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Fibromyalgia
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Posted 2/4/2010 12:48 AM (GMT 0)
i had a horrible pain in my calf muscle for the past couple days, was worried because it's not a pain ive ever had before, and due to the fact im on birth control i was worried it could be a blood clot.

after 4 1/2 hours and an ultrasound., it's a really bad fibromyalgia flare.

it's time like this i feel awful and i feel like my fibro is getting worse and worse as the days go on, i feel horrible in my own body because of this and i could really just cry right now, im getting so frustrated with this all.
Posted 2/4/2010 1:42 AM (GMT 0)
So Sorry you are hurting, flares are painful. I notice from your signature you are not
on any meds. Muscle relaxers really help me when I'm flaring and I take Savella on a
daily basis. It helps with my serotonin levels. Find some heat, soak in a hot bath or use
a bed buddy.

I was wondering if you get enough potassium in your diet, a low levels can cause muscle
cramps. Orange juice, banannas, potatoes and green leafy veggies are good sources.

Hope you are feeling better. There seems to be alot of us flaring right now.

Sending gentle hugs, Robin
Posted 2/4/2010 2:41 AM (GMT 0)
Have you tried magnesium/malic acid? It seems to help my muscle pain. Some of us have gotten benefits from it. You can do a search and read about it.

I'm glad you didn't have a clot. It's always a good idea to get new or increased symptoms checked out. Never just assume something is fibro.
Posted 2/4/2010 7:42 AM (GMT 0)
I too am sorry you had to endure the ER and that you are in such a bad flare. If you are in the northern part of the globe we are all dealing with winter. Rarely is that a good thing for fibro.

Please know that you are not alone. Most of us have days like you are experiencing. We feel hopeless and for good reason. The literature on fibro tells us that it doesn't get worse, yet nearly everyone on the forum disagrees with that assessment. Over the years mine has gotten considerably worse. But I do have a wonderful doctor who works closely to help me be as pain free as possible. Some days I feel like even with narcotic pain medication that nothing is even beginning to touch my pain. Tonight is one of those nights. All I'm going is sitting at my desk and typing...easy stuff, eh? But my back, shoulders, head, calves and feet are screaming with pain!

about 2 years ago I tried a short stint of malic acid/magnesium and didn't notice any results. This was only for about a month. Well, I trying it again along with a multiple vitamin that is loaded with good stuff and some extra vitamin D. (many studies have shown that people with fibro are short on vitamin D) Luckily all of those are cheap. I started just over 2 weeks ago and will give it at least 3-4 months and see. My long term goal is to lower my intake of pain medications.

Most of us get our malic acid/mag from an online store called Puritan.com I personally don't have any financial interest in this company nor do others who are on this board....as far as I know. It's just that they have it combined in a single pill and it's a great price. I spent just over $40 and got 5 bottles of the mag/malic and 2 bottles of vit. D. That's enough to keep me going for a year or more.

So hang in there and keep checking in, asking and answering questions, keep those muscles warm and please be good to yourself each and every day. It does make a difference.

Chutz
Posted 2/4/2010 3:25 PM (GMT 0)
I'm sorry you are having the muscle pain.  Is it like cramping?  I used to get really bad cramping in my legs and feet and my doctor put me on a quinine tablet when I had the problem and that helped.  BUT, I was diagnosed with osteoporosis and needed to take more calcium.  I switched to Citracal because it is absorbed easier and I started taking two a day...one in the morning and one in the evening.  And you know what?  My leg cramping stopped!  I checked it out and low levels of calcium can cause cramping.  Sooooo, it can't hurt but it could help!

 

I use malic acid/magnesium supplements and they have helped me.  Chutz, make sure you eventually work your way up to three a day.  It's at that level that it helps with pain from fibro! 

 

Hope you start to feel better.

Sherrine 

Posted 2/4/2010 3:45 PM (GMT 0)
I'm sorry your hurting so bad but glad it wasn't a blood clot. Take care and I hope it goes away soon.

 

Chutzie I asked my rheumy Mon if he thought fibro was progressive and he said it can be for some. I had already taken up so much of his time that I didn't ask him to elaborate on what he meant by "for some".  I know for me it took one horrific event in life to put me in a downward spiral that hasn't stopped. Although I still believe pain wise I'm much better off than many.

 

luv and hugs

Marlee

 

 

Posted 2/4/2010 5:05 PM (GMT 0)
Ashphobiax, I really empathize with you. I used to get really bad muscle cramps but I started taking a multi-vitamin and I make sure to drink at least 3 glasses of skim milk per day. That seems to have eliminated them. I haven't had a bad cramp for at least a couple of months.

I'm seeing my doctors on Monday and will ask about progression of this disease. So far, my neurologist has been more helpful than my rheumatologist, but I see them both on Monday and will see what each of them has to say.

As much as I like the cold weather because of constant hot flashes, since we started getting snow, I've been in one big flare-up that gets worse from time to time. I did have a couple days break from it being so bad. I'm very grateful for that because I was getting very discouraged. When it's really bad, I lay in bed and watch comedy DVD's that make me laugh out loud. I've found that laughter does help. It must have something to do with the chemicals released.
Posted 2/5/2010 12:28 AM (GMT 0)
thank you all for your kind words, i made an appt with a doctor for the end of the month to get some more help.

i hope he can help me.
Posted 2/5/2010 2:41 AM (GMT 0)
Ash,

I am glad that you made that appointment. Stay on top of things if you can. I just wanted you to know that I take the malic acid too and it does help me. Also the vitamin D3. I hope that you can try it and puritan's pride is where I get mine too because it has the magnesium in it. If you do try it, start out slow. You might want to check out fibro101 and read about it. I do believe that there is some information in there about it.

Best wishes to you.

Hugs, Karen
Posted 2/5/2010 4:21 AM (GMT 0)
I take at least 4 malic acid pills/day. I was taking 6/day and that's when I got the most benefit. I've tapered back down to 4/day to see if I am still ok on the lower dose.

The extra magnesium doesn't bother me but some people can't tolerate that amount. My doc ok'ed up to six/day to help with constipation.
Posted 2/6/2010 9:41 PM (GMT 0)
I'm soooooooooooo sorry you are experiencing all of this. Big hugs to you. I promise it will get better.

Sue
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