HealingWell
Search Close Search
☰

New Here, Glad to Meet All of You!

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/1/2008 2:45 AM (GMT 0)
Hello!  My name is chosen because I am a cross stitching nut, and just love stars!

 

I am a 39yo mom of 3, married to my bff.  My kids are 16, 13 and 8, soon to be 17, 13 and 9 (by Christmas!)

 

I started having fibromyalgia problems with I was 15.  It was right after I had chicken pox the second time.  I also have migraines (since very young childhood), psoriatic arthritis, and my body rejects vitamin D (severe deficiency that is treatment resistant so far).

 

I am thrilled to find a fibromyalgia forum that seems quite active.

 

Currently I am having a lot of pain most every day, and intense muscle spasms.  If I do something "normal" like make dinner, then I hurt like crazy for 4-??? days after.  My kids and hubby are very patient with me, always understanding, but I feel bad.  It is putting more pressure on them that it should, esp the kids.  My oldest doesn't live with us for very complex reasons, but my 13yo dd is determeined to pick up a lot of the "slack".  I hate that we need her to.

 

I would like to hear about each of you!

Posted 11/1/2008 4:20 PM (GMT 0)
Hi stitching star and welcome. I'm glad you found us too. This forum is so active cause it is so great. turn Read the fibro 101 thread, second on first page, it contains a lot of great info.

 

There is a line between making children responsible and expecting too much out of them. My sons were grown before I got fibro but I have had grandchildren live with me off and on since. My granddaughter loved to clean but then she grew up and got a job and is going to college.

 

We have to keep moving and stretching. Standing in one place for very long gets to my back so I don't do it.

 

Moist heat of any kind is helpful to most of us heating pad, rice bags, hot showers or baths.

 

You will learn a lot on here so read as much as you can and ask questions and we will be here for you.

 

luv and hugs

Marlee

Posted 11/1/2008 4:31 PM (GMT 0)

Welcome, Stitching Star!  I'm glad you joined us.  Yes, our forum is extremely active because there is a great group of people here with good ideas to help people.  AND, as a bonus, we REALLY do care about one another!  So, you are now one of the latest additions to our family.

As Marlee said, check out the Fibro 101 thread.  There is a ton of info in it to get you started.  Also reading back posts is good because there is a world of info in them, too.  You can always ask questions because that's what we are here for.

Again, welcome!  I hope to hear more from you soon!

Sherrine

Posted 11/1/2008 5:21 PM (GMT 0)
Thank you all.  I will read the Fibro 101 page.  I have been dealing with this for over 25 years now, and am rather tired of it.  LOL!!! 

 

It really is a fine line between having the kids contribute and  be responsible and having/expecting them to do too much. 

 

We had a LOT of problems with our oldest, he has an autistic spectrum disorder.  We had to have him move out b/c he was physically abusive to my dau and myself.  But he has been living wtih my parents for a couple of years and is doing WONDERFULLY.  We have repaired our relationships with him, had the kids (and the parents) in therapy for this, and things are pretty great on that front.  I have some physical problems that relate to the violence with him (it is really HARD to restrain a violent child when you have fibro), but 100% are NOT his fault.  they are b/c his disorder, not b/c him.  This summer he and I went to a very early am booksale that was about an hour away.  He later told me it was the best day of his whole summer b/c he and I got to go do somehting. 

 

THAT really motivates me to do things.

 

I look forward to getting to know all of you and your families.

Posted 11/1/2008 7:09 PM (GMT 0)
Hi Stitching Star,

It is great to have you join us. As was mentioned above this is a wonderful forum and everybody does care about eachother. I think that you will be so happy that you joined us.

There is so much acumlative knowledge here for you to take in. And we try to have a little fun once and a while too. Laughter is really the best medicine and you will have your share reading some of the posts.

I hope that you have a wonderful day. It is beautiful here where I am, I just got out and walked the dogs. It was wonderful for all of us.

Take care, Keep posting

Hugs, Karen
Posted 11/1/2008 11:21 PM (GMT 0)

Welcome Stitching Star!

I'm sure I speak for everyone when I say we are glad to have you here  wink .  This is a great group and you will find everyone so helpful and understanding. 

Like you, I have a lot of guilt over needing my children more than I wish.  My girls are 10, 13, and 15, they are old enough to help out but I still have the guilt.  My youngest is really sensitive to others needs and I strongly believe that someday she will work as a therapist.  So even though we ask more of our children than we want, I think that in the long run it will work out. 

Meggie

Posted 11/2/2008 11:01 AM (GMT 0)

Hi Stiching Star and welcome!  This is a great place with lots of caring people and great information.

I also have a teenage daughter, and I too feel guilty sometimes that she has to help out more than her friends do.  But, on the flip side, I think living with someone with chronic illnesses has taught her many valuable "life lessons".

She is the most considerate, mature, compassionate teen I know.  She is gentle and kind to the elderly and children (I'm making her sound like Mother Teresa).  But she is a great kid, and I think some of it comes from learning at an early age that she isn't the center of the universe and that we all have to help each other out and contribute to the family. Plus, when she moves out, she will already know how to clean a bathroom, do laundry, and cook!  yeah

But to put things in perspective, she does spend most of her free time on the phone, on the computer, or running around with her friends!  smilewinkgrin

Hugs - Austen

Posted 11/2/2008 3:20 PM (GMT 0)

Welcome Stitching Star.  What a great screen name.  I used to love to stitch too, until my hands got so bad that I had to give it up.  Lots and lots of great people here with lots of great advice.  It's always nice to have a new member, the more the merrier.

Feel free to vent, give advice or ask questions.  We may not always have all the answers, but it's always good to know that someone else knows what you are going thru.

Posted 11/2/2008 4:18 PM (GMT 0)

Hi stitching star and Welcome!

I just got fibro 6 months ago and was hit very hard. My youngest son is 17 and has been a tremendous help. He does not volunteer to do anything but when asked he is a trooper with no matter what it is. And at first it was ALOT! I have not heard one complaint out of his mouth these past months. I think they do love us and care. He is also learning about running a household which will be good for when he gets on his own. I am going to teach him how to do laundry now- so there might be some white loads that turn pink and a few wrecked articles of clothing but they have to start somewhere!  :-)

I also have a 32 year old son, married to his college sweetheart and am now blessed with 2 beautiful granddaughters. They are such a joy!

It sounds like you have a wonderful family and that you have worked "hard" to get where you are today. (My 17 yr old has Attention Deficit and we have had constant challenges to face). What he has gone through and continues to go through has taught me so much on disabilities among people.

It was so nice to meet you and these are the best people you will ever want to meet! They care!!! We laugh, we cry, we have good days, we have bad days and everything in between. Hope this bad pain your having starts to ease up for you. GamJill

   

   

✚ New Topic ✚ Reply