Please welcome Baloo!

I know EXACTLY what this person is going through!  I am experiencing the same thing with my 15 y.o. son.  I am so frustrated and upset right now that I can't even find the words.  On top of knowing how much pain he is in, I am dealing with the guilt that I am in so much pain and having so many physical problems myself that I don't feel like I am giving 100% to advocating for him.  I am trying my best to fight for him but I am so exhausted... sometimes I feel like the worst mom in the world because I don't have the fight in me and sometimes I feel like a mother tiger, willing to rip anyone apart who gets in the way of me helping my baby.  But I often wonder if... 1) he feels his pain is taking a back seat to mine, and 2) he would get better medical attention if I didn't have something that none of the doctors around here take seriously.  I am so confused!!!!   They would be so much better off with a different mom.  That is the only thing I'm sure of right now.

Welcome Baloo and Fireandice!!! You've come to a great place to get support and share your feelings.
First, please don't be too hard on yourself, I'm sure you're an awesome parent, if you weren't you wouldn't be feeling what your feeling right now and you wouldn't have listened to your kids and be working so hard to help them. Second, having Fibro make everything a little more challenging. So, be kind to youself and your kids, go slow and try to get some rest for both of your sakes.
Its heartbreaking to watch your child suffer and knowing what's about to be in their future, if they have Fibro, only makes it worse. But as Baloo said.. you can "walk together" and support each other.
My sister and I both have Fibro and we support each other and learn from each other .. we have a built in support group. I'm glad someone that close to me understands my pain and fog, but I wish she didn't have to go through it.
Warm welcoming hugs,

Hi Baloo/fireandice and Welcome-

Sounds like both of you are "great" moms- and are doing the best you can under the circumstances. I know how hard it is to watch your child go through physical or mental/emotional pain. My 17 yr. old ended up with anxiety over the winter and we would have numerous, numerous talks in the eve. as that is when it got worse for him. He was having all these impending doom thoughts, would be shaking and as white as a ghost. He also could not get to sleep at night and it started to affect his work at school because he was so tired. I let some time pass to see if it got better or worse and it got worse.

Into the Dr. we went and she started him on Zoloft and it has been like night and day. The anxiety symptoms are gone now and we even suggested he see a counselor but he says he doesn't even think those thoughts anymore. 

Baloo- You know what is best for your daughter so keep hanging in there with her no matter what kind of response she gives you. Love those teenagers!

fireandice- I hope you can find a Dr. that is knowledgable and believes in fibro because it makes a world of difference.

Nice to meet both of you!

GamJill

Hello Baloo & Fireandice, I may have already welcomed you both but I just want to make sure so welcome.  This is a great place to come for the advice you are seeking.  As you can see by all the good advice you have received.  Please come back often.  Learn about this DD and come to terms with it.  Pacing yourselves is key to how you will feel not only today but also tomorrow.  I agree with Patti, you must be good mothers because you wouldn't care otherwise.  So, good for you.  Quality time doesn't have to be hard & your house doesn't have to be clean & company ready.  Sit down & talk or play a board game or watch a movie together with a bowl of popcorn.  Read a book together, cook dinner together when you both have the energy.  Take life easy & simplify it.  Just be there for them & they will remember all you have done for them when they grow up.  You will be very, very close.  Many hugs, Denise

Hi, thankyou for your encouragement. Well, the appt was the last of a string of findings, and today my daughter opened up to her physician and she admitted to being depressed. After she talked openly with her doctor We all realized she does need to go see someone and talk things out. They want to put her on antidepressant. To be truthful a well of tears came out when I heard all that was going on with her. She's been tested for thyroid, fibro and her heart. She needs my love and support and I will keep my head up, we both have our hope in God, and know this is an obstical we can get through. But for the moment between all of you my heart is breaking. Thanks everyone for your support.

Hi fireandice, Thankyou... The one thing i absolutely hate the most with fibro is the weakness. I can walk and cry through the pain, but when you can barely walk because you are so weak is tough. Even trying to sit up or lay in bed I still feel weak. When I get like that i just have to accept it and rest, but i do try to at least walk in my house and sit up even if its for 5 mins at a time. It will pass eventually, but man my hearts out to you. hugs back.. baloo..

Hello Baloo and fireandice.

Im a 15 year old daughter of a Firbro mom, and I can honestly say if it werent for the pain that she goes through everyday we probably wouldnt have as strong of a connection as we do. I look up to her, whether or not she realizes it, and she certainly worries for me all the time as well as being a good mom for me.

I look up to her for being so strong with her pain. I know the pain i go through isnt half as much as what she goes through. It gives me determination to get through the struggles im in. I have also realized, people who go through difficult times (lives) are more compassionate, beautiful, respectful people. Having one of those amazing figures in my life has shown me to be patient, compassionate, respectful, polite, not quick to judge, and to take care of people. My mom does all she can to get through the day trying not to grit her teeth in front of her family. I love her beyond words and I think i speak for all of your families when I say your our hero.

Your all examples whether or not you can get out of bed in the morning, or run a marthon. Really, stop worrying about being a terrible parent and focus on loving your painful life, and your stubborn families. Really, its okay :))

welcome and hello,
so sorry to hear of a child going through this at such a young age.and i cant beleive what some of this doctors say to us. what cause they spend alot of money going to school it gives them a right to speak to us ant=y way they want to. i think if anything we should be the ones to tell them what is going on or am i just all messed up in the head some dr have said yes to that but i say no i am just fine just feed up with what is said.
i would go to a different dr if i was you i refuse to go see anyone that is rude to me and says things to upset me, and you daughter. good luck and keep the posts coming

Hi Rochelle,

Thank you so much for your words of encouragement to us fibro moms.  You must have one special mom and she is so lucky to have you.  I am so sorry that you go through so much pain and weakness at a time in your life when all you should be thinking about is shopping and going to the mall.  You are a special, special person and will be blessed for your kind heart.

(((((((special hugs)))))))

Michelle