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Fibromyalgia
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Posted 8/28/2009 2:07 AM (GMT 0)
Well i started posting on the Epilepsy forum on here i had been diagnosed with Epilepsy In Jan. 2009
Anyways the past i would say 5 to almost 6 years i have had relentless pain and fatigue i knew for the past 2-3 years it had to be fibro anyways after years of fighting with doctors i was finally sent to a Rhemotologist this month and guess what? I have Fibro, anyways i guess i will now be on this side of the forum as well. i need help with understanding and flares im just so happy i got a diagnoses after all the doctors, tests and years!!! Hope to get to know you all.
Chiyo



Epilepsy, and Fibro
Posted 8/28/2009 2:29 AM (GMT 0)
Hi, Chiyo, and welcome!  I'm sorry you have been diagnosed with this illness but we are here to help you.  Getting the diagnosis can be a battle. 

 

Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibro and you will learn a lot there.  Knowledge is power and we want the power to control our pain.  So, learning all you can is really good.

 

I'm glad you popped over here.  We have a wonderful group of people that love to help one another and, as a bonus, we really do care about each other.  So read back post, and don't hesitate to ask questions.    Hope to hear more from you soon.

 

Sherrine

Posted 8/28/2009 12:49 PM (GMT 0)
Chiyo

I am sorry you to have to live this life.. But wanted to welcome you to this side of the board. I'm kinda a newbe here my self... I used to vist another board but they had a couple that always wanted to bicker.. so I had to leave them .. lucky I found this site everybody seems to be so nice.. and there is no bickering that I have seen

anyway ... welcome.

Flare's are very hard to learn as your limits seem to change all the time. I still have probelms with this after being Dx'ed about 1 1/2 yers ago... we are all just so Different. and then there are the other Med conditions we all deal with that makes us all so Different , if that makes any since to you.
sorry one of my mopre Foggy days. LOL ..

Take care
Posted 8/28/2009 1:32 PM (GMT 0)
Welcome Chiyo,

I believe it takes courage to live with this illness. Believing in yourself is so important.
Positive attitude really makes a differance in how you take control.

You will have to set limits for yourself. Learning not to overdue is really important.
Asking for help when you need it is important too. You need to be kind to yourself.

I am so glad you found us. Come here to vent or ask questions. There will always be
someone here for you!

Robin
Posted 8/28/2009 5:25 PM (GMT 0)
Welcome to the forum, new fibromite. This is a wonderful place. Everyone here is just so nice. I think you will love it here. If you need info on fibro, I would check out the Fibro 101 at the top of the forum. There is a lot of great information there. Everyone here is really supportive. If you ever need to vent, you can do that here. If you ever need some support during a really rough time, you will find it here. If you ever need a good laugh, you'll find that here as well. Glad you can join us. Hope you have a pain free day.
Posted 8/28/2009 5:38 PM (GMT 0)
Welcome to the challenging world of fibromyalgia.  I'm new to this forum but have found it to be relevent, informative & supportive.  Try to keep positive & rest when your body tells you to.  Take care.

 

Posted 8/28/2009 5:46 PM (GMT 0)
Welcome to the board! I know what you mean about being glad to actually know what is causing the pain - hope you can find something that helps soon!
Posted 8/29/2009 2:42 AM (GMT 0)
Thank you to all who have replied to my post!!
I do often try to limit myself but as a mom of two girls and wife of a disabled vet it is hard some days to just take it easy, I do try but things have to get done and since my husband walks with arm crutches i have to sweep and mop i would have the kids do that but they have school and me and my husband stay home all broken lol so i just do it. I appreciate all the responses though i will need the support i have delt with the pain for so long and it only seems to be getting worse and widespread is that a normal progression? Hopefully someday i will only have a few flares instead of everyday flares of pain somewhere, or is this even possible? God bless you all and thanks for the support!!
Chiyo
Posted 8/29/2009 2:52 AM (GMT 0)
Hi and welcome to the family! We immediately adopt people when they get here...lol Just kidding, sort of. This truly is a family of people who care deeply about each other. I may take a while to get to know folks but we'll take on the job of getting to know you first. ;-)

Come join our daily Koffee Klatches. Each day there's a post on some question or tips and hints to share. The only rule in the Koffee Klatch is no talking about the 'P" (pain) word! We need some time that is totally about the rest of our lives and not the pain.

And on Thursday nights we have a Chat Night that we hold in the Chronic Pain chat room. People from all over the boards join us and we have a blast. We chat about whatever comes up from chocolate to pains from pinched nerves. We're still working on the theory that chocolate solves all pain issues but the trials are continuing still. Come join us at 6 PM Pacific Time, 9 PM Eastern on Thursday Evenings. There is always a reminder post on Thursdays.

Keep in touch!
Chutz
Posted 8/29/2009 11:53 AM (GMT 0)
LOL, you guys surely sound honest and fun loving i think i finally found the place for me!!
Thanks so much
Chiyo
Posted 8/29/2009 3:24 PM (GMT 0)
Hi Chiyo and welcome to the family. You will get all the support you need here. For me fibro has spread over the years. I also have myofacial pain syndrome (MPS) which causes knots in the muscles that muliply. There is an article about it in the fibro 101 thread. I can't always tell what is fibro and what is MPS.

 

luv and hugs

Marlee

Posted 8/29/2009 7:56 PM (GMT 0)
Welcome to the Forum. These people here are terrific!

Marlee, do you mean that the fibro has been progressive? I have wondered about that recently. Seems like I have had fibro awhile, but only started having problems walking about 2 years ago.
Sue
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