joints getting sore. I went to the doctor and they said arthritis.. Then i started getting intestinal problems that were debilitating. I ignored them thinking it would go away. Went to my doctor and they said crohns, but something told me it wasnt.. THen about a year ago, my back, neck, shoulders, and hips got so sore and tense.. it felt like fire all over.. It just got to be to much, when I couldnt move hardly at all, cause i was so stiff, and the intense pain was horrible...

Yesterday I decided to go se my doctor, after evey test i took came back normal.. He did a number of testing on me (pressure in diffrent spots)and diagnosed me with fibromyalgia.. I did reasearch, and sure enough, everything I had had over 3 years was right in front of my face..

After alot of diffrent things people told me i have, im just glad its finally out and can be manged..It does scare me, cause im only 31, but i have had cancer in the past, so if i can beat cancer, then im good to go with this, given its managable.. I know it wont go away, but its ok, i understand it now.... I have to have physical therepy once a week, and im on lyrica now....

Thanks, Corrie(thanks for reaching out to my post, i will def post more)

Posted 10/9/2008 11:24 AM (GMT 0)
I need some tips on how to manage, and any info you can give me..
Posted 10/9/2008 12:00 PM (GMT 0)
Hi Cori

 

Welcome to the forum...you will not find a nicer bunch of people.  Read all the posts in the Fibro101 thread.  They have helped me tremedously. smilewinkgrin

I am newly diagnosed as well and I am still learning ways to cope.  The biggest for me is to rest when I need to.  I also use heating pads on my neck...that helps.  I have found that the Lyrica has helped a whole lot.  Up til 2-3 days ago anyways.  I think I am in a flare and nothing is helping right now. confused

 

I have also started to do some little stretching exercises.  That seems to help some with the stiffness.  I am also working on getting me a treadmill.  One of the side effects for the Lyrica is weight gain and I don't want to take any chances cool

 

Hope this helps.  Ask as many questions as you can...everyone here is really nice and good about trying to answer all the questions they can.

 

Take Care

~Missy~

Posted 10/9/2008 12:17 PM (GMT 0)

What?!?!?!?!?!?!

Weight Gain... Is there another med out there? I am already 10lbs over what i should be, and i dont want to gain anymore!

Posted 10/9/2008 12:40 PM (GMT 0)
Hi Cori,

Welcome to the fibro forum. One thing you need to do is keep moving around. The less that you move, the stiffer that you get. Not everybody gains weight on Lyrica. But some do. If you keep exercising, that will help with both the stiffness and any weight gain that you might encounter.

Also moist heat helps. I have what is called a bed buddy. It is a long tube filled with grain, I think rice, and you heat it in the microwave and you can put it around your neck or where ever else that is achey or tense and it really helps.

As you post and read, you will find all kinds of different methods of helping with the fibromyalgia. Not everybody uses the same things, because we are all different. With a common goal, to stay out of pain and to fight the fatigue.

Best wishes to you,

Hugs, Karen
Posted 10/9/2008 3:44 PM (GMT 0)
Hi, Cori, and welcome to the fibromyalgia forum!  I see that you have been told to check out the Fibro 101 thread.  You will find a ton of info there.  Also, past posts are loaded with good information and suggestions on how to cope with fibro.

 

I use moist heat and light massages to help me.  I also am one that takes the malic acid/magnesium supplements.  They have helped me a lot with my pain and fatigue.  There is a link all about them in the Fibro 101 thread along with links that explain how it works in the body and also a double blind study about them.  They don't work for everyone but many members have had good success with them.  Also, where I get mine, they are pretty inexpensive. 

 

Meanwhile, read, read, read and be sure to ask questions.  You'll get great answers on this site.  I'm so glad you have joined in and I hope to hear more from you soon!

 

Sherrine

Posted 10/9/2008 3:52 PM (GMT 0)
Hi Cori! Learning all you can about Fibro will definitely help you. Lyrica does not work for everyone (I have tried it 3 times with no success) - but if it works for you that is awesome! One thing you will find in support communities such as this one, is that what may work for one person, may not work for another. People have differing side effects as well. Don't let that get to you. It's all about trial and error, but with each other to lean on we can get through this and maintain the best quality of life possible!

I am your age - 32 actually - so I totally can empathize with having to deal with something like this at such a young age. Just don't give up and remember that you are your own best advocate in this fight!

God bless,
~Grace
Posted 10/9/2008 4:06 PM (GMT 0)
Hi Cori! I was diagnosed in July and put on Cybalta and a no yeast/100 carb a day diet. I also started walking down the block at first and now am up to 3 1/2 miles per day. I also find that yoga has helped. The weather can really affect me. I ache much more if it is rainy or cold. I too use heating pads alot! It does help if you can keep yourself on a eating a sleeping schedule. I was not able to get off the couch and was living on pain meds at the beginning and it took 7 years and many surgeries before I finally came in contact with a doctor who put it all together. Yeast build up is a BIG problem with alot of Fibro patients, so you might want to ask your doctor about going on a diet for it. I was tested and they found I had candida overgrowth. I am lucky that I was put into the right hands of a leader physician in the field of Fibro. I am sure we can all relate to the fact that there are alot of docs who just aren't educated in this field. Hang in there and educated yourself and those around you. Listen to your body. It will get better. It will never go away, but you will find what works for you. I have also lost 40 pounds that was needed for blood pressure and I am no longer taking those meds and have gotte4n myself healthier so I try hard to find the positive. Good luck, Sheri
Posted 10/9/2008 5:17 PM (GMT 0)
Its just new too me.. actaully i was just out walking and had to stop cause it hurt in my hips, so i came home.. I have an 11yr old and its so hard when they wanna go out and play with you, and you cant! Its always .. "no baby, i dont feel well", or "not right now, lets see if I feel better".. It is really starting to take a toll on my relationship with my husband and daughter....

I have hope it will get better, and with you wonderful people, i know i can get through this..
Posted 10/25/2008 4:32 PM (GMT 0)

well they put me on lyrica, and it didnt help at all.. they even tried celbrx, and nothing..

right now im on percocet, and thank god it works.. though i dont take it all the time, i have found that the heat wrap for hands works well.. you know like thermacare heat wraps, they make them for hands, and liek i said they work well.. i have altered my diet, and started yoga.. IT HELPS, BUT ON DAYS like today(rainy) it kills me...

Posted 10/25/2008 5:06 PM (GMT 0)
We had a couple of rainy days and sometimes when there is a weather change nothing helps that much and we have to ride it out with our moist heat and whatever we have found that works for us. For me when it gets really bad the TENS unit is the only thing that works to at least lower the pain level. Some may have pain free days but I haven't had a pain free day. I have good days where the pain fades into the background and I don't notice it that much.

 

luv and hugs

Marlee

Posted 10/25/2008 6:10 PM (GMT 0)
Hi Cori. . . I'm new myself, and have found a great bunch of people on here. . . It is a blessing ;)
Sam
Posted 10/25/2008 10:14 PM (GMT 0)
yes it is a blessing. I actually found another new friend on myspace, who saw my profile and messeged me saying she has it as well.. she has been such a help.. you guys are the best...

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