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Posted 1/24/2009 12:40 PM (GMT 0)
I had enough sleep. I don't think it was the right level of sleep. Rarely do I get that. But regardless of anything I can do, or not do, I wake up feeling like that telephone truck hit me. It was in 2002, seven years ago, muscles feel very tender but sore, like I fought all night, physically, and actually from the look of my bed, maybe I did. Thank goodness I don't have a partner, they'd have me up on assault charges. But mornings are almost impossible. Back muscles are on fire, arms ache like I threw darts all night, feet don't feel anything at all, wish I was all feet. Gotta go find a pain pill and a bed buddy, not the kinda buddy that's charging me with assault, the kinda Buddy you put in microwave. Anyone else get this? Anyway to curb it? I had Fibro prior to the accident and was working two jobs, raising two boys as single mom, using only 25mgs. of Elavil at bedtime and OTC Tylenol during the day. Besides being  15 years older (and, might I add, sleeping /living under a tree in a camping park for one rainey summer three years ago), I now feel so bad It can't be put into words. Everybody like this in morning? mad
Posted 1/24/2009 12:54 PM (GMT 0)

When I get up in the morning, I feel like someone has pulled all my muscles away from the bone with a vise grip.  I burn, ache, sting and throb.  It takes me over an hour to walk without hobbling.  Even the pads of my fingers ache.  My feet and thighs tingle.

Somedays are worse than others.  Don't have an answer...wish I did.  But you aren't alone!

Huggies

donna

Posted 1/24/2009 2:50 PM (GMT 0)
Dearest Vestabula: It makes me feel better, that I am not alone. I etch every painfree moment firmly in my memory just to keep going.and only come up with a couple of pain free days (without having to take medicine, or even with just a little medicine, not 7 or 8 different pills). I had a breeze of freedom blow through from a trial dose of methadone for three months, two years ago, and I found, I was painfree. Just walking down the beach in Florida, barefoot, warm sand underfoot, and said out loud "Oh my goodness, I don't have any pain in my body. Eureka!" However, when I went back to the doc on month 3 and said it was marvelous to have a time, painfree, but we have to go back to a milder medicine. He shook his head and said, "well, if it is working, why change it?" Because all I wanted to do was sit or walk on the beach, nothing else. Nothing else mattered. You see, I would have to give up my freedom. Medicine worked wonders but, I was useless. I'm not quite ready to be useless just yet. I have a few loose ends to deal with. Thank-you for being there. I officially declare this Toad Day, in honor of all Fibromites who had plans for today (as did I), and woke up and discovered they could barely move. Now I'm waiting for a miracle. I must be doing something right, because my fortune (not money, the important ah ha stuff), is becoming more frequent. You know, those light bulb moments. To all those Fibromites suffering from "toadism" find rolleyes an activity in a warm place wrapped in a blanket. Today's plans weren't that important anyway (I hope).

Posted 1/25/2009 3:06 PM (GMT 0)
Tyno, I as well have a lot of trouble in the morning.. for instance, I just woke up about an hour and a half ago (been sleeping normally at least lately - thank god!!) and I am still stiff and achy. I think today is actually not going to be a good day, I can feel it already. My neck is very stiff and tight-feeling, my left knee (which seems to give me much more trouble than the right) is aching and throbbing/pounding, toes feel the same as the knee, and everytime I move my ankle cracks, which sends a shooting pain to my knees.. back feels like someone was smacking something heavy against it.. terrible headache, eyes even hurt bad whenever I blink.. entire body feels stiff as a piece of wood.. I'm just relaxing myself, listening to soft music, waiting for the hubby to wake up so I can see him before he leaves (he's going away for the day).. I hope you are doing better this morning, let me know how you are if you see this!

Take care, have a pain-free day!

-Jenna :-)

_____________________________________________

21 years old

Fibromyalgia, Bipolar, OCD, Dependent Personality Disorder

"You can't be brave if you've only had wonderful things happen to you." -Mary Tyler Moore

Posted 1/25/2009 4:02 PM (GMT 0)

I can hardly roll out of bed in the mornings. My whole body is stiff & sore and my feet throb and are still swollen.I usually hobble out to take my meds first thing. It usually takes approx. an hour before everything calms down so I can at east get up and move around.

I was diagnosed with severe sleep apnea approx. 6 months ago and my Rheumy thought that when I started using my cpap, it would take care of the fatigue, but it didn't.

I already feel like going back to bed, but my granddaghter is visiting so can't do that today. My biggest problem right now is fatigue, no energy, & feet swelling/hurting. Oh well, sometimes I feel better once I make myself get up and do something, so I better get my butt moving!

