I don't get it!

Hey all. I post here sporadically, sorry I'm not around more often. Just for reference, I was officially dx'd in November after 4 years of looking for answers. I am 24. My rheumy called my fibro a "mild case", but I have not been convinced that what I'm suffering is actually fibro. I don't have a lot of the tender points (rheumy said that doesn't matter) and I don't seem to suffer as badly as what I hear most people w/ fibro talk about.

BUT on the days when I am at my worst, it is soooooooooooo frustrating. My problem is (and I know a lot of you are going to say this isn't a problem and I'm actually lucky) I am a runner. I ran competitively in HS and college, and still do road racing for fun. Some days I can still get out and run 5 or 6 miles. But then other days, like today, I could barely drag myself out of bed. My forearms and lower legs, wrists, and feet hurt, and my hands tingle like they have just been asleep and are waking up. Constantly. I'm exhausted even though I got 8.5 hours of sleep and had 2 cups of coffee.

Here is what I don't get - WHY am I perfectly fine one day, and feel like death the next? Is that just part of fibro? When do I stop searching for something else that may be wrong with me, something curable, and just accept this diagnosis?

hi,
I absolutely agree with you, for a long time i didn't accept fibro as an answer as i also was so very active. I swam for college and still do, i cycle cross country and even completed a fun race some weeks back. Today, i can barely lift a finger and barely got through work.
My physio says he thinks fibromites muscles don;t repair as well after exercise as others do, it would make sense. I get DOMS to the point of not being able to stand sometomes if i overdo it.
If everything else has been ruled out then i'm afraid acceptence is the next step.
As much massage as you can afford, plenty of hydration and i founf magnesium and co enzyme q10 good for when i'm in training for a trip away on the bike.
I also take pain meds before i exercise.
I hope that helps, boo

Thanks for the replies. Boo, just curious, what are DOMS?