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Posted 6/22/2009 4:51 PM (GMT 0)
Hi all,

It has been years since I have posted on here. I came on looking for advice and support.  I was diagnosed with fibro 6 1/2 years ago.

For awhile now, my legs, arms and upper body, and head will jerk/jump and my leg muscles are constantly twitching, jerking, or ticking. (all the names I call it) It is driving me crazy. My legs have been the worst this past two weeks. So bad that the muscles are constantly sore because of it. Any ideas how to help with this? Or any ideas as to why this is happening? Even my arms, hands and fingers will jump as well. Hands and fingers not as often. The worst is when I am laying down falling asleep or have my eyes closed. My whole my either at the same time or different parts will jump so hard. I don't know how to stop it. It's soooooo annoying!!!! I can tell you it's not restless leg as I have had that since I was a kid and this is nothing like that.

It's not constantly shaking it's more as if you are going to kick someone or hit someone. Like fine fine fine then bop. kick or smack with my leg or arm.

This is also making me feel very unstable and unbalanced. Very shaky in the body if that makes any sense.

Post Edited By Moderator (Sherrine) : 6/22/2009 10:56:45 AM (GMT-6)

Posted 6/22/2009 4:55 PM (GMT 0)

Hi!  I haven't heard of that much movement with fibro.  I would see my doctor and let them know what is going on.  Maybe some tests need to be run.  Hope you find out what is causing this.  Please let us know.  We really do care.

Sherrine

Posted 6/22/2009 5:56 PM (GMT 0)
Hello Mrsnank....

I occasionally have what I call an electric jolt in my body, recently its been in my stomach/abdomen area. I use to get it alot at rest (not sleeping) with my legs, ribs, shoulders. I would be sitting in my chair at work, calm and then BAM my leg juts forward or to the side or I bend to my side in a quick reaction to my rib shock. I don't no if anyone noticed. Its embarassing.....

I use to take a larger amount of gabapentin and being its a anticonvulsant drug, I thought that might of had something to do with it. I take a real small dosage now and my 'jolts' don't happen very often. Dunno...

I have found out in past forums that others have had the same type of 'jolts' other than RLS.

But I would still see your doc though.

Take Care,
Posted 6/22/2009 10:54 PM (GMT 0)
I call it the heebie jeebies. It starts with kind of tight muscles. Not a lot of pain. It's a weird feeling. Then all of a sudden WHAM, big jolts. When it happens to me when I'm sleeping, it wakes me up. Great. Do you ever play a game with yourself trying to guess where it will happen next? It takes your mind off of it so you kinda forget you won't be falling back to sleep anytime soon. These jolts are not to be confused with the ones I get from my husband, after I have rammed him in the chin with my elbow.

I am not making lite of your situation, however. You need to relate these to your dr. Best of luck to you.
Posted 6/22/2009 11:14 PM (GMT 0)
Yes see your doc, but I also wanted to point out that some medications will do this as a side effect--it happened to me once.
Posted 6/22/2009 11:38 PM (GMT 0)
Hi!

Gosh, that does sound miserable. My arms/hands/fingers do it a couple of times most every day and once in a while my legs will but not as severe as yours. I haven't asked my doc about it because it's not very bad but I agree that you do need to ask doc about why and what's going on. I looked around the internet and didn't find anything reasonable that would explain it.

Keep us posted, OK?
Chutz
Posted 6/23/2009 12:26 AM (GMT 0)
I don't know if you are ony and SSRI's but Zoloft did that to both my mother and brother.  My mother had a cup of coffee and it jerked out of her hand and hit me in the chest.  Like others have said, some meds do this.

