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Posted 5/28/2009 7:58 PM (GMT 0)
Hi
I was diagnosed with peripheral neuropathy 03 years ago and Fibromyalgia about 12 months ago. The amount of pain I'm in has increased and I seem to have gone down hill since my fibromyalgia was diagnosed. Recently I seem to be getting regular migraines which are so bad I have to go to bed. I have difficulty constructing sentences - I can't remember words - it is so embarrassing as I write letters and advise people on the telephone about points of Law. I'm also finding that I am becoming constipated followed by diarrhoea. It also seems that I suddenly become 'full' and want to be sick when eating - it's as thought the nerves that tell me that my stomach is becoming full stop working and I don't know I've had too much until I'm on the verge of vomiting. Don't get me wrong I don't eat a lot. A biscuit is fine but when I eat my lunch or dinner I suddenly feel like I want to throw up and I've only eaten half of it! Is this normal? I just don't know what to do. I feel that if I visit the doctor every time something new happens he is going to think I'm a hypochondriac. I don't know what is 'normal' for fibromyalgia and what isn't. Please help. Thank you
Posted 5/28/2009 11:57 PM (GMT 0)

Hi Sandy and welcome to the forum. A lot of what you have going on is 'normal' for FMS, sorry, but it shouldn't stop you from mentioning things to your dr. The problems w/ your stomach and bowels should be seen by a gastro. I have been there and I had to see a gastro yrs ago. I also have problems w/ chronic nausea, had to see my PCP who put me on Reglan.

I also have the problem w/ memory, words and sentences, it isn't pretty. Sometimes, I can remember the word, but I can't remember how to spell it cause I can't think what letter makes that sound. I have worked in a law office and as a teacher. It was a challenge.

Could your headaches be due to the lighting at work, I had that yrs ago. I had never suffered w/ headaches before. They were brutal.

I would suggest to check up the top of the page for a post called Fibro 101, several of the members compiled a lot of great info, it will give you a place to start. I would also suggest you get some books, first from the library to see which ones are most helpful to you. Then if there are some you like you can usually get them cheaper online (Amazon or such) than in your local bookstore.

Also, keep asking ??? here. The ppl here are just the best. They are very helpful pointing you to good info, lending an ear, and a shoulder when you need a friend.

Hope you're feeling better soon!

God bless.  Alice.

Posted 5/29/2009 12:19 AM (GMT 0)
Hi there Sandy,

Migraines, mmmm hate them.....can't remember the last word to complete my sentence, hmmm so annoying.....start to eat and my stomach says, I don't think so.....Yuck. Well lady I am sorry you are having so many symptom/issues with your body right now other than the everyday aches and pains of FM. I had and still have those symptoms/issues as well.

Keep going to your doc, tell and ask him/her everything you are experiencing. I know it is soooo frustrating to not understand and deal with all the crap that goes on with our bodies with FM. You've got to keep an open dialog with your doc and keep a journal of your symptoms and any questions you may have for them. Like Alice said, check out the Fibro 101 thread it has a lot of good info and keep reading (when your head is not killing you) books or anything you can get your hands on regarding Fibro.

I wish you a better tomorrow. Enjoy a nice warm bath with very low lighting and zone out a bit.

Hugs,
Posted 5/29/2009 1:56 AM (GMT 0)

I also have all those issues. I don't eat meals anymore, can't swallow, so I have ensure twice a day and, like you a buiscuit and cheese, or some other light supper. Oddly, I have no problem with eating salads, fruits and veg, and I drinka fair bit of milk. So, obviously, I'm not starving. I also just discovered this really cool yougurt smoothie, tastes great, only 130 calorries and will aid in digestion and regulating digestive tract. So, you are not alone. i also get frustrated with seeing my doc, as I feel he often blows things off, and is always in a rush. So, I write out my priority list, and try to get through as much as possible. I have broken down in tears in the doctor's office because sometimes, I cannot get my point across. So, I just decide to wait a week or so and try again.

You may want to get your thyroid checked and also get tested for Irritable bowel. These conditions are close buddies of fibro. Good luck. Hope you have some good days soon.

Posted 5/29/2009 3:03 AM (GMT 0)
Sandy,
Reading your post was almost like reading a mirror, if that makes sense. I have all the same symptoms, and it is indeed very frustrating. I don't think my memory is too bad yet, but the eating thing....it's ridiculous. I have lost 50 lbs in just a couple of months, and I just checked my weight today and had lost and additional 7 lbs from the last weigh in. Please do tell your doctor about these things. Don't worry about what he will say, I'm sure if the eating issue continues you will begin to lose weight and that is tangible proof to your claims. The only way for to get the best care possible is for you to be open and honest with your doctor. If the doc won't listen to you, find one that will.
Posted 5/31/2009 4:32 PM (GMT 0)
Thanks everyone for your replies.

It wasn't until I'd posted my question that I noticed Fibro 101 which I found very helpful too especially not smelling things correctly. Over the last 8 months I have been smelling weird things but the smell is nearly always the same either cooked kippers or raw fish. I've smelled it in Chinese Restaurants and in the street [the smells were coming from and chicken and sweetcorn soup]. I've even woken up some mornings thinking my boyfriend had visited and was making himself smoked bacon sandwiches - nobody in the house except me.
Other than being weird is there any harm to this?
Posted 5/31/2009 6:41 PM (GMT 0)
I don't think it's terribly unusual or will cause other problems. I do know folks with epilepsy, smell unusual smells sometimes before a seizure. I know my sense of smell is way exaggerated before, scared to say it, migraine. However, I think this, in your case and others is the nervous system up to mischeif. Have you mentioned it to your doc?

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