Hugs!!  Margie 

 

Posted 1/25/2009 4:39 PM (GMT 0)
Mornings are brutial. Yesterday was the first morning I woke up feeling somewhat "normal", in well.. I can't remember when. By dinner time I was feeling pretty horrible. Morning stiffness and pain have become my "normal" and I don't like it at all. I wish there was something positive I could tell you, but sadly I can not.
Warm hugs,
Posted 1/25/2009 11:44 PM (GMT 0)
Hey folks. I'm in better shape today than since my last post (day before yesterday.) here's what I did. 1) I put a piece of plywood between mattress and box spring, although bed was comfy, it kinda wrapped around me, so needed support. 2) When I woke up in the middle of the night, for BR run, instead of reading or going on computer or turning TV on, I basically went right back to bed, no passing go, no $200. Just straight back to sleep. Takes a little discipline. 3) Did not consume carbs directly before falling asleep. I had been eating a chocolate bar or bag of chips (junk) for night lunch. Hopefully, as the results were less discomfort upon awakening, if I keep at my new "sleep hygiene", routine, I'll sleep better and hopefully wake better. Another thing I've figured out. A formula for a fifty something woman, with Exacerbated Fibro symptoms, I am good for exactly 3 hours after I wake and get moving around. Then I have to lie down/rest. Then after an hour or three, I awaken or just get up and have 3 more hours of activity before bedtime. The only thing is, how will the rest of the world adapt to my limited schedule. I've concluded, this is as good as it's going to get with me. Cést la vie.

Posted 1/26/2009 7:11 AM (GMT 0)
tyno, You are so right about living a limited life & having no control over it.  I wake up, anywhere from 11:00a.m. to 2:00p.m., take my pills & wait 1-1/2 to 2 hours & hope I feel good.  Spend the time between that & dinner time at 5:00-6:00p.m. pacing myself & doing housework.  After dinner do dishes, put my pj's on again, read, get on the computer & go to bed at 12:00 - 2:00a.m.  Short but sweet. I have been trying to find a job but can't seem to fit it in.  LOL  I hope you are doing ok.  I'm happy you figured out your problem with your bed.  Have a good nights sleep.  Hugs, Denise

Posted 1/26/2009 12:26 PM (GMT 0)

Dear Denise. Where are you going to find a job from 3PM to 6PM and survive. I am on Provincial Assistance which allows me my rent, and $200 a month to live on. I need a job from 10AM-2PM. Unless we can find a work from home deal which is very hard because of all the "Work from home and earn 893.00 a week" scams out there, just send us 129.00 prepaid. Then nothing. And more nothing.The we call the Better Business Bureau, and they say, where have you been, we've been warning people for years about these scams. Well, I've been laying in bed wrapped in an electric blanket, trying to stay alive. My  PDoc has suggested I apply for Federal Disability which is more money with fewer restrictions (you don't have to prove yourself every month, via the rent receipt,) however, there is no assistance for medicine and I have eight. Probably eat up half my cheque, then I'll be right back where I am now. boy, it's hard enough dealing with this DD w/o always worrying about how to feed yourself.

Anyway, I digress. This morning is a little better. I ate about 15 cherries (man do I love cherries) and a glass of warm milk and went to bed at 9:00 PM and almost slept through. I woke once to check to see if my son was still up around 3 PM as the TV was quite loud, yup, he was kinda up, he'd fallen asleep watching TV. So I gently nudged him off to his own bed cause the dogs sleep on the sofa and they would not settle untill he left. Off with the tv. So, ok, I made 1 piece of raisin toast, ate it and straght back to bed. Within 15 minutes (1 muscle relaxer later) I was asleep till just now, 7:3o and not so bad this morning. Not ready for the olympics though. My meds will kick in w/i forty minutes and then I'll take the dogs out. But, we are smack in the middle of a deep freeze, so when I go out I wear two pairs of socks, a set of long johns, jeans, teo sweaters, coat, hat, gloves, scarf. There should be a catagory in the olympics for "getting ready to step outside in Canadian Winters". I'd win by a landslide. Why am I here? Four years ago I could walk across the street in my pj's and bare feet any time of year, and have coffee beside the Gulf of Mexico.  