Donna

Posted 6/23/2009 12:41 AM (GMT 0)
I experience this on a regular basis, especially in my legs.  It's not a constant spasm, but rather a violent jolt.  It mostly happens to me when I'm lying down, trying to relax.  It always feels like the muscles in my lower back are what are causing the jolt.  It's usually only mildly painful, but very annoying.  I don't know what causes it.  I made a brief mention to my doctor one time, but he didn't really give me an answer.  I don't believe that it's medications, because I have switched all my medications and it has happened continuously, no matter what.  Anyway, I just wanted to let you know that I know exactly what you mean.  Now, if only we knew a way to make it better. wink

Take care,

SaraBeth

Posted 6/23/2009 6:16 AM (GMT 0)
I saw my Doctor one day and while I was in there this happened tpo me not as bad as it can get but enough, My DOCTOR DECIDED THEN AND THRERE I HAD ms. I can tell you we had some interesting conversations. In the end she had to agree with me it was not MS but in fact part of the Fibro I get. It gets so bad if I try to stop it happening it then starts on my leg and if I still try to stop it then my whole body will start so now I know that if I feel it coming on just to relax and let it happen. For me one finger on my right hand will start to tap and when it is at its worse my body jeks around a random. Since I have started taking a new drug it has stopped altogether now. Being tired and overdoing it was a trigger for me. Look after yourself and see your Doctor.
kathy
Posted 6/23/2009 12:47 PM (GMT 0)
Just wondering if this could be related to Parkinson's Disease. I've known a couple of people with it and it sounds like the kinds of movements they do. Please ask your Doc about it. Most likely it's just another fibro effect, not trying to scare you, but you just never know.
Posted 6/23/2009 2:49 PM (GMT 0)
I have these too. My whole body will just like spasm for no reason whatsoever. Sometimes it's just once randomly, other times I have had it for a few hours off and on. I have been to the doctor for it, and he thought it could be some kind of medication interaction, but when he temporarily changed meds to find out, it made no difference. He then did blood work and such, found nothing. So he chalked it up to my fibro. I had never heard of it before, I was glad to find this post, I know I'm not alone!
Posted 6/23/2009 2:50 PM (GMT 0)
Thanks for all your responses!

I have seen my doctor about this. I go once a month for med refills and discussion on how I am feeling. When this first started I was taking ultram. He assumed it was what is called simple partial seizures and took me off that med. It started to calm down a bit, then it came back worse than before. I went back to my regular monthly app and he is completely baffled saying that none of the meds I am taking now should cause this to happen. I think he is still stuck on the simple partial seizures which I read up on and sounds nothing like what I am experiencing. He is a wonderful doctor and we are very close. We have known each other for years before I even got sick. Unfortunately there is a bit of a language barrier and I think he may not understand what I am saying completley. Not totally sure though. Anyway, all the reading and researching I have done points to MS. I, my family and him (years ago) are pretty sure that's what it is, but I need more testing. I was just hoping that everyone here has the same issue and that it is a fibro symptom overlooked on all the internet info. Although parkinsons is something in my family, I am not convinced that may be it.  So thanks again and if anyone else has a story similar, I would love to hear it!!

Posted 6/23/2009 2:52 PM (GMT 0)
Angel, I was typing this while you were typing yours. I am so glad to hear that I am not the only one. NOT that I want someone to suffer too! Can we talk more to compare?

Posted 6/23/2009 2:54 PM (GMT 0)
I just read your newest post and I have two things to say/add to my previous post.

1. I hate Ultram. End of story.

2. My neurologist once thought I might have MS and did an MRI and it was ruled out completely. MRIs are not fun, but they are an easy way to rule out MS. Once I had that, they chalked most everything up to my fibro. I'm not so sure if that's good or bad, lol.

Good luck!
Posted 6/23/2009 2:55 PM (GMT 0)
Yes, of course we can talk more about it! Do you want to talk on here, email, or yahoo?
Posted 6/23/2009 3:56 PM (GMT 0)
Sorry, I popped off for a bit. Yahoo and email would be great! [email protected] also mrsnank is my yahoo id.

Posted 6/23/2009 4:07 PM (GMT 0)
I added you on yahoo, and will shoot you an email if I don't see you on there!
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