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Posted 1/18/2009 5:15 AM (GMT 0)
I was just wondering if anyone else has felt like this?? It's like I know how I feel all the time and I know that nothing is helping right no - all of the rational parts of me say - "duh... there is a real problem, accept it and deal with it" but the other parts say, "nah, just walk it off, there's no way that this can be a real problem"  I feel almost embarassed saying that I have all these problems out loud.  I had the same problem with being in denial about depression too... I just couldn't admit it to anyone even though it was quite apparant.  I guess myabe it's because my parents are pretty "hippie-ish" and everything had a home remedy or it wasn't really a problem... I don't know... has anyone else felt like this 
Posted 1/18/2009 6:08 AM (GMT 0)
Oh,

FOlks who know home remedies are the hardest for me to work with. It would not be so bad if there was some consistency but there isn't. I have a friend who believes apple cider vinegar cures everything. It helps me with heartburn but that is about it.

We walk things off naturally when we can. However, if I were to try to walk fibro and chronic fatigue off, I would end up on the floor.

What I try not to do is act as if I have no medical challenges. However, publicly admitting and accepting fibro can have repercussions. It causes some people to think I have just given up, not tried hard enough or am ignorant about my medical needs. Oh well,

We must do what we need to do to feel comfortable each day. I say the heck with the others.

Such is life. Donnaeil
Posted 1/18/2009 6:18 AM (GMT 0)

Hi,

I don't know if this is the same thing you are talking about, but I still hate to admit when others ask what is wrong with me. I feel like maybe they will think what alot of others feel, that it is all in my head and Fibro is a last resort for doctors. I don't know why I worry because I know it isn't true and I shouldn't care, but sometimes I just can't help but feel that way.

I think my dh still thinks alot of the pain is in my head. He really hasn't said much about it. Sometimes he helps me out quite a bit and other times he'll be in a bad mood and act like...why haven't you done anything today? Oh well, one of these days it might get thru to him. Right now the only thing I worry about is getting me back to being half-way normal.

Hugs!!   Margie

Posted 1/18/2009 8:46 AM (GMT 0)
Well ... reduce someon'e health, mobility, sense of well-being, expectations of how life would be, future plans, and maybe the ability to work, and it's a bit much to accept all at once.  And so we don't.  Denial is just one of the stages we have to go through to come to acceptance of our conditions.

Hippy style parents might not react well to seeing a therapist.  But it's a huge help.  Or is there someone you can talk to about this?  Maybe a social worker?  There are support groups too that meet regularly.  Talking about this stuff with someone you're comfortable with and trust will make you feel better and help with the process.

But if you want a good laugh .... 10 days ago, I had my first major Herx reaction to the Lyme Disease treatment.  That's where the bacteria die off and release toxins.  It makes your worst symptoms even worse.  So my short term memory was trashed, I couldn't follow a conversation, and was confused. In the middle of that I was like, "OK, so how am I getting back to work soon."  disconnect ... disconnect .... disconnect  shocked   I've got a long way to go on this one.

 

Posted 1/18/2009 12:59 PM (GMT 0)

Hi there Beleiver.. Welcome!

I'm a newly dx'd fibro patient, even though I know I've been a victim of this syndrome most of my adult life.  Ahh denial, yes, I'm still there.  I tried walking it off (thought I was doing a great job of it,too) Until one day last Nov. when I wound up in the hospital, having a major meltdown, chest pain (thought I was having a heart attack), barely able to make it through the day for a few months. I gave up my high profile job, because I couldn't keep working in an high stress position that required me to work about 60-70 hours a week. I finally gave in a got diagnosed, last week.   Anyway I fought this thing until I couldn't fight it anymore.  Now I have to accept it and figure out what I can and should do now.  The hardest thing is accepting that this is the way it will be for the rest of my life.

I agree with Rich, part of acceptance is denial.  I have been in denial for at least 10 years.

Maybe you should do a little research on the subject and show your finding to your folks. Let them know this isn't something that can be cured, whether its via herbs or regular meds.  We're all different with this illness and researchers are trying to find the right meds to help us.

Hope that helped a little, we're here for you whenever you need us.

Wishing you a painfree day!

Posted 1/18/2009 2:44 PM (GMT 0)
Thanks for all of your responses... I think that coming to the realization that it's gotten so bad that I can't really hide this from myself or anyone else anymore has really hit me like a ton of bricks... after I posted thismorning, I kind of broke down to my husband and told him how bad things really have been with me lately... granted, he's not a moron and he did notice the change in me physically and emotionally but he didn't really understand the extent of it, I can't fault him for that though, it's my fault for not being honest with him or myself for that matter...
So, he is going to go to the DR with me for my next appointment and tell him what he's been seeing happen and the rapid deteriation of my health and emotional well being since I haven't been able to fully bring myself to admit to all of the problems when I go - my mind goes blank and I can't even thnk of what teh problems are once I try to get it out. Maybe him going with me will help the DR get a better perspective of things... I guess what they say is right, Ignorance is bliss huh?
So, thanks for listening (well, reading, but you get the point)!
I hope you are all feeling good today!
Posted 1/18/2009 5:01 PM (GMT 0)
Hi, Denial, and welcome!  You will find some great info on the Fibro 101 thread...the second thread on the forum.  There are links there to articles that help explain this illness to others.  But, they still usually don't understand.

 

With fibro, you actually go through a type of grieving for all the things you can't do.  But, there is so much you can do and that's what you need to focus on.  You can have a good life with fibro.  I know because I have!  I can find ways to work around the fibro to do the things I want to do.  We may have memory problems but most everyone on this forum has a good head on their shoulders and come up with great ideas.  If you ever need some help, just ask and I'm sure someone will have an idea to help you.

 

I'm so glad you found us, though.  I hope to hear more from you soon!

 

Sherrine

Posted 1/18/2009 7:47 PM (GMT 0)

Yes, I agree with Rich that denial is just part of our process... there is so much to take in all at once and of course we will be in denial for quite some time (some longer than others - everyone is different!) and as Sherrine has said, we are just grieving. Perfectly natural.

Things will get better for you. And do check out the Fibro 101 thread as the moderator suggested, if you haven't already. TAKE CARE!!

_________________________________________________

21 years old

Fibromyalgia, Bipolar Disorder, OCD, Irrational fears

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