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Posted 3/15/2009 10:15 PM (GMT 0)
I haven't been on much lately. My hands and feet are throbbing, achy, and now burning and tingling. I've felt like I have absolutely no strength at all. My tongue is red and burning, along with the dumptruck-full of other symptoms I normally have. The past two-and-a-half weeks have been terrible.

I've taken my Rheumy's advice and have been going to the gym anyway because he told me that exercise is the key to shutting down fibro. Now I fear that I may have a stress fracture of the tibia.

I'm so frustrated.

I guess I just needed to complain for a bit.

Hope everyone is doing well. Thanks for listening.

Posted 3/16/2009 4:35 AM (GMT 0)
I'm sorry you are feeling so awful. I know exercise does help, but you have to take it slowly, especially if you are having a flare - which it sounds like you are. You can't exercise the way you did before the fibro. I hope you feel better soon. Take it easy and do some gentle stretching.
Hugs,
Sue
Posted 3/16/2009 6:57 AM (GMT 0)
I'm sorry you are having such a rough time of it.  I have been flaring because of the constant weather changes here.  Fortunately, it is stablizing & so am I.  LOL  Sue is right, you can't exercise at all like you did before.  Start off slowly & as your body adjusts & hopefully strenghtens, you will be able to do more.  You do sound like you are flaring & it just could be because of the intensity of your workouts, even if the workout is almost nothing compared to what you did before.  Only way to know is by letting up quite abit & see if you feel better.  Everything has to be measured & weighed with this illness, nothing is just done mindlessly without really thinking it through.  It is the part of this illness I hate the most.  No matter what I do I have to stop & figure out how I am feeling now, how much energy is it going to take to do whatever, do I really want to do it & what will I not do today, & am I be willing to pay the price, the flare if I have miscalculated.  Have you read the "Spoon Theory"?  It under the Fibro 101 thread.  If you haven't you might check it out & give a copy to your Rheumy while you are at it. 

I hope you feel better soon, hugs,  Denise

Posted 3/16/2009 12:55 PM (GMT 0)
Hi Flowergirl!

I agree 100% with Denise!!! And I especially like what she said about the "Spoon Theory" and your rheumy!! We can't just jump into a strainous exercise program, we need to do it slowly and gently. I think Yoga & walking are good form of exercises for fibromites. If you are going to a gym already try seeing if they have a yoga program and if they have a program for exercising w/arthritis. If they have a theorpy pool where you can do gentle water arobics that's a good form of exercise. I used to go to the Y and take water arobics for seniors.. even though I was about 45 at the time.

Hope you're feeling better soon!
Take care,
Posted 3/16/2009 1:04 PM (GMT 0)
Ugh.  I'm sorry you are having such a hard time.  I so understand about the exercise thing; it seems like as soon as I start, I get hurt or have a flare.

 

I'm trying to start back again, and my rheumy told my to start out really, really slowly (just 5 minutes at a time), and work up to a little more.  Also, instead of trying to make it to 30 minutes all at once, I'm going to try 10 minutes 3 times a day.  I guess we all just have to find what works (I'm still looking, lol).

 

Don't you just hate the tongue symptoms?  My mouth is so dry that my tongue is really sore off and on.  You wouldn't think that something so small as a tongue could cause so much misery!  devil

 

Hang in there - Austen

Posted 3/16/2009 1:29 PM (GMT 0)
I'm sorry your having such a hard time right now. I totally understand about the hands. These spring weather changes has been rough.

 

I've never heard that exercise is the key to shutting down fibro before. We do all need to keep moving and stretching but I know I can't push fibro too hard without it pushing back.

 

Good luck

 

luv and hugs

Marlee

Posted 3/22/2009 2:25 AM (GMT 0)
Sorry I haven't responded sooner to all your kind words. I've been so tired. Thank you all so much for the support.

I did read the spoon theory, and it makes a lot of sense. I tried to explain it to my friends, but I'm not sure they get it.
I'm just going to have to realize that I can't do as much as I used to. It's tough to take.

Thanks again, and I hope everyone is feeling well.

