does anyone with this stuff EVER feel rested?

i wake up tired.  i spend all day tired.  i can't wait to go to bed.  i hurt through all of it. 

seriously .. does ANYONE with Fibro ever feel energetic?  or wake up without that "Oh GOD here we go again" feeling? 

I keep telling myself that I'm gonna feel better and deal with all the messes that have accumulated around me ... but even though I have had 3 days off from work I STILL feel like I was hit by a truck. 

I talked to my husband ... he said that we might have insurance as early as January 14 ... but I can't call to make an appointment before that or else it will flag as a 'pre-existing condition" and insurance won't pay for anything anyway.  in fact, he thinks I should just find a new dr and start all over.  I didn't really like the last one anyway.  i am really kicking myself in the butt for letting this go so long ... (funny image, huh?)

Sorry ... I know that I sound fussy ...I'm not trying to be ....  but I'm just trying to get a realistic grip on this beast.  If I'm never gonna feel better, then fine ... I'll accept it ... but it's making me weary to keep hoping for better days and not getting anywhere.  What's realistic to expect? 

Most all of us have that fatigue.  I use malic acid/magnesium supplements and they help with the pain and fatigue for me.  They don't work for everyone but many on this forum have gotten help from them.  And, they aren't that expensive where I get them.  Right now...until December 31, they are running a special of buy 1 get one free or buy 2 and get 3 free!  Now, that's a good deal.  There is a link in Fibro 101 all about these.

 

Also, instead of waking up and thinking "Oh, God, here we go again" try waking up and thanking God that you have another day to enjoy your family and all the blessings you have.  It actually does make a difference as to the attitude you use to face the day.  I have more energy when I do that...looking forward to the day ahead.  I usually set reasonable goals for each day and when I accomplish them that makes me happy and I will get a little burst of energy that way, too. 

 

Sherrine

Hi!

I don't feel rested but that is one of the traditional symptoms that define fibro...not getting rested after sleep. One researcher I listened to compared fibro sleep to having someone wake you up about every 15-20 minutes all night long. 'Normal people should give that a try some day and see how awful they feel in the morning. It would give them a taste of what we deal with daily.

And I do agree with hope! You re not being fussy at all. It's here you can feel and say most anything and we all take our turn and understand how you are feeling. Never be afraid to share your thoughts...you're among family!

Chutzie

I'm just popping in today to say hello - and saw this thread and just wanted to contribute that there is light at the end of the tunnel. My rheumatologist diagnosed me with "severe" fibromyalgia last fall and as soon as I got a good treatment plan (2 prescriptions) and began aerobic exercise, I felt better within a few weeks. Then I had a major (14-hour) surgery but bounced back from that ok. I may be on meds for a long time, but I got my energy back and every day I wake up glad to see the dawn.

I pray you will find this too. It's criminal that you live in what's supposed to be the "greatest country in the world" and yet you don't have a decent health care system. I hope your government changes all that soon.

Thanks for all the replies! I am feeling a little inspired today ...

The more I read, the more I am realizing how much I have denied this problem exists in my life. I think I have literally run myself down ... every day thinking "Just do this .. you can do this ... EVERYBODY can make it through a day ... quit thinking about it ... suck it up .... this HAS to get done ...don't let anyone know that you're hurting everywhere ... don't think about it". These have been my mantras. And I have pushed and pushed and pushed until I have pushed tooooo far. Now I have a different perspective.

I think the new mantras is "rest when you can ... rest when you can ... rest when you can" and "let go". I don't like to complain ... I don't like to appear 'weak' ... but the reality is .. I am only hurting myself if I don't admit that I need some help and I need to slow down. I need to let the people around me know that I hurt everywhere ... that I just can't keep pushing this hard anymore ... and that I need them to know that I'm not being lazy ... I'm RESTORING myself.

