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Posted 10/21/2009 2:22 AM (GMT 0)
I get these weird episodes almost every day, it's very frustrating. I know I have fibro and reynaud's, my Rheumy thinks these might be seizures, but I've already seen a neuro for this and he says no. Not sure where to go from here.

(Keep in mind this is all on the left side of my body only)
-Temple pain, usually throbbing
-Eye pain, usually throbbing (connected with left temple pain)
-Eye Fatigue, feels tired and gets small
-Whites of eyes turn yellow or pink (goes away as soon as episode is over)
-Arm pain, shooting or stabing usually
-Leg pain, shooting or stabbling, sometimes throbbing
(Basically my entire left side has pain)
-Slurred Speech
-Unable to think properly, can't get words out
-Extreme dizziness, head bobs around
-I am able to hear and understand everything
-Sometimes it feels as if someone has picked up my left side and dropped it down, if that make any sense. I feel the left side of my body lift up and then back down and it happens very quickly and only once.

I have tested my blood sugar to see if that is what is causing the spells, since they happen mostly when I get hungry, but my levels are between 77 and 90, not at a level for a typical hypoglycemic episode. I must eat between 2 to 3 hours to keep from having a spell, but I travel in my job and not always able to eat that consistently. These spells also happen when my body is stressed, i.e., running, walking long distances, after and sometimes during sex, etc. Does this sound familiar to anyone?
Posted 10/21/2009 3:02 AM (GMT 0)
Cocktail have you look into Transient Ischemic Attack or TIA? My husband had that hppen to him luckily he was in ICU at the time and got diagnosed really fast. I just copied this from

http://www.americanheart.org/presenter.jhtml?identifier=4781

What is a TIA or transient ischemic attack?

A TIA is a "warning stroke" or "mini-stroke" that produces stroke-like symptoms but no lasting damage. Recognizing and treating TIAs can reduce your risk of a major stroke.

Most strokes aren't preceded by TIAs. However, of the people who've had one or more TIAs, more than a third will later have a stroke. In fact, a person who's had one or more TIAs is more likely to have a stroke than someone of the same age and sex who hasn't.

TIAs are important in predicting if a stroke will occur rather than when one will happen. They can occur days, weeks or even months before a major stroke. In about half the cases, the stroke occurs within one year of the TIA.

What causes a transient ischemic attack?

TIAs occur when a blood clot temporarily clogs an artery, and part of the brain doesn't get the blood it needs. The symptoms occur rapidly and last a relatively short time. Most TIAs last less than five minutes. The average is about a minute. Unlike stroke, when a TIA is over, there's no injury to the brain.

What are the symptoms of a TIA?

It's very important to recognize the warning signs of a TIA or stroke. The usual TIA symptoms are the same as those of stroke, only temporary:

  • Sudden numbness or weakness of the face, arm or leg, especially on one side of the body
  • Sudden confusion, trouble speaking or understanding
  • Sudden trouble seeing in one or both eyes
  • Sudden trouble walking, dizziness, loss of balance or coordination
  • Sudden, severe headache with no known cause

The short duration of these symptoms and lack of permanent brain injury is the main difference between TIA and stroke.

TIAs are extremely important predictors of stroke. Don't ignore them! If symptoms appear, CALL 9-1-1 TO GET MEDICAL HELP IMMEDIATELY. A doctor should determine if a TIA or stroke has occurred, or if it's another medical problem with similar symptoms. Some examples are seizure, fainting, migraine headache, or general medical or cardiac condition. Prompt medical or surgical attention to these symptoms could prevent a fatal or disabling stroke from occurring.

For stroke information, call the American Stroke Association at 1-888-4-STROKE.

 

I hope this was some help.

Jenks

Posted 10/21/2009 6:41 PM (GMT 0)
This happens on a daily basis, I didn't think someone could have a TIA on a daily basis. It's been going on for a little over year and is increasing in frequency. It used to be only once a month, then once every two weeks, then once a week, then two to three times a week, and now almost every day, sometimes a couple times a day. It's pretty scary.
Posted 10/21/2009 7:07 PM (GMT 0)
Hi there,

Personally, I've had no experience like this--but it doesn't sound like a  fibro  symtom to me.  You say you have seen a neurologist, I'd say it is time for a second opinion by another neurologist.  If you have a university or teaching hospital near you, that would be my first choice to try.  They are usually very good, knowledgable, and up to date. 

 

Hope you get some answers soon.

Yo-yo

Posted 10/21/2009 10:19 PM (GMT 0)
Sorry this info was of no help to you. I pray that you find some answers soon. I can not imagine how fearful you are. You seem to be on top of your health so I believe you will have answers soon :)
Posted 10/21/2009 10:45 PM (GMT 0)
Jenkstrojanmom, it was very helpful!! I think it may be this too, I just need to ask the doc if it's possible to have recurrent TIAs. It will be interesting to find out. Thanks for the info!!!

yo-yo, I do have a teaching hospital nearby, I live in San Antonio, TX, so it's not the best city of medical mysteries, but it will have to do!
Posted 10/22/2009 12:45 AM (GMT 0)
Please go to the MS forum and ask the same question. I have family with MS and for a long time they were told they had bursitus and fibro etc. etc. I hope you find the cause soon. It is so frustrating when Drs pass you back in fourth instead of figuring out the cause FIRST and then sending to the correct Dr. Good luck.

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