Hugs and kisses!
Posted 3/22/2009 4:45 AM (GMT 0)
Um, I usually exercise, daily. It has not shut down my fibro yet. I think doctors say that it does because they do not know what to do for us.

Donnaeil
Posted 3/22/2009 5:11 AM (GMT 0)
So Sorry to hear you are having such a bad time :( ...I visited a new doctor a few days ago, and he gave me some advice for my fibro. He said that whatever I feel like doing...cleaning the house, exercising, changing beds...etc., if I feel like I can do 100%...only do 40%! If not, you will pay for it the next day. It was so refreshing to hear someone say something like that! (I had another doctor that said I need to exercise everyday, and if I take walks...do it briskly!) This time, I thought, "yes!" someone really understands! Maybe you could try this...I definitely am going to! :)

God Bless,
DonniesGirl
Posted 3/22/2009 5:21 PM (GMT 0)
Dear Dirtyflowergirl,
Hope you are feeling much better by now. That thing you mentioned with your tongue.....red and being on fire. I Lupus and Sjogrens disease and mine gets that way often. It is like you have taken a big drink of coffee and just scorched the heck out of it. It gets cracks in it like a dry desert! What craziness we have to put up with. I'm with you about the exercise. I know that we should do it but each time I start I end up getting a joint injected with steroids. I could just slap the doctor's that think exercise cures all. I wish I was one of those people who enjoyed exercising everyday but it's a good thing that I don't because it would just be ont thing more that I had to give up.
Not feeling great today and I'm having a really hard time spelling things so please excuse any mistakes. I go to yet another rheumy tomorrow and if she can't help me in some way I WILL NOT drag my poor husband to yet another appt. I just changed antidepressants and I don't think that the Prozac has really taken effect good yet, can you tell? Anyway, hang in there. We're all pulling for youl
Nurse2
Posted 3/22/2009 11:03 PM (GMT 0)
My left hand is numb, tingling. and burning...it hurts.  Any idea how to stop the pain?
Posted 3/23/2009 1:44 AM (GMT 0)
Yes, she and he (I've seen two different rheumys) both stressed the importance of exercise. What they are failing to realize is that the whole reason I started seeing them in the first place was because I had strange sensations and pain that did not heal when exercising. I always have been good about getting exercise.

I do feel sometimes like I can do something 100%, but then I'm just OCD enough to do it 120%, knowing that I'll be shut down for a few days. It's hard to hold back when my OCD gets ahold of me.

The last time I saw the female rheumy, she got aggravated when I guess I asked too many questions. She told me that the skelaxin I was on should be helping with the hands, and when I said "Well, it's not," she got bent out of shape. She practically yelled at me and said "Well, I'm not going to give you any more drugs." I wasn't asking for any. Then she said "You've just got to exercise." That just angered me to no end because I was in her office mostly afraid that I had some sort of fracture from what..... .EXERCISE! She didn't xray or anything. She didn't examine my leg.

These doctors act like I'm a hypochondriac, but I'm only 32 and I've always been in good health and have always eaten right and exercised. I don't understand what happened to me. When I ask, "What should I do" they get mad at me. I don't want drugs to cover up the symptoms, I want to fix the underlying cause. I have every right to ask questions, especially when I'm paying over $100 per visit.

Ooops, I guess I needed to vent a little more than I realized. Sorry folks.

I wish everyone the best of help, and thanks so much for your support and listening.

Love to all!!

Posted 3/23/2009 1:49 AM (GMT 0)
And to nurse2, I've wondered several times if maybe i have lupus. When I asked the doctor to test me (and I've brought it up a few times) he always says "Oh, it wouldn't be that."

How would he know? Can you diagnose lupus by asking a few questions to a person with your back to her and when she says that she has a rash, you say "Oh yeah, I've got a rash too" and then not even bothering to look at it???

I mean really, I know I'm young, but i also know that something in my body is NOT RIGHT.
Posted 3/23/2009 1:50 AM (GMT 0)
I think maybe I'm angrier than i realized. I just want some help for the enormous amount of money I've spent on doctors.
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