Posted 1/26/2009 3:11 PM (GMT 0)
oh, i definitely understand mornings...they are the worst time of day for me. in fact, i had to switch to all online classes because last semester, i had a class at 9:00 am tuesdays and thursdays which meant i had to be up, dressed, and ready to go by 8:00 to drop off my kids then get to college. it was awful! i wake up SO STIFF and sore and drained:( now my days are pretty much like this:

6:15-get up, use bathroom, sit in my comfy chair for a minute and try and adjust to actually having to be awake. ugh.
6:30 am-get kids up, fed, dressed, lunches made and packed, boots on, coats on, etc. during this time, hubby's usually getting himself cleaned up/dressed/coffeed for his day. i let him take his time while i get the kids ready because he has a way better day when he can have that quiet time to himself first thing in the morning.
7:30 am-hubby takes kids off to school. at this point, i get in the bath and soak for a good half hour or so
8:30am-walk on treadmill for 30 minutes
9:00 am-choke down a small breakfast (i have completely lost my taste for food in the morning-has this happened to anyone else??)
9:15-10:00-do some postings to my online class. check email. come here and read and post.
10:00-11:00-by this point i know i need to sit for a bit so i don't overextend, so i'll usually sit on the couch or lay in bed and watch frasier on lifetime. i usually fall asleep during this part of the day but only for 20 minutes or so.
11:15-go pick up son at preschool
11:30-1:30/2:00-work on picking up house, laundry, dishes, etc and homework if i need to. i'll also usually grab a quick lunch here, too.
2:00-ish-usually needing another break at this point and so at this point i sit down with my son on the couch and we watch spongebob together
3:15-other son and daughter arrive home from school. hubby gets home from college around this time on tuesdays and thursdays, too. so at this point i get up, make snacks, check on papers sent home from school, pick up any messes my 4 year old has made.
4:30-5:30-usually need another break here, so i'll either get online and do some mindless surfing or just sit at the kitchen table and chat with hubby
5:30-7:30-this is my major "crunch" time. hubby always helps out here, but still there's so much to do that sometimes it feels like two people aren't enough! during this time we do dinner, dishes, kids in pj's, dishes, feed dogs, kid messes cleaned up, etc.
7:30-8:00-here we help the little ones brush their teeth, then we have story time, then they are off to bed. they are usually out by 8:00, but sometimes not until 8:30
8:30-10:00-quiet time! this is when i watch tv or get online or talk with hubby or daughter. also by this point, i am physically exausted, but mentally very awake..this drives me crazy! i want to go to sleep SO BAD, but my mind won't shut up. so i usually read until 11:00 or so. i KNOW 7 hours is not enough sleep, but just can't seem to get any more than that...

anyway-i have no idea why i just laid out my entire day for you, lol. i just got going and didn't stop..sorry!

i get the morning stiffness, though. oh man. i wish my mornings could be a little slower, but i just can't seem to get myself out of bed any earlier than 6:15!
Posted 1/27/2009 2:12 PM (GMT 0)
Sleepybug: Do not worry about what you write on this forum (except abide by the rule,lol. I used to be right where you are now but had no hubby, and had two boys, one ADHD, the other ADD. The latter just moved back in with me about a month ago, b/c trying to function with Adult ADD has made his life a complete mess. He cannot get to sleep before 3AM and cannot get up before 1PM and it's not his fault. Except, since he's come I've had to re-adjust my life around his. That's OK cause I love him and would walk to the moon to help him. This morning was unique. My son has a great computer, it was mine but I gave it to im two years ago. He was trying to get on our ethernet (Wireless) and somehow took out my internet settings as well as didn't accomplish getting his in. So, sore, stiff, slightly frustrated and extremely determined, I sat here from 7:00 AM until now, in agony trying to get my internet back. As you see, it's back. he puts a lot of what I consider to be "risky"website downloads on his computer, and even some on mine. I am going to, with equal determination, get his set up so I can take his junk off mine and he can do as he pleases with his. Yup, mornings. That having no appetite in the mornings, is not isolated to you. I cannot stand food smells (especially frying meat, anytime of the day. As far as breakfast, I force myself to eat three tablespoons of Activia yogurt, as some of my meds say "must take with food". Otherwise I am not interested in anything untill 1 PM or so, and then it's toast. now the coffee. That's a whole other ball of wax. 3 Large cups, everyday, to start my engine. I think you are doing an amazing job. If I get the animals fed, It's triumphant!

Posted 1/27/2009 3:15 PM (GMT 0)
Sleepy bug....I can't eat in the morning,it just sickens me to think about it.I'm suppose to because of the diabetes,but yuck.If I can choke down a yogurt,I'm lucky.And mornings?ha!I don't even get my act together until early afternoon,if it is a good day.*sigh*

Posted 1/27/2009 3:48 PM (GMT 0)
Mornings are my worse time. It takes me about a half hour to be able to function.
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