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Anyone here have a sleep study?

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Fibromyalgia
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Posted 4/14/2010 12:57 AM (GMT 0)
What did you learn from it?  My daughter is scheduled in sleep medicine next week.  I have had the study done, but for different reasons.  I'm not even sure they will order one because she is so young and if she has FM, aren't sleep problems expected? 
Posted 4/14/2010 3:03 AM (GMT 0)
i had one, and i was pretty young. i learned i wake up alot (which i knew), but they told me exact numbers. Something was wrong with either my beta or alpha waves (i can't remember anymore) but this causes me to pretty much never go into REM sleep. they offered sleep meds for me, luesta, ambien cr, but i was afraid of getting addicted to them and then not being able to sleep without them, and of side effects so i decided not to take any.

i think i was already diagnosed with fibro when i had it. it was in middle school, or may in 9th or 10th grade, but not after that. sorry, my memory isn't so good.
hope this helps a bit


-Aliza
Posted 4/14/2010 3:29 AM (GMT 0)
I've not had a sleep study, but it was recommended that I have one. I'm torn on this issue myself. It seems an expensive, inconvenient test.

My fiancee had a sleep study shortly after he had a stroke a few years ago. He only slept for 40 minutes the entire night, during that time he had several episodes of sleep apnea, but not enough for his insurance to pay for a cpap machine even though the doctor insisted he required one. Then, the insurance company decided not to pay for the test either, leaving us with a $4000 medical bill, and no treatment.

My sister had one and was also diagnosed with sleep apnea, she had enough episodes to qualify for a CPAP machine but couldn't use it. She tried, and the medical equipment company tried with her, but she couldn't get it regulated to wear it didn't dry her out too much. In the end it caused more trouble then in helped.

My 5 year old cousin recently had one, because she has breathing problems and asthma, and the doctor told her parents that she was just chubby and would outgrow it.

My now deceased brother in law and my adult cousin also had sleep studies, were diagnosed with sleep apnea, and adapted to their CPAP machines and felt much better. In fact, my cousin had most of the symptoms of fibromyalgia before his treatment began and after some time of treatment, he's virtually cured of those symptoms.

So if you're sure your insurance will pay for the test (don't leave it to the doctor's office and insurance to work out, get the codes the doctor will bill and call the insurance company yourself) and you can sleep in unfamiliar places, this could be a very useful test. Otherwise, I'd take some convincing.
Posted 4/17/2010 4:34 AM (GMT 0)
I have had two sleep studies done, both prior to my fibromyalgia diagnosis. My doctor ordered them due to my lack of restful sleep. They both showed that I had sleep apnea and RLS. They revealed that I was spending very little time in REM sleep during the night. A C-PAP was never ordered for me, which is probably okay. I doubt that I would be able to sleep using one, anyway. I was tried on medications for the RLS, but they both caused me to be really groggy during the day, so I didn't continue with them.
Posted 4/17/2010 3:39 PM (GMT 0)
I had 2 sleep studies done 7 years ago. I found that I have sleep apnea, and I use a Cpap every single night. I had a hard time getting used to using it, but it's better than the alternative which is heart disease. When you have apnea, you aren't breathing. When you don't breathe, you aren't getting oxygen, which comes in pretty handy :) Hope this helps! Good luck!
Posted 4/17/2010 8:02 PM (GMT 0)
I've had 2 sleep studies. They aren't fun. I only slept about an hour on the first one and the doc said everything was fine. confused
I had another one because my great Internal medicine doc said that in a number of cases, people who present with fibro are actually extremely sleep-deprived from sleep apnea.
My next sleep study showed that I was awaking about 30 times an hour, had very little deeper sleep and no REM sleep at all.
I've been using cpap for over 2 years now, and its helped alot. But I think something got funky in January, because all my numbers on the cpap machine aren't as good.
Anyhow.........long term sleep deprivation can have alot of bad effects on the body.
Good luck to your daughter. Its not a fun test. I did better on the second test, once they allowed me to have xanax ahead of time.
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