My 3 beautiful children are 5, 12, and 14. All involved in different schools ... with busy schedules. The youngest has a dairy allergy. Which causes lots of extra work and worry ... we have to pack all of her food, read labels diligently, and be prepared for special events at school when other people bring treats she can't have. (the holiday was particularly tough for her!) She is really struggling with me going back to work ... and cries every day about 'why do i like those other kids more than her ... whey do i want to be with them instead of her .... i already had a job and that was being her mommy" it breaks my heart. The middle is in band, and has severe ADD ... so he stays after school for help 2 days a week. The oldest is a freshman in high school. In band, has a girlfriend, plays baseball, just got a part in the Spring musical, and also struggles academically ... so stays after for tutoring, strength training, and musical practice. My husband owns his own business .. so works just about every weekend. He also has a 'real' job that keeps him busy. We live on a 50 acre farm .. no farm animals now .. thank God .. but will likely have bottle lambs around February or March. and we rent out the land .. so no crops that we are responsible for now either. whew! Both boys have braces and painful adjustments every 4 weeks. We have 3 dogs .. one is 16 and feeble, one is a pit/lab mix, and the other is a 110 pound St. Bernard mix. I have had to go back to work full time in a daycare .... taking care of twenty 4 year olds Mon - Fri, several of these kids have emotional problems and they are EXHAUSTING. I'm also in school .. to acquire my Child Development Associate license. My parents are a mile away, dad in declining heallth .. I worry about him all the time. My marriage is hideous .... and causes me great stress and sadness every day. Our finances are a mess ... so I really do have to work .. but maybe I need a less physical job right now. (It's just so hard to find ANY job right now!) And I hate the idea of 'quitting' my job at the daycare ... it's what I have always been good at ... what I am trained to do ... what used to give me energy ... but I miss my own children so much, and this is a HARD class of kids to work with.

So .. it's no wonder I am exhausted. People without Fibromyalgia think my life is too full. And yet, I can't for the life of me figure out what to let go of. So as of this week, I am going to get the boys back into the habit of doing their own laundry and caring for the dogs. The little one can be in charge of setting the table and feeding her bunny and picking out her own clothes. She can help with packing her lunches and snacks too. Hubby can take over trash duty and helping with carrying the laundry upstairs. (that job kills me!) The boys know how to cook ... I taught them years ago .. and they can help with meals so that the rush when I get home isn't so crazy. I am going to talk to my boss this week and let her know that I can not keep up this pace much longer, and see if she has any suggestions. I'm going to talk to my assistant and tell her what's going on ... I need her to pick up the pace a bit, but I think she'll do it if she knows what's going on. I am going to call that rheumatologist and see about getting an appointment asap. I still have the records from when I saw the other one ... maybe that will be useful information. In the mean time, I am going to call my Primary Care physician .. it's $80 to see him, and I have to miss work to make an appointment, but maybe he can help me sooner than the rheum. appt.

Wow ... just organizing it all seems like a big task .. but the important thing is that today I don't feel like I have to do it all myself. I have raised these kids to be strong and helpful and part of the family. They can help .... I just have to step back and let them. And I have to lower my expectations ... that will be the hardest part.

I do have much to be thankful for. I know that. I do try to focus on it. I'm just so mired in depression and so disgusted by the way I feel and all that I can't do ... it's bogged me down. Looks like it's time for a new perspective though .... one day (or hour .. or even MINUTE) at a time.

Just came back from a week's vacation in Florida. Do I feel rested? NO WAY...but I had a great time. I overdid, walked too much, stayed up too late, ate too much junk but it was worth the pain I'm feeling now. There are times I throw caution to the wind and say the heck with it, cause girls just wanna have fun! I have my stereo cranked up and I plan on doing laundry and some housework while dancing and then take a muscle relaxer and soak in a hot bath.

I am constantly tired. It seems as though it never matters how much sleep I get...I'm still tired. I think its because we don't get the REM sleep. Gotta love it. Not.