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new to the site and just wanted to say hi

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Posted 6/20/2009 1:49 PM (GMT 0)
Hi all

Not used to this kind of thing so excuse if i ramble or make terrible spelling mistkes not having  a good time at the mo so i suppose im just here to make some friends and have somone to talk to alout all this. Its harder for me as my partner is in a wheelchair aftera road traffic accident ten years ago so its not easy for him to help me on a bad day.

Hope that all makes sense. rolleyes

 

Posted 6/20/2009 2:31 PM (GMT 0)
Hi hunibee and welcome! Pls don't worry about sp mistakes or anything, we all make mistakes. We just come here to be w/ friends and talk things out. If you go to the top of the page you will see some info on Fibro 101, some of our members compiled some helpful items. Check it out. The folks here are very kind and caring, not judgmental. We are all in the same boat w/ a lot of things and we all look out for each other.

I am sorry you are having a hard time right now. June has been a strange month, weather wise, I hope that we all have some nice weather soon, maybe it will help us a bit. It has either been too rainy, too cool, too hot, too ... everthing, lol.

If you have any ???, ask away. If you feel like venting, do so. You will be amazed at what a great stress reliever that is.

But most importantly, Welcome to the family!

God bless.   Alice.

Posted 6/20/2009 2:53 PM (GMT 0)
Hi Hunibee,

I am also new. The stork delivered me here a few days ago. This is so addicting, because you finally have a place to talk and we all no what we mean. I love it. Unfortunetly, when you feel your worst and totally down, wondering why you, when you're here someone always has it worse then you, and it helps to know this. That sounds terrible, but I hope you get my drift. I can see how it would be difficult for you.

What is your worst feeling right now?
Posted 6/20/2009 2:59 PM (GMT 0)
Hi hunibee! Welcome! I just joined 2 days ago myself! This forum is amazing though! You will people that can help you, and most of all, that care about you! It's a wonderful feeling! I hope you love this place just as much as I do! :-D
Posted 6/20/2009 3:05 PM (GMT 0)
thank you for your replies and in answer to your question how am i feeling right now i could be here all day lol

its the why me i have had to give up work which was the hardest thing and when i get days that i cant physically get out of bed it happened last week and the doctor on call came out and told me to get a grip of myself that hurts because you cant see anything physically its hard for people to understand what you actually feel im having awful pain in my left arm, my wrists and calfs they constantly vibrate its not pleansant and because my diganosis is only from my GP i have to wait to see the ryheumy before i can start to claim any benifits and so its tight with monmey at the mo i only get statory sick pay but i wont ramble on but it is good ot be able to vent some of how im feelong rite now.

Thank you all xo

Posted 6/20/2009 3:21 PM (GMT 0)
Welcome hunibee and all the newcomers. We are so glad you are here.

Yes this site is great to come and chat about our feelings and physical status. Sometimes, all you need to do is vent and this place makes it easy, because everyone really cares about you and is so supportive.

All I can say, is keep posting and let us get to know all of you and you get to know all of us.

Here's wishing a lpd (low pain day) and God's blessings.

Gentle Hugs.

Lindaloo
Posted 6/20/2009 3:25 PM (GMT 0)
Hang in ther hun. And if you want to go back to bed, GO. We all need that.

I am so fortunate to have a very understanding, caring, nuturing husband. He always knows what I need. He went to the Mayo clinic with me, and sat thru two days of fibro classes, so he really gets it.
Posted 6/20/2009 4:02 PM (GMT 0)
Hi hunibee and welcome to the family and family we are. Having fibro is not easy and learning to live your life a different way is not easy. We go through a lot of steps of loss before we get to the acceptance stage. I started going down hill about 11 yrs ago and it has gradually gotten worse over the years and new problems have been added that are not fibro related. I get so frustrated with my body sometimes I could just go out in the country and scream. We are having a cookout today for Father's Day and everything has to be scheduled early cause by three in the afternoon my energy is gone. No more summer nights sitting out under the stars at this house. So Huni you just get it all out on here, it maynot help the pain but it will make you feel better knowing that there are all of us that totally understand.

 

luv and hugs

Marlee

Posted 6/20/2009 5:17 PM (GMT 0)

Hi, Hunibee, and welcome!  I'm so glad you found us and joined in.  You can see that we do have a wonderful group of members here that love to help one another...and we really do care about each other, too.  I think that's what sets us apart from other forums.

I'm sorry you have this lousy illness but you will learn how to work around it and still have a full and enjoyable life with fibromyalgia.  It can be done because I am doing it.  I have had fibro for 22 years but I don't let it stop me from doing what I really want to do.  You will learn to pace yourself.  Your body will tell you just how much you can do before it will rebel.  Once you learn that, you can plan ahead so you can get done what you need to do.

Sitting and laying too much will make you stiff as a board.  Gentle stretching and light exercises really do help a lot.  I enjoy walking so that is my exercise of choice.  I started out slowly and didn't go very far but I have strengthened my endurance and now start out each day with a one mile walk.  If you have access to a pool, water exercising is great too.

As Alice said, be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia there, including a list of symptoms and some gentle stretching exercises that really do help.  You will learn a lot there.  Also, there is a world of information in back posts, too.

Don't hesitate to ask questions.  We are here to help you.  I'm glad you are here and I hope to hear more from you soon.

Sherrine


Posted 6/20/2009 5:47 PM (GMT 0)
hi hunibee,
i'm new to all this too so i'm wobbling around from page to page and getting a bit lost.
I guess we can all help each other here, however, i don't know where to start and couldn't articulate a reply even if i tried right now.
I hope you feel better sson.
Posted 6/21/2009 5:57 AM (GMT 0)
Hi Hunibee and welcome to the FaMily! Bless you for all you do -- fibro and a partner to take care of, too........Wow! You are obviously made of 'good stuff' -- although I'm sure it doesn't feel like it a lot, or most, of the time.......Please know that you will be cared about and shared with and listened to and valued on this forum -- take whatever you need and give back whatever/whenever you can. Just being here with us is enough for now -- as you feel stronger, and you will, you will find that you have a lot to offer the rest of us, too!
(((hugs)))
Shash
Posted 6/30/2009 3:59 AM (GMT 0)
 i just signed on for this site--have had fibro for about 2 years--i am so sick of saying the wrong thing, and feeling like i have to concentrate on each word that comes out--and i am so forgetful--pain everyday in my feet, arms, back, and leg--lots of lumps.  i feel like i am griping--but i know my husband is more than likely sick of hearing it--and he is such a kind man--i am 60--always in good health until they did cervical surgery on me in 2007--it has been downhill ever since.  i take 40 mg. of oxycontin everyday--never gone up--but can't come down either--i am wondering if i am going to be on it forever--it's the only thing that helps the pain---thanks for this site--and thanks for listening--roxiegirl

Posted 6/30/2009 7:46 PM (GMT 0)
I am also new to this site also,I have found that i am not alone in my constant pain ,and "complaining". This site has helped alot.sometimes just reading what other's are going through,it is like i have written those post's myself.I do feel this is a great place to come for support and understanding. :-)
Posted 7/1/2009 1:05 AM (GMT 0)
thank you--i think this really is going to help--
Posted 7/1/2009 1:29 AM (GMT 0)
Hi Hunibee! I just joined too, on 6/29, I very sorry that things are hard right now... I hope they get better for you soon, or at least more managable...
If you need a friend, to me, after such short time with this community, I believe friends are more than possible!
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